Blood Test thoughts please

[Ardsgem]

Hello, I am new to forum and this is first time I've posted. In July last year I had blood tests done by GP. I request these once a year just to try and monitor things. My TSH was 4.07 mlU/L (0.27-4.20) plasma free T4 was 11 pmol/L (12-22.00). There was a note of concern re TSH and advice to get tested again in 6 months time. I wasn't surprised as I suspected thyroid problems for a while. I have no energy, low motivation, high cholesterol, intolerance to cold an my body temperature doesn't get above 36.7 and low pulse rate. I decided to try NDT andd ordered Tyromax starting at 3 drops per day and increased now to 10 . I took the advice of getting a full thyroid panel and these are the results: Appointment was at 9.30 am (earliest they could do). fasted 24 hours before and no vitamins 24 hours before.

TSH 3.27 mlU/L (0.27-4.2)

Free T3 4.1 pmol/L (3.1-6.8)

Free T4 10.8 pmol/L (12-22)

Thyroglobulin 222klU/L (0-115) Thyroid Peroxidase 89.1 KlU/L (0.34)

Ferritin 130 ug/L (30-332); Folate 19.3 nmol/L (>7); B12 Active >150 pmol/L(>37.5) Vitamin D 63nmol/L (50-200) Total Cholesterol from July 24 blood tests was 8.1mmol/L (2.80-5.00) - this has been rising since 2018. I had a bicuspid aortic valve replace in June 21 and they've been trying to get me to take statins, which I'm refusing. I hope I can get this sorted by getting thyroid sorted. I would be very grateful for your thoughts.

[tattybogle]

i've not heard of tyromax before , so i looked it up .... is this it ? idealabs.ecwid.com/TyroMax-... ( helvella ?wonder if you've come across this )

. their comment about it not dissolving/ shaking bottle makes it sound like getting an accurate daily dose could perhaps be an issue .

wondered why you went for that liquid form rather than a conventional tablet form of NDT with proven track record ?

they seem to be claiming 7 drops = 1 grain USP ,

'a grain' usually means 38mcg T4 and 9 mcg T3 , but it's a bit evasive that they don't state that directly . (as is not revealing the other ingredients without putting it in basket first)

so with 10 drops you're (allegedly) taking about 1 and a half grains , which is a fairly low dose for people on NDT.

and your blood results also seem to indicate the dose is too low , ie , low fT4 level and TSH still looking a bit too high for optimal .

[Ardsgem in reply to tattybogle]

yes this is the link. I don’t know about obtaining other NDT sources in UK especially with good track record. Is there information on this site about good uk sources?

[GlowCoach Administrator in reply to Ardsgem]

For prescription only medicines we are not allowed to name sources as per group guidelines.

You can start a new post asking for sources with replies by private message only.

[Ardsgem in reply to GlowCoach]

thanks I’ll try that though I’m doubtful if my GP would prescribe NDT?

[GlowCoach Administrator in reply to Ardsgem]

You would need a private GP or Endo to prescribe NDT. Almost impossible on the NHS.

You can email [e-mail] for a list of Endo's. Start a new post asking for feedback on a few names by personal message only.

[helvella in reply to Ardsgem]

Sources cannot be discussed on forum.

However, I might be able to help by pointing you at my desiccated thyroid document.

helvella - World Desiccated Thyroid

Contains details of all known desiccated thyroid products including information about several products not considered to be Natural Desiccated Thyroid (NDT/Desiccated Thyroid Extract/DTE).

Direct link to PDF:

📄 dropbox.com/scl/fi/gx6dmz5i...

Blog last updated 28/12/2024 - documents are regularly updated

Link to blog:

helvella.blogspot.com/p/hel...

If you wish to ask for sources, please make a NEW post and ask. That post will be closed but members who can help will be able to send you a private message.

📢 ⚠️ Purchasing thyroid (and other) medication without prescription - Please Be Wary! ⚠️ 📢 (Repost)

healthunlocked.com/thyroidu...

[tattybogle in reply to Ardsgem]

you can ask for sources in a new post requesting replies by Private Message ( chat facility ~paper aeroplane icon). the new post will then have to be closed by admin, cos sources of prescription meds without prescription cannot be posted on open forum .

PLEASE READ THIS POST CAREFULLY as unfortunately scammers do lurk here waiting to pounce on requests : healthunlocked.com/thyroidu... purchasing-thyroid-and-other-medication-without-prescription-please-be-wary-

[tattybogle in reply to tattybogle]

p.s GP's are not allowed to initiate a prescription of NDT on NHS , and the vast majority of the them would not be willing to write a private prescription for it .

It's more or less impossible nowadays to get NDT prescribed by NHS endocrinologist, but a private endocrinologist may prescribe it if you saw one who agrees you need thyroid hormone replacement , not all of them will prescribe NDT , some only prescribe Levothyroxine / Liothyronine , so you'd need to do a bit of research to make sure you chose one who did actually prescribe NDT.

NDT is classed as a 'prescription only medication', ie needs a prescription to buy it in uk , as are Levothyroxine (T4) and Liothyronine (T3) , which is presumably why tyromax have worded things vaguely / don't mention T4/T3 content, and are trying to cover their ass legally by saying it's for external use / research etc ...... if they said it contained T4 and T3 it would be illegal for them to to sell it here without a prescription .... but it's not clear if it actually has have much / any T4/T3 in it , it doesn't seem to be doing anything to improve your low fT4 levels.

[Ardsgem in reply to tattybogle]

thanks for this information. I’ll do the new message with requests for private endos. I’m in Northern Ireland and don’t hold out much hope of getting one that will prescribe it, but you never know . Yes you’re right about Tyromax. They have to be careful about how they sell it even in USA which is where they’re based

[TiggerMe Ambassador]

Welcome aboard,

Your low Vit D levels jump out and need raising up to 100-150nmol/L...

grassrootshealth.net/projec...

I'm with Tatty I've not heard of this stuff so I shall go and read the link but it doesn't seem to be doing much?

[TiggerMe Ambassador in reply to TiggerMe]

Didn't like the sound of this... "Note: This product contains raw material(s) meant for external use only, in cosmetic or other formulations designed for such external use."

It looks like these produces are "for lab/research use only." 🤷‍♀️

[Ardsgem in reply to TiggerMe]

No I don5 think it’s have a huge effect. I’m keen to try another NDT thatI can source in UK

[TiggerMe Ambassador in reply to Ardsgem]

You might want to look at Metavive which some here like

[SlowDragon Administrator in reply to Ardsgem]

Suggest you stop taking this dubious product

Wait 6-8 weeks

Get thyroid and vitamin levels retested

Take results to thyroid specialist endocrinologist

Here’s link for how to request Thyroid U.K.list of private Doctors emailed to you, but within the email a link to download list of recommended thyroid specialist endocrinologists

Ideally choose an endocrinologist to see privately initially and who also does NHS consultations so that might eventually transfer to NHS

thyroiduk.org/contact-us/ge...

High thyroid antibodies confirms autoimmune thyroid disease also called Hashimoto’s

Vitamin levels are good

Presumably you supplement?

you need coeliac blood test too

[Ardsgem in reply to SlowDragon]

I don’t supplement b12 yet it’s in higher end maybe it’s due to diet as I eat organic meat and veg as well as organic raw milk and free range eggs. Supplement with Vit C, probiotics, vitamin D (though need to increase dose) and k2, magnesium, boron. Yes been thinking of a coeliac test though not a lot of gluten in my diet.

[FallingInReverse in reply to TiggerMe]

TM, my guess is that the language - Calling it a cosmetic and saying for external use - defines this product as outside of actual US regulatory oversight we would expect from a US med/supplements product we ingest.

[TiggerMe Ambassador in reply to FallingInReverse]

Sounds likely, they do that over here too 🙃

[FallingInReverse in reply to TiggerMe]

😱

[helvella]

Ignoring what you are taking, your blood test results look distinctly hypothyroid.

Getting your thyroid hormone levels raised (and TSH lowered) might well see your Total Cholesterol reduce.

Your antibody levels indicate an autoimmune issue (Hashimoto's or Ord's). Which means it is not going to resolve and you really must take higher dose or change to a more definite medication regime.

[Ardsgem in reply to helvella]

haven’t heard of Ord’s before ? As my calcium level has been consistently high and the aortic valve calcification I also wondered if was something to do with parathyroidism?

[helvella in reply to Ardsgem]

Parathyroid might well be an issue.

We are aware but don't really know much about parathyroids.

helvella - Parathyroid Links

Some links to parathyroid information.

Last updated 13/12/2024

Link to blog:

helvella.blogspot.com/p/hel...

Ord's is similar to Hashimoto's. However, whereas Hashimoto's is defined as having a goitre, even if it is transitory, Ord's does not.

[RedApple in reply to Ardsgem]

Link to wiki article on Ord's thyroiditis en.wikipedia.org/wiki/Ord%2...

[Bearo]

it is possible to have Hashimotos/Ords at the same time as having a sluggish pituitary. I think your pituitary may not be working properly because your TSH was not very high for your below range FT4 . This usually points to secondary hypothyroidism (problem with pituitary) rather than primary hypothyroidism (problem with the thyroid). The thyroid needs treating either way, so the cause may not be a big issue, but may be worth knowing pituitary might not be working as well as it could be and TSH might not rise as much as a GP might expect.

[Ardsgem in reply to Bearo]

interesting. I’ll have a look at any information I can find on pituitary.

[Bearo in reply to Ardsgem]

It may not be a priority for now, just something to be aware of.