Latest test, surprised by T3: Hello Here are my... - Thyroid UK

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Latest test, surprised by T3

Indigourchin profile image
29 Replies

Hello

Here are my latest thyroid results, i have to say I don't feel like my T3 is as high as that, I have long covid so maybe my experience is unreliable, however I wonder if my endocrinologist who has been happy last year with my T3 at 4.3 and t4 at 17.2 will want to reduce the T3? Should i postpone my meeting with him in 11 days time, and recheck in case it is an anomaly?

Thanks for any suggestions, and as always this forum is much appreciated

Inflammation

CRP HS Iron Status

Ferritin 203 ug/L

Please note change in ref range for females in line

with NICE recommendations.

(Range: 30 - 332)

0.94 mg/L (Range: < 3)

Vitamins

Folate - Serum 33.3 nmol/L

Vitamin B12 - Active Please note: A Folate result between 7-13 nmol/L may

indicate a possible Folate deficiency.

(Range: > 7)

137.0 pmol/L

Please note change of reference range 29 Jul 2024.

(Range: > 37.5)

Vitamin D 82 nmol/L

Total 25(OH) vitamin D < 25 nmol/L is deficient.

Total 25(OH)D of 25-50 nmol/L may be inadequate in some

people.

Total 25(OH)D > 50 nmol/L is sufficient in most

individuals.

Total Vitamin D level >250 nmol/L - indicates potential

for toxicity.

Please note change of reference range 23 Oct 2022

(Range: 50 - 200)

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Indigourchin profile image
Indigourchin
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29 Replies
TiggerMe profile image
TiggerMeAmbassador

How long after your last T3 dose did you do the blood test?

Indigourchin profile image
Indigourchin in reply toTiggerMe

8 hours thanks

TiggerMe profile image
TiggerMeAmbassador in reply toIndigourchin

Was that the whole 15mcg or do you split the dose?

Indigourchin profile image
Indigourchin in reply toTiggerMe

oh that's 5 mcg

Indigourchin profile image
Indigourchin in reply toTiggerMe

split dose

TiggerMe profile image
TiggerMeAmbassador in reply toIndigourchin

It could be that your fT3 is a little high and your fT4 has dropped a little low... I personally feel grim if my fT4 drops below 50% even with good levels of fT3 🤷‍♀️

Free T4 (fT4) 16 pmol/L (12 - 22) 40.0%

Free T3 (fT3) 6.2 pmol/L (3.1 - 6.8) 83.8%

It's probably hard to compare how you felt on your previous results?

It would be worth nudging your Vit D above 100

Indigourchin profile image
Indigourchin in reply toTiggerMe

thank you very much. do you think it's worth postponing my appointment and retesting my t3, t4, tsh in a week or so?

TiggerMe profile image
TiggerMeAmbassador in reply toIndigourchin

It depends what your Endo is like and what you hope he is going to advise 🫤

It seems like you followed the usual protocol so no reason to believe these results aren't accurate

My interpretation would be that you need a little more T4 and a little less T3 but I don't know what you have tried in the past?

greygoose profile image
greygoose

You have Hashi's, don't you. So it's possible that that high level has nothing to do with your dose, it's just the disease taking its course. Tell the endo that it's probably only temporary and you would like to stay on your present dose for another six weeks and retest, see where you are then. :)

Indigourchin profile image
Indigourchin in reply togreygoose

thanks grey goose, i hadn't thought of that but i do have Hashi's and haven't been very steady of late in myself. i must look into the diet advice. thank you i dont really know enough about Hashi's , also have ehlers danlos and dont know if they have any effect on each other, its just a bit overwhelming! thank you

greygoose profile image
greygoose in reply toIndigourchin

Well, it has nothing to do with diet. Just eat normally.

I hope you'll for give me if I explain Hashi's to you, and if I tell you something you already know! Because your endo won't know, and one of you should.

Hashi's, as I'm sure you know, is an autoimmune disease, where the immune system tries systematically to destroy the thyroid by repeatedly attacking it.

During an attack, the dying cells release their store of thyroid hormone - T4 and/or T3 - into the blood, causing levels to rise without any change to dose - sometimes to almost hyper levels. And thus the TSH drops.

Doctors, who have no inkling of how Hashi's 'works', completely freak out at seeing the results and want to slash or dose - or stop your thyroid hormone all together. But, these high levels are only temporary. Evenutally the excess hormone will be used up/excreted, and you'll go back to being hypo again. And at that point, you will need your full dose again.

The best thing is if doctors never see results like this. And the patient stops taking his thyroid hormone without telling the doctor. Then starts taking it again when s/he starts feeling hypo again. That way, you avoid having to plead with a reluctant doctor to put your dose up again, because they just don't like doing that! :)

Indigourchin profile image
Indigourchin in reply togreygoose

thank you, that was incredibly helpful, i didn't realise that. My endo did sayI had Hashi's but didn't explain anything about it. All of which makes me feel I'll postpone the appointment, retest when i feel a bit better and take those results. I am so grateful to all of you on this forum, thank you greygoose

greygoose profile image
greygoose in reply toIndigourchin

I don't suppose he knew enough about to explain. I've never met one that did.

TiggerMe profile image
TiggerMeAmbassador in reply togreygoose

Not actually testing positive for antibodies... (though can't be discounted) healthunlocked.com/thyroidu...

Looking back at these results I'd still be inclined to increase T4 by 12.5mcg and then review T3 after next test

Edit... just looked back a little further and raised TGAb

but suggestions 2 years ago to raise T4 dose... healthunlocked.com/thyroidu...

Indigourchin profile image
Indigourchin in reply toTiggerMe

thank you i'm certainly going to reflect on this and probably postpone my next appointment, on top of long covid had another recent intense virus and will test again when feel better, than you

TiggerMe profile image
TiggerMeAmbassador in reply toIndigourchin

I just edited the previous answer which you may have missed

Probably the best idea until you feel settled otherwise it just leaves you questioning doesn't it

Indigourchin profile image
Indigourchin in reply toTiggerMe

would T3 on the same dose possibly lower if T4 was better?

Indigourchin profile image
Indigourchin in reply toTiggerMe

Hi TiggerMe, apologies for being slow, i don't understand the TGAb reference? If i haven't raised T4 it is because the endo before this current one ( 2012) said I should really be on 75 T4 if i was going to take T3, . Would you anticipate a fallin T3 if i maintain the same dose but raise T4 by 12.5. Thank you so much

Indigourchin profile image
Indigourchin in reply toIndigourchin

arg sorry, i don't know how to edit a post, i assume looking where you directed me, that it is about testing positive for Hashi'! apologies and thanks

TiggerMe profile image
TiggerMeAmbassador in reply toIndigourchin

Don't worry, but if you ever need to the press the More button and the dropdown shows Edit 🙂

Indigourchin profile image
Indigourchin in reply toTiggerMe

thanks!

TiggerMe profile image
TiggerMeAmbassador in reply toIndigourchin

Your post from a couple of years ago showed raised antibodies which fluctuate and a year later were back in range

No doubt "I should really be on 75 T4 if i was going to take T3" was based on TSH rather than actually looking at your fT4 level 🙄they also have some silly guidelines that say T4 dose should be reduced by 50mcg when adding T3 which is nonsense!

No, I wouldn't expect your fT3 to fall due to adding slightly more T4 but it might drop back if you are actually having a Hashi flare as described so well by  greygoose above

Indigourchin profile image
Indigourchin in reply toTiggerMe

well thank you for your time, between you and greygooseI have learnt quite a bit today! Much appreciated

TiggerMe profile image
TiggerMeAmbassador in reply toIndigourchin

You are most welcome, it's always good to talk things around 🤗

greygoose profile image
greygoose in reply toTiggerMe

And the OP said above that her endo told her she had Hashi's. So, pretty clear, I would have thought.

TiggerMe profile image
TiggerMeAmbassador in reply togreygoose

Ha ha ha... I'm sorry, since when have we believed what Endo's say? 😅

Autoimmunity on the Medicheck's results are green so antibodies must be low

greygoose profile image
greygoose in reply toTiggerMe

As you said yourself, antibodies fluctuate. But you only need one positive result to know you have Hashi's. And the OP had that high result - indisputably high - two years ago:

healthunlocked.com/thyroidu...

SlowDragon profile image
SlowDragonAmbassador

How much Levo are you taking and is it always the same brand

How much was it reduced when T3 was added

What was CRP test result…..it doesn’t appear to be on there

And as you have Hashimoto’s (& EDS) are you on strictly gluten free diet

And/or dairy free

If dairy free, is your Levo lactose free

Thybon Henning T3 is lactose free

Indigourchin profile image
Indigourchin in reply toSlowDragon

thank you, it is so long ago it is hard to remember but think i was on 150 T4 but before T3/T4 had also been on Armour /Erfa which suited me well. the T4 brand , 100mcg has been the same for the past 18 months but have no say on that. T3 is Thybon Henning

very strictly gluten free , only eat goats cheese and a touch of parmigiana so could give those up

CRp was ok i think , 0.94 (range <3)

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