You all are so much stronger than I am. Or maybe you are living your lives instead of obsessing over things that can't be changed. I know I got carried away with supplements, but no more. It is just too much. (for those unfamiliar, I have not been diagnosed with PD. I have REM Sleep Behavior Disorder, a sore left shoulder and leg, poor balance, and seborrheic dermatitis).
So here is my new simplified stack.
1. Follow the Solar Cycle: I get up when the sun comes up. Got to bed no later than 11:30 PM. Wear blue blockers after 8 PM.
2. Specific Carbohydrate Diet: Has been shown to normalize the microbiome. I have been moving towards carnivore.
3. Circadian Diet: Only eat when the sun is out.
4. Intermittent Fasting: Only eat during an 8 hour window. Usually sometime between 10 AM and 6 PM.
5. Broccoli Sprout Tea (or a bowl of raw broccoli sprouts) for Sulforaphane: Drink it between 8:30 AM and 10:00 AM so I am boosting Nrf2 while my circadian rhythm is on the upstroke.
7. Dr. Matthew Best Prebiotics and Probiotics for Women. It has (among other things):
- Lactobacillus acidophilus
- Lactobacillus reuteri
- Bifidobacterium bifidum
- Lactobacillus fermentum
8. Berberine: 400 mg. Neuroprotective. Note to self: Identify more reasons why you are taking this. May need to take a break from this after 12 weeks
9. Vinpocetine: 30 mg (with food or your body absorbs nearly none of it). Supposed to increase blood flow to the brain.
10. 2 teaspoons of Brewer's Yeast on my food once a day.
11. Niacin 250 mg Time Released: 1 hour before bed.
12. CBD Oil: Right before bed.
13. Exercise: 20 minutes on the treadmill. Long walks when the weather is nice.
14. L Methylfolate (Starting today. Should help with depression and lower homocysteine levels).
15. Magnolia Bark Extract.
16. S Boulardii.
17. Cod Liver Oil.
18. B12.
These are the things I am taking a break from:
19. High Dose Thiamine (B1): Currently 1500 first thing in the morning, taken with 2000 mg of Magnesium L-Threonate.
20. Selenium plus Inositol: 100 mcg L-Selenomethionine plus 750 mg Inositol: May lower anti-thyroid antibodies (I have Hashimoto's).
21. Curcumin BCM-95: (BCM-95 means it has Curcumin oil in it) 650 mg. Antioxidant.
22. Saffron: 50 mg.
23. NAC 1200 mg with Taurine 1000 mg: 1 hour before bed.
24. Mixture of 1 teaspoon ground Chamomile Flower, 1/2 teaspoon ground Nigella Sativa, and one teaspoon Ceylon Cinnamon (my teaspoons are heaping), and 600 mg of Organic Licorice Root Extract 20:1 Powder. I just eat this dry a little at a time with a spoon twice a day (well before my first mean and well after my last meal). I chew it some and let it sit in my mouth as long as possible so it goes down my throat slowly. These are all antibacterial, anti-fungal, and anti-inflammatory. I'm trying to treat my microbiome from gut to mouth.
25. Exercise plus Red Light: 20 minutes on the recumbent bike with the red light shining on the back of my head. I follow this with hydrogen water.
I stopped Melatonin again also. I don't know why, but I feel it makes my depression worse.
I feel good about my top 18. Fingers crossed.
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Bolt_Upright
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You are very strong in my opinion. The mere fact that you are being so proactive shows incredible strength and bravery. I am relatively new here - but I have really appreciated your sharing. Take good care.
I don't know if there is science behind my choices. Hopefully there is logic. I wanted to take more time to cut the list down, but I just could not wait so I kept the things I could not force myself to cut. I still have some faith in things I cut, but if you forced me to pick 18 from my list, the ones I kept would be those 18:
5 of the 18 are lifestyle changes. Can't go wrong with those, and they don't weigh down my psyche.
I will go through the list tomorrow and write up why I could not cut the remaining 13 items.
Perhaps you should relate them to a context of the function and structure to which they apply. For example, the B1, taking 2000 mg of thiamine which is by definition "the spark plug that starts the engine" and zeroing the sugar which means turning it off is contrasting in the context of cellular energy function for example. So you have to choose if you want more energy and an "engine that running and doesn't hit in head" or a stopped engine that doesn't wear out, maybe . There is always a real situation of Structure and Function that must be understood in order to better align things. It is not the short road but the one that goes through the problem that leads us out.
and I will not answer the question as you would like because I see that you love to make lists and then cancel the items with yes / no / maybe. The speech is serious should not be done in person, but we do what we can. Let's get to the point. To make a list, you need a question, like 'what disease could I have, doctor?' And so you make a list. But what if all the items are wrong? We may forget the question over time, but we keep searching and listing in answer without knowing what the original question was, to which we didn't get a correct answer the first time.
Very upsetting for the person.
Tip:
1) stop making lists.
2) face life as it is now and resolve.
Keep in mind that what I write may fall into a list of wrong answers if it seems so to you.
PS. If someone thinks this answer incomprehensible and lunar, yes it is.
Thank you Gio (and apologies). You always provide wisdom and I appreciate that.
Most of the reason for cutting my stack was to get me away from obsessing. I think it is helping!
Do you like to travel by Streetview? In Kampala the temperature rarely goes below 60 degrees or above 88 degrees. I would so like to forget all of this and live in Kampala: google.com/maps/@0.2741945,...
It's my favorite sport and I call it: “creating new spaces by changing point of view“.
I'm the best after you. I am serious.
There is nothing to apologize for, there is nothing wrong with what you do, indeed it is highly appreciated by many and especially by me.
I understand your upset and I know how difficult it is to manage. But there are things that look huge but are just shadows of the mind.
Just as you create space by controlling what to look at, so you can control the shadows by directing your attention out of your thoughts and towards things, objects, animals, plants, rocks.
What would I step up on your list?
certainly point 13 # by multiplying it x5 outdoors by observing things carefully.
If done every day several times a day, even for a short time, it could make a lot of difference. the key point is extroversion of one's attention from oneself to the environment, it's not easy. !! but it works!
I was watching "The Professor" playing basketball yesterday. Everybody playing basketball and sweating and thinking about basketball. Basketball and landscaping my yard, that will be my summer (starting on Monday!).
Am I looking for reasoning when maybe this is emotionally based? I don’t know of any rationale in a break from magnesium , NAC, selenium & curcumin. Since you shared that you are ceasing these, can you share any reason based on research? I’m asking because does this apply to others as well? Concerned others will follow your lead and stop things that are important like magnesium based off of your sharing this news despite no reasoning other than apparent burn out. I’m concerned for everyone’s wellness.
so I understand better. IMHO if there is a group of which Bolt is the opinion leader, it is right that he motivates his decisions to the people of this group.
But he doesn't have PD... if you have PD then no matter how wise his list of choices are, you have to note that he has chosen them for REM and other things not for PD
Also Bolt hasn't explained why he dropped exercise- an essential for all PwP and red-light therapy- which has helped me (to some large extent) overcome brain fog
Thank you Missy. I do believe in the supernatural. I am so looking forward to Monday when it will be warm and I can spend the day outside not thinking about this.
That's interesting that you are eliminating the thiamine rather than adjusting the dose. It just hit me cuz thiamine has helped my husband. For example, he was unable to swallow pills without choking, but when he started thiamine he was able to swallow better within a day.
He's taken magnesium for many years to help with muscle cramps and now it's still part of his "packet". He used to take it at bedtime, but it began to bother his tummy, so he takes a little with his morning B1 and a little with his afternoon B1.
He did a trial of boulardii and maybe it did him some good, but nothing he noticed.
I can see the merit in your wanting to simplify for sure. It will be interesting to see how it goes and you'll learn a lot.
Thanks for sharing that B1 works ForViolet. I think HDT is probably the most likely great thing I cut from my list. I might add it back. It is a morning supplement, which fits with my plan.
To anybody who thinks I chose my list of things to keep in my stack scientifically, or that this new list is a recommendation, please do not think either of those things.
CC made a good point. I am burnt out. As the title of my post said, I "can't" keep up this stack so I had to cut things.
I believed in all the things that were in my stack, so by cutting a bunch I did cut things I believed in. Especially B1 and Cinnamon.
I made my choices on what to keep based on my symptoms, my philosophy on root cause, and where I am on this journey:
- My main symptoms are RBD, sore left arm, sore left leg. Magnolia Bark Extract should help me sleep and also has evidence it might help with PD: healthunlocked.com/cure-par...
- I believe my condition started with a pathogen combined with lifelong gut dysbiosis. The 3 probiotics I am taking address both pathogens and gut dysbiosis. Berberine is also good for gut dysbiosis and leaky gut AND for pathogens.
- I have major depression. Magnolia Bark Extract is supposed to help with depression. L Methylfolate should also help with depression, lower homocysteine levels, and I think lower cortisol. I think lowering homocysteine is a big deal and there are studies showing L Methylfolate lowers homocysteine in people with Hashimoto's (like me).
- There is too much good information out there on sulforaphane. It is good for gut dysbiosis, inflammation, pathogens, etc... so I had to keep the broccoli products.
- Niacin has the Auburn study going for it. That was enough for me.
- B12 is like a little piece of candy.
- Cod liver oil (or Krill oil) is omega 3. Everybody seems to believe in them.
I wanted to get down to a list of supplements I could be done with at my first meal of the day. So some when I get up. Some more when I eat. Then I don't think of them the rest of the day until I go to bed (when I take my Niacin and Magnolia Bark Extract).
I am also thinking of skipping supplements altogether on Sundays (except for Niacin and Magnolia Bark Extract).
And I might switch out all my morning supplements on Saturday to (very slowly) use up all of these extra supplements I now have.
So to recap: I kept things I think help, and I cut things that I think help. My choices are not a guide.
Thank you kevowpd. That would be interesting if Ldopa helped. I think I am suffering more from a lifetime of making bad decisions. As I mentioned here recently: I put the ass in Asperger's. I am fairly optimistic about the L Methylfolate. Thank you so much.
I have had major depressive episodes multiple times which have been helped with SSRI's but what I think was missing was dopamine.Since taking Levadopa/Carpadopa I have not relapsed and have been in the best mood.
did you add all this stuff in groups? You should never add or delete more than one supplement at a time and document how you felt when you stopped or started it and how you feel after you stop it. You take a lot of stuff that you should be getting by eating a well balanced diet with plenty of vegetables and fruits (eat your colors).
Thanks. I am not sure about adding and subtracting one at a time, as sometimes combinations may be effective. Maybe. I am drifting towards carnivore, or carnivore plus greens.
I really appreciate your research! I obsess way more than my HWP, mostly because he still likes the mindset ignorance is bliss. Not really, but his Neuro MD said not to dwell on what might happen. His symptoms are worse when he is under stress, so worry about the future of PD is stress.
Some supplements hopefully delay the progression of PD, allieviate symptoms. I tend towards the supplements that are beneficial to other health issues too like berberine, turmeric, omega 3s. Keep posting, I appreciate it!
Have you tried 5HTP for depression? saffron does help mildly with mood as do Omega 3s. Every time my children had a concussion they put them on a high dose of Omega 3s. I believe the military has study Omega 3s and depression on soldiers.
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