Hi My granddaughter has had her appointment with the rheumatologist, said she has super mobility in her feet ,ankles and hands and has recommended boots for school.
They have prescribed paracetamol and ibuprofen for her to take prio PE at school and also morphine for more severe pain.
You could have knocked me down with a feather, didnt know the pain would get that bad!!!!
She has said she does not like the orthopaedic boots so have said we will look at Kickers or something like. Some sort of support for her arm at school while writing and some sort of supports on pens and pencils ,anyone know what these are and where we might get them?
We have follow up in 5 weeks with rheumatologist and then with paediatrician a few weeks later .
Cannot believe how things have changed for her so quickly.