I have EDS Hypermobility type.
Does anyone suffer with Cranio Cervical Instability? How did you get it diagnosed and what symptoms do you have?
I have nearly all the symptoms on the "check list" and getting worse as time goes on. I had an MR! scan a year ago which showed no abnormalities but this was a laying down scan. I suspect an upright scan would show up something more as most of the symptoms I get kick in when I stand or sit up.
I feel like I'm starting another uphill struggle with the medical profession which is so daunting but I need something done as the symptoms are getting intolerable.
Any advice would be welcome.
Many thanks and have a "good-ish" day!