Posts - British Liver Trust | HealthUnlocked

British Liver Trust

37,293 members • 18,292 posts

All posts for August 2019

4 months post transplant.

Hello to everyone, I am as always awoken each day with a grateful heart. Truly, I feel so blessed to have been so lucky to have my transplant. I have faced...

Hello to everyone, I am as always awoken each day with a grateful heart. Truly...

Hidden

•5 years ago

27 Replies

I can’t help of crying

Hi all, I’m an Egyptian male (26 yo) I was slightly drinker last two yrs. Once upon the time I was drinking whiskey (Jim beam) and then felt fatigue for many...

Hi all, I’m an Egyptian male (26 yo) I was slightly drinker last two yrs. Once u...

MnM007

•5 years ago

29 Replies

The real Silent Heroes

I have mentioned on here before, about those very special people who care and look after us during our liver disease journey. Those wonderful people who put...

I have mentioned on here before, about those very special people who care and lo...

Hidden

•5 years ago

22 Replies

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Just more great news 😁

I just wanted to share with everyone and the world 😂😂😂🌍🌎🌍🌎 Had a hospital appointment yesterday at my local hospital, haematology again lol Anyway I...

I just wanted to share with everyone and the world 😂😂😂🌍🌎🌍🌎 Had a hospital...

jojokarak

•5 years ago

54 Replies

Pre and post transplant support group

Regarding my previous post I should add that this group will have no affiliation etc with The British Liver Trust. I did speak to them some time ago and...

Regarding my previous post I should add that this group will have no affiliation...

Poobear69

•5 years ago

5 Replies

Post transplant support group

I've recently been left a little money in a legacy and have decided to set up a pre and post transplant support group. The group will be based in London,...

I've recently been left a little money in a legacy and have decided to set up a ...

Poobear69

•5 years ago

2 Replies

Slowing fibrosis/cirrhosis with Coffee

While we all hope and wait for a cure, looks like we can all benefit from drinking 6 to 8 cups of coffee a day. I was told this by my liver specialist over a...

While we all hope and wait for a cure, looks like we can all benefit from drinki...

Hidden

•5 years ago

36 Replies

Seizure after transplant

Hi all Jason aft 7 days in wAs doing amazing. They put a pip line in his arm and within an hour he had a seizure had to call crash team. He had a small hole...

Hi all Jason aft 7 days in wAs doing amazing. They put a pip line in his arm an...

Whitelock

•5 years ago

5 Replies

Still in the dark

Hi everyone just an update and hopefully a little bit of support on this rollercoaster ride. Last month finally after 14 years I was diagnosed with non...

Hi everyone just an update and hopefully a little bit of support on this rollerc...

Millie2014

•5 years ago

4 Replies

What do you guys use for medium pain relief?

Before all of this and what was probably a contributing factor I just took the usual medium prescribed pain killers (codeine 30/500) to manage injuries...

Before all of this and what was probably a contributing factor I just took the u...

Xenom0rph

•5 years ago

12 Replies

Shoulder pain

Hi all Now coming up 15months post T/X and been doing pretty well but just recently stomach always seems on the go as in uncomfortable,grumbling and generally...

Hi all Now coming up 15months post T/X and been doing pretty well but just recen...

1football

•5 years ago

2 Replies

Liver cirrhosis and nutrition

I have read that date seeds supports liver health. Has somebody tried it? Where did you buy the product?

I have read that date seeds supports liver health. Has somebody tried it? Where ...

viajar

•5 years ago

8 Replies

Blood tests after new med!!

A week ago consultant put me on a new tablet ‘Myfortic’. Before taking the new medication AST was 37 now risen to 72 bilirubin was 9 and risen to 40 now. I’m...

A week ago consultant put me on a new tablet ‘Myfortic’. Before taking the new m...

Hope1011

•5 years ago

12 Replies

Liver regeneration

We know that if you cut a chunk of the liver away that it will grow back, ok, so is there any reason why a cirrhotic liver can't have a portion removed and...

We know that if you cut a chunk of the liver away that it will grow back, ok, so...

Hidden

•5 years ago

45 Replies

In shock report

Just to let you know the transplant went ahead sunday and all going well so far. What an amazing team at Addenbrookes, we are so grateful to them all and the...

Just to let you know the transplant went ahead sunday and all going well so far....

melwill1763

•5 years ago

18 Replies

Something or Nothing?

Hello I’m seeking your view of whether I should see my GP..... I have no back or side pain, no jaundice or weight loss but have had a few ‘pale stools’....

Hello I’m seeking your view of whether I should see my GP..... I have no back or...

Rostom

•5 years ago

9 Replies

Still in pain

After spending a few days in hospital due to pain last week and some nice strong pain meds, I am being told my ALT’s are coming down despite my side being very...

After spending a few days in hospital due to pain last week and some nice strong...

Steven_

•5 years ago

1 Reply

Fibromyalgia after tx ??

So I’ve been diagnosed with fibromyalgia today as I’m in excruciating pain especially my legs and it has been getting worse the past few weeks🙈 I’m 3 months...

So I’ve been diagnosed with fibromyalgia today as I’m in excruciating pain espec...

Melwoods

•5 years ago

10 Replies

Curious

Hello all, I hope you're all well as can be x I am not far off 3 years post but last few months I have been suffering with a pain every now and again what can...

Hello all, I hope you're all well as can be x I am not far off 3 years post but...

jojokarak

•5 years ago

32 Replies

155 alt level and sudden stiff ankles

Hello. I don’t know if this is completely unrelated but I posted two months ago about the sudden increase in alt level. It went up to 155. I’m at the...

Hello. I don’t know if this is completely unrelated but I posted two months ago ...

Iamtaylor1983

•5 years ago

13 Replies

New – Liver Patient Survey from the British Liver Trust

The British Liver Trust is undertaking a patient survey. The results will enable us to better understand the experience of liver patients so that we can...

The British Liver Trust is undertaking a patient survey. The results will enable...

Hidden

•5 years ago

Be the first to reply

Yes good evening i just got diagnosed with cirrhosis of the liver in January how do I know what stage I am in ?

I sleep but have energy I have an appetite my sex drive is fine and I don’t have swelling in my abdominal area I have aches sometimes in liver area circling...

I sleep but have energy I have an appetite my sex drive is fine and I don’t have...

Ivanechimpo

•5 years ago

16 Replies

First post

Hi all, this is my first post. Thank you admin for excepting my request. A little about myself. I’ve just turned 50. 5 years ago I had key hole surgery to...

Hi all, this is my first post. Thank you admin for excepting my request. A litt...

Hope1011

•5 years ago

13 Replies

Pbc elevated Alp

Hi everybody, i am new here and at the moment am panicking). After 4 weeks of taking urso my blood work improved. Alt from 100 to 40, ast from 70 to 30, ggt...

Hi everybody, i am new here and at the moment am panicking). After 4 weeks of ...

Belgium22

•5 years ago

14 Replies

Feeling happy

Hi all, I would just like to post my good news. Just had my latest blood results and I am so happy... my alt that was originally over 1,000 yes that number is...

Hi all, I would just like to post my good news. Just had my latest blood results...

Hidden

•5 years ago

9 Replies

In shock, got the call 5 days after going on list.

My partner went on the list on monday and got the call last night. Currently in Addenbrookes waiting to see if it's a viable liver. It's in the machine being...

My partner went on the list on monday and got the call last night. Currently in ...

melwill1763

•5 years ago

30 Replies

General question about fruit

Hi, I have liver fibrosis and was told to lose weight, 1+ year on and at target weight for 6 mths now...question is how much fruit is to much, I trend to rely...

Hi, I have liver fibrosis and was told to lose weight, 1+ year on and at target ...

Yaz27

•5 years ago

14 Replies

Liver transplant

Called Tuesday 3rd time lucky it was a match and liver healthy. Operated Wednesday. Hubby doing great. I am so thankful the op went well. Might be some...

Called Tuesday 3rd time lucky it was a match and liver healthy. Operated Wednes...

Whitelock

•5 years ago

36 Replies

Meeting

You may or may not be aware but i have had a pretty rough 2018 of it. 46 years old, collapsed Dec2017 and then BAM checked over by docs, loads of wires...

You may or may not be aware but i have had a pretty rough 2018 of it. 46 year...

Chris-harris

•5 years ago

2 Replies

Local support groups

Does anyone attend a local support group for their condition or set one up. I’ve looked for local support group for hep b and liver cirrhosis but there isn’t...

Does anyone attend a local support group for their condition or set one up. I’ve...

Steven_

•5 years ago

4 Replies

Posts - British Liver Trust | HealthUnlocked

British Liver Trust

All posts for August 2019

4 months post transplant.

I can’t help of crying

The real Silent Heroes

Just more great news 😁

Pre and post transplant support group

Post transplant support group

Slowing fibrosis/cirrhosis with Coffee

Seizure after transplant

Still in the dark

What do you guys use for medium pain relief?

Shoulder pain

Liver cirrhosis and nutrition

Blood tests after new med!!

Liver regeneration

In shock report

Something or Nothing?

Still in pain

Fibromyalgia after tx ??

Curious

155 alt level and sudden stiff ankles

New – Liver Patient Survey from the British Liver Trust

Yes good evening i just got diagnosed with cirrhosis of the liver in January how do I know what stage I am in ?

First post

Pbc elevated Alp

Feeling happy

In shock, got the call 5 days after going on list.

General question about fruit

Liver transplant

Meeting

Local support groups

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