Posts - British Liver Trust | HealthUnlocked

British Liver Trust

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All posts for May 2022

Going back to work

Hi I am newly diagnosed with decompsated cirrhosis, I feel fatigued most days and in pain the odd day I do feel a bit like my old self I get things done ie...

Hi I am newly diagnosed with decompsated cirrhosis, I feel fatigued most days an...

Daisy20-

•2 years ago

9 Replies

Worried about alcohol damage

Hi, I was diagnosed in 2018 with fatty liver via ultrasound and raised enzymes. At the time I was drinking quite a bit, I did try to cut down a lot but...

Hi, I was diagnosed in 2018 with fatty liver via ultrasound and raised enzymes. ...

Hayleypop

•2 years ago

7 Replies

Heptic encalapthy

I had a heptic encalapthy diagnosed in 2020 and although I'm on rifaxmin and have non alcoholic liver disease , with this condition I couldn't speak or walk or...

I had a heptic encalapthy diagnosed in 2020 and although I'm on rifaxmin and hav...

Tonisha123-mm

•2 years ago

2 Replies

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Ciprofloxacin Horror!

I don’t know where to start. I had been taking this drug for over a year until two days ago when I stopped it myself. I was prescribed it last April while in...

I don’t know where to start. I had been taking this drug for over a year until t...

Teddy2022

•2 years ago

16 Replies

Refaxamin

Does anyone know how long it is safe to take refaxamin for, I have been taking it for two years now, I haven’t had any HE in that time, I was diagnosed with...

Does anyone know how long it is safe to take refaxamin for, I have been taking i...

Johnsville1

•2 years ago

17 Replies

Refaxamin

I have liver cirrhosis and was considered twice for a transplant, I haven’t had any alcohol for 2 years now, but I am taking refaxamin and lactalose to stop HE...

I have liver cirrhosis and was considered twice for a transplant, I haven’t had ...

Johnsville1

•2 years ago

1 Reply

6 month appointments

Good morning all! Just wondering if anyone is having to wait longer to hear about their six monthlyappointments. My ‘holy trinity’ of appointments last year...

Good morning all! Just wondering if anyone is having to wait longer to hear abou...

WelshieM

•2 years ago

7 Replies

A bit of good news

Morning. We'll after a few weeks of coming to terms with Stage 4 Fibrosis (compensated) at last a bit of good news as far as my T2 Diabetes is concerned. I...

Morning. We'll after a few weeks of coming to terms with Stage 4 Fibrosis (compe...

Robert1220

•2 years ago

7 Replies

Right Shoulder and arm pain, urinating a lot (darker than usual) and awaiting results

Hi all, Hello! Firstly I realise I created a username which is a schoolboy nickname (sorry for the silly name) Secondly, apologies for the "War and Peace"...

Hi all, Hello! Firstly I realise I created a username which is a schoolboy nick...

bubblepricker

•2 years ago

8 Replies

Fibroscan results

I wanted to share my recent scan results to spur on anyone with severe fibrosis/early cirrhosis. From a diagnosis of NAFLD F3-4 in November 2020 following an...

I wanted to share my recent scan results to spur on anyone with severe fibrosis/...

Muse12

•2 years ago

8 Replies

Can liver regenerate after high fibroscan score

Hi all, my relative was hospitalised and diagnosed with alcoholic liver disease late 2020, fibroscan of 74.2 and moderate ascites. We didn't they think she...

Hi all, my relative was hospitalised and diagnosed with alcoholic liver disease ...

daisydo1

•3 years ago

8 Replies

Jaundice

Just wondering if jaundice can happen slowly over time, as it builds up. Often hear stories of folks suddenly waking up yellow with an acute attack, but my...

Just wondering if jaundice can happen slowly over time, as it builds up. Often h...

Ewife

•3 years ago

5 Replies

New research aids understanding of how COVID-19 can damage organs

I have over the past few years now been involved in a project with a doctor friend down at the Royal Free in London. This man is such a busy guy and has so...

I have over the past few years now been involved in a project with a doctor frie...

Richard-Allen

•3 years ago

2 Replies

From what I've been told by medical professions, they either make my liver disease seem very serious or no big deal. Anyone else?

My GP incorrectly diagnosed me with cirrhosis. I went to see a liver specialist who told me I had non-alcoholic fatty liver disease, not cirrhosis. I'm angry...

My GP incorrectly diagnosed me with cirrhosis. I went to see a liver specialist ...

Hidden

•3 years ago

13 Replies

Liver Fibrosis F3

Hi new on here. Had a positive chat to the British Liver Trust for my F3 Fibrosis. I was told they caught it before it turned to Cirrhosis and that it can...

Hi new on here. Had a positive chat to the British Liver Trust for my F3 Fibros...

drittz78

•3 years ago

5 Replies

Gastroscopy to check for varices

Right, I'm at the next step in my Alcohol Related Liver Disease Journey. After being advised in February that I may have Cirrhosis and portal hypertension I...

Right, I'm at the next step in my Alcohol Related Liver Disease Journey. After b...

eileenet49

•3 years ago

24 Replies

How do I post a picture

I think my eyes are turning yellow and can't take a picture. Help.

brutalsepar

•3 years ago

4 Replies

Transport to transplant & being accompanied

Hi all My husband is waiting for his appointment to be assessed for transplant. I have read a lot of really helpful things on here but one thing I am still...

Hi all My husband is waiting for his appointment to be assessed for transplant....

RustyTractor

•3 years ago

23 Replies

ELF's

Any thoughts on ELF blood tests v Fibroscan, i want to see if 2 years of good diet, weight loss, no drink etc has made a difference, everytime I get a...

Any thoughts on ELF blood tests v Fibroscan, i want to see if 2 years of good di...

Ruggerhead

•3 years ago

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Frustration with appointments

The QE hospital at Birmingham asked for a follow up liver cancer scan this was arranged by my cirrhosis consultant, I had the scan on 1st April saw my...

The QE hospital at Birmingham asked for a follow up liver cancer scan this was a...

oap74

•3 years ago

1 Reply

Risky Sex !

Bear with me while I add a little context. As a gay teenager in the 80's, I grew up with the horror of the AIDS epidemic. Safe sex was and remains a big...

Bear with me while I add a little context. As a gay teenager in the 80's, I gre...

billyde

•3 years ago

4 Replies

problem

Hi I was wondering if anyone has had a liver transplant and have problems with there heart .

Hi I was wondering if anyone has had a liver transplant and have problems with t...

Petrina_gmfc

•3 years ago

25 Replies

Association Between Anxiety and Depression and Nonalcoholic Fatty Liver Disease

As some of you know, I often like to share information about liver disease. I have found that the more I learn and understand, the easier it is to accept and...

As some of you know, I often like to share information about liver disease. I ha...

Richard-Allen

•3 years ago

7 Replies

Methotrexate and A1AD caused cirrhosis

Hello! I’ve had rheumatoid arthritis for 27 years (since I was 25) and the medication I took was methotrexate. Four years ago I had a fatty liver and was told...

Hello! I’ve had rheumatoid arthritis for 27 years (since I was 25) and the medic...

Fluffysian

•3 years ago

9 Replies

Ascites

Hi me again :( So Ascites, my hubby has now probably been drained at least 5 times since his proper diagnoses of Alcoholic Cirrhosis back in Jan/Feb & near...

Hi me again :( So Ascites, my hubby has now probably been drained at least 5 tim...

Blossom0410

•3 years ago

11 Replies

LARGE Cyst, left lobe

Hi, Has anyone had a large liver cyst, 10cm lenth, which is located more on the left upper abdomen quadrant rather than the right ?? I have been told it's...

Hi, Has anyone had a large liver cyst, 10cm lenth, which is located more on the ...

VillagePeople

•3 years ago

4 Replies

Getting the call

As some know yesterday was my hubby's first appointment at Queen Elizabeth when we got back home our heads started to work overtime racing ahead to when a...

As some know yesterday was my hubby's first appointment at Queen Elizabeth when...

Lippy42

•3 years ago

30 Replies

I’ve recently been diagnosed with PBC. I have booked two holidays one to USA and one I. Europe. Any recommendations for travel insurance ?

travel insurance -

Thebossspringsteen

•3 years ago

3 Replies

How long to see a gastroenterologist

Anyone on the waiting to see a gastroenterologist (under nhs). I know it can take up to 18 weeks but my anxiety is through the roof. I have had abdominal pains...

Anyone on the waiting to see a gastroenterologist (under nhs). I know it can tak...

Tiptoed07

•3 years ago

5 Replies

decompensated cirrhosis - aching

Partner diagnosed 22.12.22 decompensated alcohol related cirrhosis. Stopped drinking then. Bloods slowly improving until a bit of a crisis 3 weeks ago when he...

Partner diagnosed 22.12.22 decompensated alcohol related cirrhosis. Stopped drin...

Rshc

•3 years ago

7 Replies

Posts - British Liver Trust | HealthUnlocked

British Liver Trust

All posts for May 2022

Going back to work

Worried about alcohol damage

Heptic encalapthy

Ciprofloxacin Horror!

Refaxamin

Refaxamin

6 month appointments

A bit of good news

Right Shoulder and arm pain, urinating a lot (darker than usual) and awaiting results

Fibroscan results

Can liver regenerate after high fibroscan score

Jaundice

New research aids understanding of how COVID-19 can damage organs

From what I've been told by medical professions, they either make my liver disease seem very serious or no big deal. Anyone else?

Liver Fibrosis F3

Gastroscopy to check for varices

How do I post a picture

Transport to transplant & being accompanied

ELF's

Frustration with appointments

Risky Sex !

problem

Association Between Anxiety and Depression and Nonalcoholic Fatty Liver Disease

Methotrexate and A1AD caused cirrhosis

Ascites

LARGE Cyst, left lobe

Getting the call

I’ve recently been diagnosed with PBC. I have booked two holidays one to USA and one I. Europe. Any recommendations for travel insurance ?

How long to see a gastroenterologist

decompensated cirrhosis - aching

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