Hi there
I have been reading this forum after the typical DR Google symptoms and decided to post my recent experiences with you and around my symptoms that I have been having as of late with my head that has caused me to have an MRI.
Male - 33 years old with a fiancée and two beautiful daughters ages 4/2.
I would say that I have really become a worrier over the last 4 years, I over think every situation and try to evaluate every possible outcome/scenario that could arise and usually look at the worst possible outcome.
I bought my first house back in 2014, This was also the time that I had my first real think about my own mortality and thinking once your gone, that’s it and how you revert to absolute nothing after you die. Trying to comprehend that inevitability sent me into a whirlwind of depressed thoughts for a few months. My eldest daughter was born a few months later and I was the happiest I could ever be and those thoughts subsided.
Early 2018 I started to get pains in my neck - on both sides that seemed to make my neck very stiff; I put this down to bad posture/bad pillows and the fact I was not exercising ( new job and 2 very young daughters meant I made no spare time for myself). I work in IT and I was often working at home and working around 12 hours in a 24 hour day - new and demanding project which I thoroughly enjoyed.
I also noticed that sometimes if i stood up and really stretched myself - I would get a sudden onset of dizzy spells. These lasted no longer than a minute; whilst the neck pains remained (not bothering me to go and see anyone about it).
I have a hiatal hernia and was also diagnosed with Gerd in 2014 which remained under control with Omeprazole until January this year (my weight had rocketed too).
I then had a huge flare up with my Gerd and started assuming the worst, Dr Google is not my friend and i went to see my doctor who recommend that I go have my second endoscopy. I became quite upset with what was going on, fearing the worst all the time and not concentrating very well( I hated my first endoscopy and was not looking forward to the second).
I was a bit of a wreck on the day - quite anxious and nervous at what they might find. Nothing sinister was found but reconfirmation of Gerd needed to be controlled and strict diet to reduce weight to help ease the pressure on my hernia.
I had not mentioned to the Gastroenteorlogist initially that I had bowel issues (going quite a few times a day), lower abdomen pain and a few bouts of rectal bleeding. So He recommended I have a colonoscopy too to have a look, yet again I was in full Dr Google mode and assumed the worst again. This was scheduled for the beginning of March.
In between these procedures, my other half went on holiday and I became very stressed whilst having to juggle my symptoms, new diet and 2 children whilst working.
In preparation for a colonoscopy - you have to go on a low residue diet (which is a horrible bland no fibre diet) for several days before you take the laxative solution so you are as clear as possible inside. (The prep is worse than the actual procedure)
On the second day, I woke up at 2am shivering and feeling very lightheaded, legs like jelly and in a bit of pain and feeling very sick. I did not feel right - I ended up going straight to the walk-in centre and it took me several hours to feel somewhat back to normal. I put this down to the low residue diet, feeling like crap and so worried about the colonoscopy.
All came back clear and was prescribed anti-spasmodic for the pain. A lot of my worry went away and relief came over me
A few days after this, I starting getting severe dizzy spells - these last all day for around a week and went away, then a week or so later my neck pain started getting very noticeable and the dizziness came back - this is not he room spinning dizziness, but feeling generally off balance with a constant buzzing sound in the middle of my head (like a constant rush of blood flowing through my brain).
This I have had for the last few months, getting worse and worse as the weeks have gone on. I have never had headaches, these are now a constant occurrence along with not being able to concentrate on simple tasks for a long period of time.
Over the last few weeks I have constant pressure at the top of my head, I have had pressure in my eyes, numbness on the right side of my face, left eye twitches and developed pain right at the back of my head on both side and it feels like pressure is just growing and growing and the pain becomes unbearable at times.
I have become quite fatigued since January, often falling asleep very early in the evening and the pain in my neck have become even worse.
Had an eye test recently, prescribed visual display prescription, have been to see the GP several times, 2-3 have told me I am anxious and it will pass, 1 gave me a sinus spray (no help over the few months I used it) and finally referred me to a neurologist.
After being referred, I was driving home from work one day (partner was away again) and i started getting severe pains in my chest and left arm. I felt like I was about to pass out, I was hot and sweaty - managed to stay conscious and get the car to safety, get the girls home and looked after by the in laws and off to AE I went. 7 hours later it had been ruled out that i had not had a heart attack (bloods and X-ray).
I have had numerous blood tests since being referred - all coming back normal.
I went to see the neurologist and told him all of the above, except the symptoms of the last few weeks (headaches/pain in head etc.) as these happened afterwards - I saw him approximately 2-3 weeks ago and my symptoms have just been getting worse and worse.
I broke down in the consultation - he thinks I just have anxiety but has asked for an MRI for just as reassurance (I’m privately covered). I had my MRI last week.
The MRI was not a pleasant experience, but I got very worried at the end when the radiologist told I was having the final set of scans that would last a final 5 minutes. After that, I was told they needed to take some more scans (not what I wanted to hear - why, what have they found? Of course worst case is a Tumour of which I had been googling constantly). As I came out, he asked if I had an follow up appointment to discuss the results has been scheduled was scheduled - I had not at this point, so i am becoming increasingly concerned and told me the result would be in 3 working days. I asked - “why, did you find something and why did he need another scan?” He came up with some reason about reshuffling the scans and had not seen anything (like he had not looked at them yet). 3 days later, I still have not heard anything, my symptoms are getting even worse - reading Google is not helping me at all. I have been quite scared around my driving, even walking is becoming difficult and my head does not feel right at all.
Constant dizziness, constant head pressure (at top and back), dry right eye and pain in my neck. Headaches come and go every hour, and medication does not even touch it. I have never felt like this, my head does not feel right and something is wrong.
I have been miss pronouncing/stuttering words and getting confused/forgetting events that occurred seconds ago.
My follow up is not until the 7th June - I have asked to move it forward, but I can’t as the consultant is not in the hospital until then, he has not even looked at my MRI! This I found out after phoning the secretary to find out if I can shift my appointment as my symptoms are getting worse.
I know my symptoms could be anxiety - I accept that, but my symptoms are also getting worse and worse by the day - they are so debilitating and my mind keep wandering which I can not control as “surely these symptoms cannot just be anxiety”.
I am scared that I am going to end up in hospital in the next few days, from either having a seizure or suffering with pain so severe that I just have to go to hospital. I will need another MRI (as I cannot get the results) and that a Tumour will be found. I am expecting this as a diagnosis
I will not get to see my daughters grow up, I will not get to have my wedding. My partner is getting worried too - my symptoms are getting a lot worse.
I have read that Tumour symptoms can easily be masked by other problems, I am scared - I have to wait for the results of the MRI, what else can I do?