Restless legs and pramipexole

[moggie8]

Hi I've been on pramipexole for 15 yrs for restless legs. I've googled this medication as my legs were getting worse. Found out this can happen so wanted to come off it. Have a cousin in America he was on it to he said it hurt him badly. Has anyone dealt with this drug. Mirapex I think it's called over in the states

[warbaby42]

Been on pramipexole for quite a while. 0.008 mgs, Have upped the dosage as my RSL has worsened. Used to start in the evening. now it starts in the afternoon. Do you know what is the safest dose ?

[moggie8 in reply to warbaby42]

Hi I'm on .125 that's the starting dose. My legs got worse but never upped it.How long have you been on it. Me14 yrs.I did some research as I started getting bad restless legs cramping and this horrible stiffness. When I researched it it said it will make your legs worse after awhile. But it says it affects body movement which I now have and the stiffness so cannot do a lot. I'm going off it it's suppose to have a black label on it warning if the damage it can do. Because I was up all night Friday night with my restless legs I researched it and was shocked. My cousin in the USA was on it for ten yrs and told me it was dangerous at the time I couldn't understand why. Now I know with the stiffness. Please Google it and find out yourself. My cousin is going to get back to me to tell me what it did to him. He said it hurt him badly. But I will keep u informed.It also causes augmentation which means the restless feelings spread to other parts of the body. I haven't got that. I just hope I can win off, and the stiffness goes, as I said I can't do a lot because the pain the stiffness causes. I will try and find where I got about how dangerous it is and let you know.I live in Australia it's called mirapex in USA

[2islandboy in reply to moggie8]

Hi, Pramipexole (Mirapex), Ropinirole (Requip), Rotigotine (Neupro), and Levodopa (Larodopa) are Dopamine Agonists and WERE standard treatment for RLS. No more prescribed by informed prescribers. I was on Mirapex for 20+ years. It worked until I had to keep increasing the dose and then I AUGMENTED and the Mirapex actually made my RLS MUCH WORSE. This is common for most users of DA's. It took me months to SLOWLY taper off the Mirapex. Those of us who were on DA's consider them to be POISON. We find that quitting DAs is worse than stopping Heroin. Getting off is very complicated. PLEASE search "restless legs" on this website. There is a FANTASTIC blog dealing with RLS.

healthunlocked.com/rlsuk

You will learn the dangers of DA's and how to save yourself from the insanity of augmentation. The blog will tell you what the current treatment options are and specific doctors who are up on proper RLS treatment. Most doctors are ignorant about RLS treatment!!! There are excellent doctors in Australia and the blog members will give you suggestions. Save yourself from the DA nightmare that awaits you! Also, there are many psych drugs that will make RLS go crazy. Welbutrin and Trazadone are safe for RLS. Join the blog: healthunlocked.com/rlsuk

[moggie8 in reply to 2islandboy]

Hi I'm not sure how you post I've joined

[2islandboy]

Good! Joining saved my life. To post, click on your profile. At the bottom of the page, you should see a post button. Longtime members will welcome you and as you read through daily posts, you will learn so much about RLS and how to get off Mirapex and still manage anxiety and depression. There are many RLS doctors in OZ. I used to live in Wollongong NSW.

[moggie8 in reply to 2islandboy]

Thanks I did a post can you see if it's there

[moggie8 in reply to 2islandboy]

Is the anxiety because of our thoughts about it all. I'm a anxiety sufferer anyhow . I got to be careful what I take as a lot of meds push my salt down. I gather your of the Sifrol has your restless legs eased

[2islandboy]

Tapering off of Sifrol was the first step for me. I also went under the care of an RLS expert in Boston. Because I have anxiety and depression, I learned that some of the meds that I was taking made my RL worse. I think that the lack of sleep makes our anxiety and depression much worse. I also had to switch BP meds. You will learn that Gabapentin is the proper medication for RL. I stopped all salt intake because of my high BP.

[moggie8 in reply to 2islandboy]

Did u see my post by any chance ? What dose were you on I'm on.125 plus sometimes extra half .

[2islandboy in reply to moggie8]

I was taking much more. That is the problem with Pramipexole. I kept needing more and more. Then I was augmenting and my life fell apart. I discovered this blog by accident and that saved me!

[moggie8 in reply to 2islandboy]

Ok ok u fine now did the restless legs eased once u came off it?? I don't know if I posted or not not good with technoly

[2islandboy]

Yes, things got better, but only because I researched a doctor who specialized in RLS. In your posts, state the town that you live in and ask for a doctor who can help you. Any meds that you are now taking may be making your RL worse. Tell the blog the meds that you take and ask if they are problem meds.

[moggie8 in reply to 2islandboy]

Ok will do So u don't take anything now.? Also would like to try natural remedies once off it.So I gather once your past the bulk restless legs calm? Trying to just put my head around and understand the whole thing

[2islandboy in reply to moggie8]

RL continues after pramipexol. I take Gabapentin and have had iron infusions. I'm also trying CBD THC. I see my neurologist every few months. The RL don't have a cure. Some people need to take low dose opiates. Have the Blog postings emailed to you daily. Ask the blog about a good doctor near you.

[moggie8 in reply to 2islandboy]

I will I put I. Where I live but reading everything here I gather the restless legs aren't as bad coming off pramipexole. Otherwise why we coming off and going on worse drug

[2islandboy in reply to moggie8]

Because Pramipexole and other DAs destroy our Dopamine Receptors and send our brains down a nasty rabbit hole. Gabapentin is not a horrible drug. It's your choice. You are lucky that you are on a low dose.

[moggie8 in reply to 2islandboy]

Thanks for your reply. Not sure if it makes a lot of difference being on low dose. As long as the restless legs get a bit better after I discontinue. I used to manage it myself then doctor suggested Sifrol. I didn't know better.As for the rabbit hole I have a great support his name is Chris from vacate fear he preaches Claire weeks method. I've been having therapy with him for years his very knowledgeable and has overcome the worse anxiety and panic.