Need Advice on Labs - Long

[Batty1]

I’m Desperately trying to get my health/life back…. And failing miserably!

Most people here know I lost my thyroid 7 years ago to thyroid cancer which a short 2 weeks after the surgery I developed debilitating pains after a year and half of suffering finally diagnosed with psoriatic arthritis which still hasn’t help me a bit to get a grip on my health…I recently saw my primary care doctor (new to me) my complaint was struggling to walk because of bouncing vision (only when I walk or drive). I can no longer walk in the dark or drive in the dark and I have complained about issues with hypoglycemia that no doctor deals with (vision issues started last summer) the hypoglycemia issues the day I lost my thyroid anyway she did a flurry of labs (9) vials … some things I never heard of before and things I have been requesting over the past 7 years and ignored..

AC1- 5.7 % …..,,(4.0-5.6%). I have cut out a long time ago bread products and cut back on starchy vegs … potatoes, corn, rice … don’t eat out and don’t buy freezer type of meals….. I exercise most days but walking is out with bouncing vision Im terrified to fall (Its like walking on a trampoline) without the fun …. Going to ENT and Eye doctor Again also MRI which Im not sure I want to do … another story for another time!

Ferritin : 17.8 ng/ml…(13.0-150.0)

UIBC: 300 ug/dl…..(112-347)

Iron: 70 ug/dl…..(37-145)

TIBC: 370 ug/dl …..(182-416)

Iron Sat%: 18.8% ….(15-50%)

MCHC : LOW (bold red letters only)

Folate: 7.3 ng/ml ….(4.6-34.8)

Vitamin D: 27.4 ng/ml (Low) ….(30-100)

B12: 790 pg/ml….(232-1245)

Potassium: 4.4 mmoL/L ….(3.5-5.1)

Magnesium: 2.20 ….(1.60 -2.60)

TSH: 0.128 ….(0.450-4.500)

FT3: 3.0 ….(2.0-4.4)

FT4: 1.36 ….(0.82-1.77)

T3: 121…,(71-180)

Anti bodies are always undetectable.

100mcg/10mcg

I supplement Mag and this number is exactly the same as 2 years ago…

Am I anemic again??? Definitely need Vitamin D … always been low but this is pathetic and the issue is I can no longer tolerate the sun it breaks me out in a horrendous rash and recently had biopsy on rash it came back as POSSIBLE Tumid Lupus but the derm doesn’t like the result and isn’t willing to mark it down …Why do they do the dog and pony show with labs/biopsy to only not believe them… idiots!

Anyway thanks in advance for advice …

[SlowDragon Ambassador]

Ferritin is deficient

Vitamin D inadequate

How low was vitamin D at last test

No folate result

What vitamin supplements are you taking ?

What are your thyroid results?

TSH, Ft4 and Ft3

Were thyroid antibodies tested prior to thyroidectomy

Hashimoto’s and psoriatic arthritis may be connected

verywellhealth.com/are-unde...

Have you tried absolutely strictly gluten free diet

If not get coeliac blood test BEFORE cutting gluten out

healthline.com/health/psori...

[Batty1 in reply to SlowDragon]

Hi,

I forgot to add folate.. updated above. Vitamin D has always been 32 and called normal by doctors…. The Only vitamin I take is Magnesium Citrate. I’m not strictly gluten free … have tried but didn’t have huge success.

Folate: 7.3 ng/ml ….(4.6-34.8)

TSH: 0.128 ….(0.450-4.500)

FT3: 3.0 ….(2.0-4.4)

FT4: 1.36 ….(0.82-1.77)

T3: 121…,(71-180)

Antibodies are always undetectable.

[SlowDragon Ambassador in reply to Batty1]

what thyroid hormones are you taking

Tested as recommended?

testing early morning, ideally just before 9am, only drink water between waking and test and last dose levothyroxine 24 hours before test

This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip)

On T3 - day before test split T3 as 2 or 3 smaller doses spread through the day with last dose 8-12 hours before test

FT4: 1.36 pmol/l (Range 0.82 - 1.77)

Ft4 only 56.84% through range

FT3: 3 pmol/l (Range 2 - 4.4)

Ft3 only 41.67% through range

So under medicated and poor conversion

Poor conversion should improve once vitamin levels are optimal

So you know you have one autoimmune disease you can assume, even with negative antibodies you have Hashimoto’s

So definitely trial strictly gluten free diet

so you need daily vitamin D, daily vitamin B complex

significant increase in iron rich foods

red meat every day. Liver once week etc etc

Possibly iron supplements too

[Batty1 in reply to SlowDragon]

Yes, I follow the instructions here for testing. I will start supplementing iron again Im not a huge meat eater and with Vitamin D should I also take the Vitamin K?

[SlowDragon Ambassador in reply to Batty1]

Yes re K2

And daily vitamin B complex

[Batty1 in reply to SlowDragon]

Ok.. just took B12 and will start D and K2.

[SlowDragon Ambassador in reply to Batty1]

Folate is far too low

You can reduce then stop separate B12 now

With serum B12 result below 500, (Or active B12 below 70) recommended to be taking a separate B12 supplement and a week later add a separate vitamin B Complex 

Then once your serum B12 is over 500 (or Active B12 level has reached 70), you may be able to reduce then stop the B12 and just carry on with the B Complex.

supplementing a good quality daily vitamin B complex, one with folate in (not folic acid)

This can help keep all B vitamins in balance and will maintain B12 levels

Difference between folate and folic acid

healthline.com/nutrition/fo...

Many Hashimoto’s patients have MTHFR gene variation and can have trouble processing folic acid.

thyroidpharmacist.com/artic...

B vitamins best taken after breakfast

Thorne Basic B recommended vitamin B complex that contains folate, but they are large capsules. (You can tip powder out if can’t swallow capsule)

Thorne currently difficult to find at reasonable price, should be around £20-£25. iherb.com often have in stock. Or try ebay

Igennus B complex popular option too. Nice small tablets. Most people only find they need one per day. But a few people find it’s not high enough dose

Post discussing different B complex

healthunlocked.com/thyroidu...

IMPORTANT......If you are taking vitamin B complex, or any supplements containing biotin, remember to stop these 7 days before ALL BLOOD TESTS , as biotin can falsely affect test results

endo.confex.com/endo/2016en...

endocrinenews.endocrine.org...

In week before blood test, when you stop vitamin B complex, you might want to consider taking a separate folate supplement (eg Jarrow methyl folate 400mcg)

Post discussing how biotin can affect test results

healthunlocked.com/thyroidu...

helvella.blogspot.com/p/hel...

[Batty1 in reply to SlowDragon]

Since my B12 is high should I not take B12 ? I take Super B- Complex (Ingennus) …. Should I get a folate supplement? Or just stick with Super B-Complex.

[SlowDragon Ambassador in reply to Batty1]

You are already taking Igennus B complex?

if yes,

How long before test did you stop taking it

In week before test, when stop vitamin B complex, take separate folate instead

[Batty1 in reply to SlowDragon]

I Wasn’t taking anything prior to the test except Magnesium. I took the B12 today for the first time …

[SlowDragon Ambassador in reply to Batty1]

B12: 790 pg/ml….(232-1245)

Folate: 7.3 ng/ml ….(4.6-34.8)

B12 is already above 500

Suggest you just take a daily vitamin B complex

This will improve ALL B vitamins

[janeroar]

Your dizziness could be down to vitamin B deficiency which can cause instability to autonomic nervous system. That gives rise to poor vestibular control. I experienced this last year.

Yoga and breathing exercises will help ‘tone’ the vagus nerve alongside getting your nutrients and thyroid hormones balanced.

Have a search for vagus nerve exercises/ stimulation. Avoiding exercise is understandable but will make it worse in long run. Your vestibular needs to be retrained and challenged. Good luck. PM me if you need more info.

[Batty1 in reply to janeroar]

My B12 levels are pretty high in range and I have started taking B12 Complex again (Ingennus) …

[janeroar in reply to Batty1]

Your folate is very low and your b12 is only just over half way through range.

Sometimes b12 blood levels aren’t v accurate representation of how much is available or being used by your body. Mine were q high but since supplementing I have definitely felt the difference.