Here are my latest thyroid results, i have to say I don't feel like my T3 is as high as that, I have long covid so maybe my experience is unreliable, however I wonder if my endocrinologist who has been happy last year with my T3 at 4.3 and t4 at 17.2 will want to reduce the T3? Should i postpone my meeting with him in 11 days time, and recheck in case it is an anomaly?
Thanks for any suggestions, and as always this forum is much appreciated
Inflammation
CRP HS Iron Status
Ferritin 203 ug/L
Please note change in ref range for females in line
with NICE recommendations.
(Range: 30 - 332)
0.94 mg/L (Range: < 3)
Vitamins
Folate - Serum 33.3 nmol/L
Vitamin B12 - Active Please note: A Folate result between 7-13 nmol/L may
indicate a possible Folate deficiency.
(Range: > 7)
137.0 pmol/L
Please note change of reference range 29 Jul 2024.
(Range: > 37.5)
Vitamin D 82 nmol/L
Total 25(OH) vitamin D < 25 nmol/L is deficient.
Total 25(OH)D of 25-50 nmol/L may be inadequate in some
people.
Total 25(OH)D > 50 nmol/L is sufficient in most
individuals.
Total Vitamin D level >250 nmol/L - indicates potential
for toxicity.
Please note change of reference range 23 Oct 2022
(Range: 50 - 200)
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Indigourchin
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It could be that your fT3 is a little high and your fT4 has dropped a little low... I personally feel grim if my fT4 drops below 50% even with good levels of fT3 🤷♀️
Free T4 (fT4) 16 pmol/L (12 - 22) 40.0%
Free T3 (fT3) 6.2 pmol/L (3.1 - 6.8) 83.8%
It's probably hard to compare how you felt on your previous results?
You have Hashi's, don't you. So it's possible that that high level has nothing to do with your dose, it's just the disease taking its course. Tell the endo that it's probably only temporary and you would like to stay on your present dose for another six weeks and retest, see where you are then.
thanks grey goose, i hadn't thought of that but i do have Hashi's and haven't been very steady of late in myself. i must look into the diet advice. thank you i dont really know enough about Hashi's , also have ehlers danlos and dont know if they have any effect on each other, its just a bit overwhelming! thank you
Well, it has nothing to do with diet. Just eat normally.
I hope you'll for give me if I explain Hashi's to you, and if I tell you something you already know! Because your endo won't know, and one of you should.
Hashi's, as I'm sure you know, is an autoimmune disease, where the immune system tries systematically to destroy the thyroid by repeatedly attacking it.
During an attack, the dying cells release their store of thyroid hormone - T4 and/or T3 - into the blood, causing levels to rise without any change to dose - sometimes to almost hyper levels. And thus the TSH drops.
Doctors, who have no inkling of how Hashi's 'works', completely freak out at seeing the results and want to slash or dose - or stop your thyroid hormone all together. But, these high levels are only temporary. Evenutally the excess hormone will be used up/excreted, and you'll go back to being hypo again. And at that point, you will need your full dose again.
The best thing is if doctors never see results like this. And the patient stops taking his thyroid hormone without telling the doctor. Then starts taking it again when s/he starts feeling hypo again. That way, you avoid having to plead with a reluctant doctor to put your dose up again, because they just don't like doing that!
thank you, that was incredibly helpful, i didn't realise that. My endo did sayI had Hashi's but didn't explain anything about it. All of which makes me feel I'll postpone the appointment, retest when i feel a bit better and take those results. I am so grateful to all of you on this forum, thank you greygoose
thank you i'm certainly going to reflect on this and probably postpone my next appointment, on top of long covid had another recent intense virus and will test again when feel better, than you
Hi TiggerMe, apologies for being slow, i don't understand the TGAb reference? If i haven't raised T4 it is because the endo before this current one ( 2012) said I should really be on 75 T4 if i was going to take T3, . Would you anticipate a fallin T3 if i maintain the same dose but raise T4 by 12.5. Thank you so much
Your post from a couple of years ago showed raised antibodies which fluctuate and a year later were back in range
No doubt "I should really be on 75 T4 if i was going to take T3" was based on TSH rather than actually looking at your fT4 level 🙄they also have some silly guidelines that say T4 dose should be reduced by 50mcg when adding T3 which is nonsense!
No, I wouldn't expect your fT3 to fall due to adding slightly more T4 but it might drop back if you are actually having a Hashi flare as described so well by greygoose above
As you said yourself, antibodies fluctuate. But you only need one positive result to know you have Hashi's. And the OP had that high result - indisputably high - two years ago:
thank you, it is so long ago it is hard to remember but think i was on 150 T4 but before T3/T4 had also been on Armour /Erfa which suited me well. the T4 brand , 100mcg has been the same for the past 18 months but have no say on that. T3 is Thybon Henning
very strictly gluten free , only eat goats cheese and a touch of parmigiana so could give those up
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