Thought I’d write a quick update of everything that’s going on with me
I feel so depressed I feel like I’m getting worse every single day. I’ve been going though this for 4 months now
So quick recap of what’s going on: I’ve got inflamed red tonsils with pus on the left side (my GP said they are a little swollen but not rlly bad they mostly look red. She also said they look very sore but I don’t feel any pain at all) I’ve also got swelling on both sides of my neck and at the front directly in the middle leading in a straight line from under my jaw to the bottom of my neck. There feels like a big hard ball lump under my jaw in the middle (it feels quite big like maybe golf ball sized) and those are all my main symptoms but I’ve had a few on and off symptoms along the way like: fatigue, muscle pain and weekness, joint pain and weekness, a rash that look like little red acne looking bumps that don’t rlly pop but they itch and they appear on my thighs, chest and arms (mostly upper arms but appear on the bottoms of my arms too occasionally), thin hair that’s falling out more frequently, faster heartbeat and high heart rate (that could be just from anxiety idk but it’s gotten worse recently), inside of cheeks are swollen inside my mouth, tightness on outside of face over cheeks, I haven’t quite got a fever but my GP said that it’s almost a fever and my cheeks look quite red and feel warm, my eyes hurt each time I cry (like they literally sting it’s so painful sometimes I feel like I need to cry and let out my emotions cause of my depression and anxiety but I feel like I can’t cry anymore bc of the pain), swelling behind knees, blocked ears.
And symptoms that have just started today: my tongue feels like it’s touching the uvula (little dangly thing at the back of throat) and my tongue has little red dots on them now. Also my tongue is looking kinda discoloured like idk it’s got a weird coating on top of it now.
I’ve already been on 3 courses of antibiotics. I just finished my third course about 2 and a half weeks ago the antibiotics work about halfway through the packet and my symptoms feel a lot better for a few weeks after i finish the dosage but then it slowly starts to come back again. I’ve only started feeling worse again in the last 2 days. Like it’s so strange last week I was starting to feel ok and I could do things like leave the house but now I’m getting the symptoms again and I feel so weak.
These are all the tests I’ve had done: I’ve already had a blood test which checked my blood cell counts and iron levels and stuff. And my red blood cells are fine but my white cells are slightly high which means I have an infection in my body and I was also told that I’m slightly anaemic.
Then I had a swab of the throat done to check for strep bacteria and a breath test to check for helicobacter bacteria in the gut. Both came back negative.
Had another blood test which checked basically everything like: cells, hormones, thyroid, kidneys, blood sugar levels and a few other things. The results were explained to me over the phone but I didn’t understand that much. so a friend who’s good with medical stuff narrowed it down for me so here’s a quick version of it: red blood cells fine, white are slightly high I think my friend said 0.4 above 11, MCHC is low which means I’m anaemic, CRP is quite highly which could mean I have an inflammation, fasting glucose is fine, thyroid is fine, GGT is slightly raised, testosterone levels were high (GP reckons it’s because I just went off the pill I got checked for pcos and I don’t have it), Epstein barr virus tests were negative, prolactin within normal range, I’m insulin resistant.
Ok so that’s all of those results it’s a lot I know
I’ve been checked for wisdom teeth I don’t have any coming in yet and my teeth looked fine
I had a ultrasound done of my thyroid and ovaries (they did ovaries bc my testosterone was high so they thought I had pcos) and my thyroid is normal size and my ovaries were fine too.
And my most recent test was a CT scan done of the head and neck. My lymph nodes are fine (which was very surprising to me I thought that’s what was causing the swelling) and my salivary glands were fine with no blockages or stones or anything.
I also went to a ENT (she’s the one who referred me for the CT scan) and she said she suggests just getting my tonsils removed. Which I’m not exactly sure about since we don’t know for sure if it’s tonsillitis since I have no strep bacteria in my mouth.
I’m going to get another blood test tomorrow to check my cell count again since I’ve stopped the antibiotics. But I already know that it’s going to say that I still have the infection in my system since I can feel it coming back the last 2 days. If it is still there I’m going back to the ent to get my sinuses checked (idk if they checked it on the CT scan or not since they didn’t mention anything about the sinuses and if it’s not that then I’m going to ask them if it could be a mild allergy since I’ve noticed it gets worse after I have dairy. But after I suggest those to my GP idk what else to test for since I’ve run out of ideas on what it could be. I’ll probably just have to get my tonsils out in that case and it could all be for nothing if it doesn’t improve it.
Idk what to do anymore I feel like this has ruined my life and it’s made me so depressed I’m only 17 and all this has made me feel so unhealthy and because I haven’t been moving around much cause I’m sick I’ve put on so much weight especially in the stomach area and that’s made my depression even worse. I wanted to go back to school next year but I’m worried I won’t be able to if I’m still like this.
I’m so scared I’m worried because it’s been in my body for 4 months that it’s just going to get worse and worse and slowly start to destroy my body.
Has anyone been through anything with similar symptoms and share your experience it might help me get peace of mind.
Thanks if you read it all and I appreciate your replies!
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