Local support groups

[Steven_]

Does anyone attend a local support group for their condition or set one up. I’ve looked for local support group for hep b and liver cirrhosis but there isn’t anything in my local area. When I was first diagnosed I see a councillor but she didn’t know anything on my condition as that’s I was more anxious about not knowing what’s coming. I want to give something back or help other people but no idea where to start or if anyone would even be interested. So wondered if anyone else has done the same or are the online support groups easier?

[AyrshireK]

Where in the country are you Steven? There are lots of support groups out there - either for generic liver support, pre & post transplant and for specific liver conditions. The British Liver Trust has a list on their page at:- britishlivertrust.org.uk/li... The Hep B trust may run their own events too:- hepbpositive.org.uk/

I didn't think my hubby would be a support group type of person but the BLT recently set one up in our nearest town and we went along, hubby got loads out of it even though for the first meeting there was only one other patient present. He enjoyed the chat and has been asking me when the next one is as he wants to go back.

Wishing you the best of luck.

Katie

[Steven_ in reply to AyrshireK]

Thanks Katie. I’m Bedfordshire based so the closest is Addenbrookes but that’s mainly for transplant. I do speak to Paul at Hep Foundation. I have also emailed the liver trust about doing something local but they haven’t responded yet. Not sure what I can give back other than my experience but have found it hard not knowing anyone else in my situation. My brother is also positive but never had any issues so doesn’t ever want to talk about it. Just wanted to see who or what’s out there

[Hidden in reply to Steven_]

Good morning Steven,

Please would you let me know whether you have had a response to your email. If not, would you mind sending it again to the Helpline email address:

[e-mail]

regards

[Steven_ in reply to Hidden]

I haven’t but will resend shortly