Posts - Advanced Prostate Cancer | HealthUnlocked

Advanced Prostate Cancer

21,445 members • 26,863 posts

All posts for May 2019

Just how precise, really?

I wonder if others could address an issue that has been troubling me for some time: what is the confidence limits on the PSA test? In other words, if we are...

I wonder if others could address an issue that has been troubling me for some ti...

BrentW

•5 years ago

21 Replies

Lu-177 "Vision" trial NCT03511664 Protocols

Does this sound a little strange to anyone except me ? "Detailed Description: Patients with PSMA positive scans will be randomized in a 2:1 ratio to receive...

Does this sound a little strange to anyone except me ? "Detailed Description: P...

Fairwind

•5 years ago

14 Replies

shakes

It's been two weeks since I completed my last (6 x Docetaxel) Chemo and noticed a couple of times when I'm eating and my spoon/fork hand gets close to my mouth...

It's been two weeks since I completed my last (6 x Docetaxel) Chemo and noticed ...

Zetabow

•5 years ago

39 Replies

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One year after RP.

One year check with my urologist on Monday. Had RP My psa has gone up at every 3 month check. First was .04 then .05 then .08 don’t know what it will be...

One year check with my urologist on Monday. Had RP My psa has gone up at every...

JBum

•5 years ago

11 Replies

Sudden Hair Thinning. Could Firmagon be the Culprit?

Hair suddenly thinning. 2nd monthly Firmagon shot 2 weeks ago. Should I take Propecia?

Hair suddenly thinning. 2nd monthly Firmagon shot 2 weeks ago. Should I take Pr...

TEBozo

•5 years ago

5 Replies

Abiraterone Acetate Plus Prednisone in Newly Diagnosed High-Risk Metastatic Castration-Sensitive Prostate Cancer: Final OS Results

TAKE-HOME MESSAGE •The authors report long-term survival outcomes among patients with newly diagnosed high-risk metastatic prostate cancer treated with...

TAKE-HOME MESSAGE •The authors report long-term survival outcomes among patien...

Balsam01

•5 years ago

35 Replies

Firmagon only for starters?

My husband started a firmagon only regimen for his newly diagnosed stage iv pc. Family history, left illiac lymph nodes enlarged, bone scan clear. Any...

My husband started a firmagon only regimen for his newly diagnosed stage iv pc. ...

Dachshundlove

•5 years ago

5 Replies

Appeal with the FAA

Was seen at Duke yesterday...Just for the record..my OC second letter pointed out Xtandi side effects were based on CT for MPC..and just approved for us guys...

Was seen at Duke yesterday...Just for the record..my OC second letter pointed ou...

pilot52

•5 years ago

7 Replies

Taxotere result

Hi My husband dx dec2017 cancer in semical vessels and multiple bone mets.Had rp in Feb 2018 then decaptyl every 3 months, zometa every 6 wks and casodex....

Hi My husband dx dec2017 cancer in semical vessels and multiple bone mets.Had ...

Omc64

•5 years ago

6 Replies

Nanovehicles....

https://www.seas.harvard.edu/news/2019/05/new-drug-delivery-system-suppresses-tumors-in-mice

https://www.seas.harvard.edu/news/2019/05/new-drug-delivery-system-suppresses-tu...

puxi

•5 years ago

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Xtandi and Indometacin

I started Xtandi 17 months ago after it was established I was castrate resistant. My psa then was 3.5. I have had a good reaction to Xtandi, with a clear...

I started Xtandi 17 months ago after it was established I was castrate resistant...

landcrab

•5 years ago

1 Reply

High T clinical trial update from a data point

Update from a data point 3-mo in on a high T clinical trial Brief bio- diagnosed at 46 Gleason 9/10; started ADT. MRI indicated surgery was not an option;...

Update from a data point 3-mo in on a high T clinical trial Brief bio- diagnose...

Chugach

•5 years ago

10 Replies

Starting ADT

DX April 2019, 46 years old. Gleason 10 in 11 of 12 points. Mets to lymph nodes. Current tumor board treatment plan is robotic RP in July and external...

DX April 2019, 46 years old. Gleason 10 in 11 of 12 points. Mets to lymph nodes....

sinned1972

•5 years ago

4 Replies

Two new advanced hormonal agents (apalutamide and enzalutamide) increase survival in metastatic hormone sensitive prostate cancer (mHSPC)

New indications for 2 previously approved drugs - Erleada and Xtandi. I don't have all the details yet on Xtandi, but it is clearly successful for mHSPC. I'll...

New indications for 2 previously approved drugs - Erleada and Xtandi. I don't ha...

Tall_Allen

•5 years ago

23 Replies

What a bunch of..........

Just finished my first session of Docetaxel, feeling pretty good, but as usual, I turned to this board and folks like tall_allen et all, continuously posting,...

Just finished my first session of Docetaxel, feeling pretty good, but as usual, ...

WINGER19

•5 years ago

6 Replies

Lu-177

Hi, my husband will soon be getting his first Lu-177 treatment, is there anyone in the US getting this treatment and if so where are you having your scan? We...

Hi, my husband will soon be getting his first Lu-177 treatment, is there anyone ...

ronnie1943

•5 years ago

11 Replies

The Danger of Complementary and Alternative Medicine (update)

I've posted this before, but I added an update based on a UCSF study that tracked growing usage of such "medicines." I also added a note explaining why mouse...

I've posted this before, but I added an update based on a UCSF study that tracke...

Tall_Allen

•5 years ago

77 Replies

If money, time and effort were no object...

... How would your treatment plan change? Are there doctors you would talk to? Tests you would do? Treatments you'd pursue?

... How would your treatment plan change? Are there doctors you would talk to? T...

CantChoose

•5 years ago

27 Replies

Do we agree that our Advanced Prostate Cancer community is helpful?

I believe our community provides extraordinary help for all of us. We have men and women who have taken our community to heart as a second or primary part of...

I believe our community provides extraordinary help for all of us. We have men ...

Darryl

Partner•5 years ago

9 Replies

Interpretation - Stable or Growing PCA?

My husband was diagnosed with advanced PCA in October 2018 with extensive mets in virtually every bone and a PSA of 1360+. His PSA was 30 last month after six...

My husband was diagnosed with advanced PCA in October 2018 with extensive mets i...

Monkeymamma

•5 years ago

15 Replies

Would a Nagalase test help??

Is anyone familiar with the Nagalase test? Has anyone had a Nagalase test and would it be useful if you've had a orchiectomy and are still castrate sensitive...

Is anyone familiar with the Nagalase test? Has anyone had a Nagalase test and wo...

sjc2

•5 years ago

4 Replies

A little sunshine for a dark few weeks

My husbands PSA has been going through the roof, in a lot of pain and just not well. He was just prescribed Xtandi. I was able to get his Xtandi for $0 copay...

My husbands PSA has been going through the roof, in a lot of pain and just not w...

Hidden

•5 years ago

6 Replies

Exercise & Chemotherapy

Seen on twitter....regarding exercise and its impact on chemotherapy. Good stuff! BTW ---- Dr. Brockton is Vice President of Research at the American...

Seen on twitter....regarding exercise and its impact on chemotherapy. Good stuf...

TNCanuck

•5 years ago

9 Replies

Actinium 225 combined with Zytiga

After Docetaxel and Jevtana failed last year, hubby was given Zytiga with Prednisone in December 2018. After researching trials, we had the option to go to USA...

After Docetaxel and Jevtana failed last year, hubby was given Zytiga with Predni...

Ldb01

•5 years ago

26 Replies

Finished LU177 injections

I thought I should let the group know that I have completed the LU177 Vision trial with 6 injections received. The results have been amazing going from 110 to...

I thought I should let the group know that I have completed the LU177 Vision tri...

Jackpine

•5 years ago

50 Replies

Chromogranin A (CgA) not useful for screening patients for neuroendocrine differentiation according to my doctor.

Just want to pass on something my doctor told me today at my appointment. I asked him if CgA was a useful test to determine if someone has neuroendcrine...

Just want to pass on something my doctor told me today at my appointment. I aske...

Hidden

•5 years ago

26 Replies

Relief from HF

I have chosen not to take any medications or patches to help relieve my HF. Instead, I have purchased a hand held fan that I carry 24/7. It is my life safer...

I have chosen not to take any medications or patches to help relieve my HF. Inst...

Hidden

•5 years ago

5 Replies

LIVE

Whats good Team, its been a minute since ive been on this forum and I miss the interaction truly, well Ive been out there livin as it should be for every one...

Whats good Team, its been a minute since ive been on this forum and I miss the i...

SsgCulldelight

•5 years ago

11 Replies

Resuming the PC Journey

In 2009 we finally found the PC and radiation treatments in early 2010 drove the PSA below 1. In April 2018 I had DVTs following a long flight and used my...

In 2009 we finally found the PC and radiation treatments in early 2010 drove the...

Recorderist

•5 years ago

4 Replies

Anyone keeping Biochemical Recurrence under control without ADT?

While ADT appears to be the gold standard for initial BCR there appear to be a plethora of other methods that address it as well ( Salvage Therapy, Non...

While ADT appears to be the gold standard for initial BCR there appear to be a p...

Tommyj2

•5 years ago

37 Replies

Posts - Advanced Prostate Cancer | HealthUnlocked

Advanced Prostate Cancer

All posts for May 2019

Just how precise, really?

Lu-177 "Vision" trial NCT03511664 Protocols

shakes

One year after RP.

Sudden Hair Thinning. Could Firmagon be the Culprit?

Abiraterone Acetate Plus Prednisone in Newly Diagnosed High-Risk Metastatic Castration-Sensitive Prostate Cancer: Final OS Results

Firmagon only for starters?

Appeal with the FAA

Taxotere result

Nanovehicles....

Xtandi and Indometacin

High T clinical trial update from a data point

Starting ADT

Two new advanced hormonal agents (apalutamide and enzalutamide) increase survival in metastatic hormone sensitive prostate cancer (mHSPC)

What a bunch of..........

Lu-177

The Danger of Complementary and Alternative Medicine (update)

If money, time and effort were no object...

Do we agree that our Advanced Prostate Cancer community is helpful?

Interpretation - Stable or Growing PCA?

Would a Nagalase test help??

A little sunshine for a dark few weeks

Exercise & Chemotherapy

Actinium 225 combined with Zytiga

Finished LU177 injections

Chromogranin A (CgA) not useful for screening patients for neuroendocrine differentiation according to my doctor.

Relief from HF

LIVE

Resuming the PC Journey

Anyone keeping Biochemical Recurrence under control without ADT?

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