Posts - Advanced Prostate Cancer | HealthUnlocked

Advanced Prostate Cancer

22,077 members • 27,704 posts

All posts for October 2023

QoL -- Matt's Morning Walk

When we were on holiday in Devon (I undertook a pilgrimage to see Mary Anning's statue in Lyme Regis and stayed in Sidmouth), Jacqui bought be a set of wide...

When we were on holiday in Devon (I undertook a pilgrimage to see Mary Anning's ...

BrentW

•1 year ago

15 Replies

Need recommendation for oncologist

Hi to everyone in this amazing board, This is my first post here, and I hope to get some help from you guys. I need recommendations for the medical...

Hi to everyone in this amazing board, This is my first post here, and I hope to...

yuro78

•1 year ago

8 Replies

Would I be on thin ice if I tried adaptive ADT this soon?

After 6 weeks on Lupron and 9 days on abiraterone, my PSA was .1, and my testosterone was <1. This is within the criteria being used to start people on...

After 6 weeks on Lupron and 9 days on abiraterone, my PSA was .1, and my test...

jackwfrench

•1 year ago

15 Replies

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Sleep while taking Xtandi and Adt

Hello everyone, I am sure that this has been discussed on here before, I was unable to find any post to answer my question . I am taking Xtandi ( aprox 16...

Hello everyone, I am sure that this has been discussed on here before, I was u...

JD-guy

•1 year ago

24 Replies

Just saw Dr Denmeade

I just got home from Baltimore from an appointment with Dr Sam Denmeade at Johns Hopkins... He's arranging with my local oncologist guidance so I can start BAT...

I just got home from Baltimore from an appointment with Dr Sam Denmeade at Johns...

GSDF

•1 year ago

10 Replies

Thunking of getting an orchiectomy insted od radiation

Has anyone had an orchiectomy and if so how were your side effects and how is your life after the Big O.I'm scheduled to start Full Pelvic Radiation in 6 weeks...

Has anyone had an orchiectomy and if so how were your side effects and how is yo...

woppaginny

•1 year ago

24 Replies

Just bought myself some peace of mind

(disclaimer this is not an advertisement) One of my biggest fears was hubby would be choking on either his food or medication. He’s always had a problem...

(disclaimer this is not an advertisement) One of my biggest fears was hubby...

MouseAddams

•1 year ago

6 Replies

The future stolen

Hi, Having advanced prostate cancer, one of the hardest things for me to handle is the stolen future. I had a clear plan for my wife and me: I would sell my...

Hi, Having advanced prostate cancer, one of the hardest things for me to handle ...

Mike1971

•1 year ago

181 Replies

Reporting results from Eclipse Trial

Prior to beginning trial last June I had just gone castrate resistant and PSA was at 3.3. A few weeks after the last of four injections PSA settled in at .25...

Prior to beginning trial last June I had just gone castrate resistant and PSA wa...

SViking

•1 year ago

8 Replies

Clinical Trial Dallas UT Southwestern

Will begin a Pfizer starting on Monday. I will post more later as it goes. We are adding a drug to Xtandi to treat solid tumors. I have been on and off Xtandi...

Will begin a Pfizer starting on Monday. I will post more later as it goes. We ar...

pilot52

•1 year ago

11 Replies

Has xtandi failed?

I had my lupron injection Tuesday and PSA checked. PSA 0.09, three months ago PSA was 0.06. I asked my doctor if xtandi has failed, he told me not...

I had my lupron injection Tuesday and PSA checked. PSA 0.09, three months ago P...

Echotango51

•1 year ago

20 Replies

Early Readout on Xaluritamig (Amg 509)

From here https://www.amgen.com/newsroom/press-releases/2023/10/amgen-to-present-new-research-from-oncology-portfolio-and-pipeline-at-esmo-2023 “Interim...

From here https://www.amgen.com/newsroom/press-releases/2023/10/amgen-to-presen...

Hidden

•1 year ago

9 Replies

Keytruda - year 4

So I’m pretty much closing the book on my 4th year on Keytruda (pembroluzimab). I’ve recently completely my 33rd Pembro infusion. Keytruda was my Hail Mary...

So I’m pretty much closing the book on my 4th year on Keytruda (pembroluzimab). ...

Chugach

•1 year ago

13 Replies

Vacation from ADT

I searched but only came up with vacations at two years or so. I had a meeting with my MO today. He is conservative but suggested I could stop the meds. I was...

I searched but only came up with vacations at two years or so. I had a meeting w...

gsun

•1 year ago

26 Replies

He lived a wonderful life

My father passed away on Sunday, 10/15/2023, at the age of 91. We initially learned of his very high PSA level on 10/14/2021 (two years prior), with the...

My father passed away on Sunday, 10/15/2023, at the age of 91. We initially lear...

Merlot1

•1 year ago

34 Replies

ADT- Low Total Cholesterol- Low Serotonin in the brain = cause of Anxiety and Depression?

I have been experiencing short bursts of anxiety about topics that seem very irrational to me . They come and go in a period of 12-18 hours. I have had about...

I have been experiencing short bursts of anxiety about topics that seem very ir...

Scout4answers

•1 year ago

30 Replies

ADT and bone health

I am 79 in exceptional physical condition. I have been on ADT after radical Prostatectomy for over 14 months and to date aside from the sexual libido loss I...

I am 79 in exceptional physical condition. I have been on ADT after radical Pros...

Stevegr

•1 year ago

3 Replies

abiraterone instructions

just started abiraterone and note conflicting instructions for dosing…….MO instructions are 1 hour before food 2 hours after( makes sense for empty...

just started abiraterone and note conflicting instructions for dosing…….MO instr...

Tommyj2

•1 year ago

44 Replies

Full Pelvic Radiation

My doc stopped the orgovyx I was taking because after just 2 weeks my PSA started to rise 10 points, then the second month it had risen another 10 points.. So...

My doc stopped the orgovyx I was taking because after just 2 weeks my PSA starte...

woppaginny

•1 year ago

30 Replies

Olaparib and Radium 223 synergy ?

I seem to recall seeing that there was a trial on seeing if there was synergy to taking Olaparib and Radium 223. But can not find it. Anyone have any...

I seem to recall seeing that there was a trial on seeing if there was synergy to...

davebliz

•1 year ago

3 Replies

Genomic testing

Who benefits from genetic testing and when? Is it mainly when someone becomes castrate resistant and or metastatic that they recommend it? Or is there value in...

Who benefits from genetic testing and when? Is it mainly when someone becomes ca...

runtrails

•1 year ago

8 Replies

And I thought I had a full plate-

Well we went in today for his fourth pluvicto dose. Went mostly well but he’s been weak lately and had a few bumps in the road but that’s a story for another...

Well we went in today for his fourth pluvicto dose. Went mostly well but he’s be...

MouseAddams

•1 year ago

6 Replies

Questions about progesterone and prostate cancer

My onco continues to resist prescribing low dose E2 to help minimize some of my ADT SEs. Following my last appointment he suggested progesterone as an...

My onco continues to resist prescribing low dose E2 to help minimize some of my ...

Carlosbach

•1 year ago

60 Replies

looking for reassurance or advice

Hello warriors, After exactly 2 years of happily dropping PSA numbers on triplet therapy, my husbands PSA went up this month from .91. To .94 I know MO will...

Hello warriors, After exactly 2 years of happily dropping PSA numbers on triple...

Bspouse

•1 year ago

10 Replies

Chemo and social life

My husband and I are both freshly aware of his need to avoid getting ill due to low white blood cell count - his is only 1.93, and that's 10 days after his...

My husband and I are both freshly aware of his need to avoid getting ill due to ...

Tinuriel

•1 year ago

27 Replies

PapaDugi gives us hope with ARX517

In this post: https://healthunlocked.com/advanced-prostate-cancer/posts/150102877/arx517-mcrpc-treatment-if-you-want-to-know-about-it-live-via-a-webcast...

In this post: https://healthunlocked.com/advanced-prostate-cancer/posts/15010287...

Maxone73

•1 year ago

8 Replies

CT and Bone Scan 2 weeks after PSMA PET?

Note: for reference, my dad lives in BC, Canada. I believe the system here is a bit different than the US - we have a urologist who refers us to the RO...

Note: for reference, my dad lives in BC, Canada. I believe the system here is a ...

sixmongoos

•1 year ago

4 Replies

My son’s PSA rose a bit today.

My son’s last PSA three months ago was <.01 but today it was <.10.It was previously as high as 22. He’s also tertiary five. His Mayo doctor told him to...

My son’s last PSA three months ago was <.01 but today it was <.10.It was previou...

Cactus297

•1 year ago

18 Replies

Avodart added to my treatment regimen. I am Leary of it.

My MO prescribed bicalutamide and avodart after my 20 rounds of SBRT. My PSA went up to 21 after the SBRT. The bicalutamide I understand. I am leary of the...

My MO prescribed bicalutamide and avodart after my 20 rounds of SBRT. My PSA wen...

Pianodude

•1 year ago

13 Replies

Post-ADT, does one's ability to maintain weight get better?

This is for those lucky ones whose treatment has reached the point where their PCa is not active and ADT has ended. Does the ability to maintain a healthy...

This is for those lucky ones whose treatment has reached the point where their P...

Derf4223

•1 year ago

12 Replies

Posts - Advanced Prostate Cancer | HealthUnlocked

Advanced Prostate Cancer

All posts for October 2023

QoL -- Matt's Morning Walk

Need recommendation for oncologist

Would I be on thin ice if I tried adaptive ADT this soon?

Sleep while taking Xtandi and Adt

Just saw Dr Denmeade

Thunking of getting an orchiectomy insted od radiation

Just bought myself some peace of mind

The future stolen

Reporting results from Eclipse Trial

Clinical Trial Dallas UT Southwestern

Has xtandi failed?

Early Readout on Xaluritamig (Amg 509)

Keytruda - year 4

Vacation from ADT

He lived a wonderful life

ADT- Low Total Cholesterol- Low Serotonin in the brain = cause of Anxiety and Depression?

ADT and bone health

abiraterone instructions

Full Pelvic Radiation

Olaparib and Radium 223 synergy ?

Genomic testing

And I thought I had a full plate-

Questions about progesterone and prostate cancer

looking for reassurance or advice

Chemo and social life

PapaDugi gives us hope with ARX517

CT and Bone Scan 2 weeks after PSMA PET?

My son’s PSA rose a bit today.

Avodart added to my treatment regimen. I am Leary of it.

Post-ADT, does one's ability to maintain weight get better?

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