Latest results.: Hi all. I wonder if you could... - Thyroid UK

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Latest results.

Kebabalon profile image
5 Replies

Hi all.

I wonder if you could share your thoughts on my latest results. My levothyroxine has been increased from 50 to 75mg.

I have had a very sore mouth and tongue for over 12 months and was hoping if my B12 levels increased and my levothyroxine was working well, it would go. It hasn’t. My B12 results look better and I’m less symptomatic with thyroid symptoms.

I take my 75 levothyroxine 6.30am daily. My vitamins and 1 x ferrus fumerate at 2pm and progesterone plus 1 ferrus fumerate at 10pm.

I am currently taking:-

Vitamin D-2000iu, Vitamin B12-1000ug,

Super B-Complex, which contain folic acid. Fish oil-1000mg. Ferrus fumerate 305mg x2 (prescribed by GP as my levels drop when I stop taking it.

I stopped my b12 and b complex 9 days before my blood test. The test was taken at 7.30am before my levothyroxine and on an empty stomach.

TSH 0.63 mU/L range 0.35 to 5.50

Free T3 5.69 pmol/L 3.5 to 6.5

Free T4 15.6 pmol/L 10 to 20

Vit D 72.2 nmol/L above 50

Serum vit B12 532 ng/L 150 to 620

Serum folate 20.4 ug/L 3.1 to 19.9

Serum ferritin 122 ug/L 20 to 300

I still wonder if my body is not converting the B12 as it should. 🤔 . I'm not sure if my thyroid is autoimmune or hashimotos. How do you know?

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Kebabalon
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greygoose profile image
greygoose

I take my 75 levothyroxine 6.30am daily. My vitamins and 1 x ferrus fumerate at 2pm and progesterone plus 1 ferrus fumerate at 10pm.

Well, there's a problem here, for a start. Iron should be taken at least two hours away from everything thing else, except vit C. And it's very important to take vit C with it to help with absorption. It should be four hours away from thyroid hormones.

Free T3 5.69 pmol/L 3.5 to 6.5 73.00%

Free T4 15.6 pmol/L 10 to 20 56.00%

These results are weird for someone on only 75 mcg levo. The FT3 is so much higher than the FT4. Are you sure the numbers are correct? One would expect the FT3 to be slightly lower than the FT4 even with the best converter. I don't see how it could be higher.

still wonder if my body is not converting the B12 as it should.

Do you take methylcobalamin (12), rather than cyanocobalamin? And is there methylfolate in your B complex?

I'm not sure if my thyroid is autoimmune or hashimotos. How do you know?

Either by high levels of TPO/Tg antibodies in the blood, or by damage to the thyroid picked up on an ultrasound. Have you had your antibodies tested or an ultrasound of your thyroid?

Kebabalon profile image
Kebabalon in reply togreygoose

Thanks for the reply Greygoose.

Oh gosh. In that case I’ll be popping pills all day. I’ve been told not to take both ferrus fumerate together.

I’ve double checked the free T3 and T4 results and that’s how they are written on my nhs results page. Is it bad my T3 is higher than the T4?

My B12 contains Cyanocobalamin. There us no methylfolate in my B Complex.

I had a scan on my thyroid and was told my thyroid looked healthy just small saliva glands. I think I had antibodies tested but was OK?

I try to pick up tips and advice from the forum, but I’m getting more confused than ever.

greygoose profile image
greygoose in reply toKebabalon

I'm afraid most of us do end up popping pills all day, if we want to be as well as we can. But, not much point in taking them if they're not going to be absorbed.

Is it bad my T3 is higher than the T4?

I have no idea. I've never seen that before in someone taking levo. And I don't know what to make of it. I don't suppose it's bad, exactly, but it's certainly difficult to believe those numbers are correct. You're only taking 75 mcg levo (T4), which is a pretty low dose. Impossible to know how much you absorb, but it won't be 100%. And then, only about 33% of what is absorbed will be converted to T3 at best. Your results look like you're converting more than you're taking. Which is impossible, of course. I don't know what to make of them.

The best absorbed forms of B12 and folate are methylcobalamin and methylfolate. So, better to get those.

bagsypartime profile image
bagsypartime

I take 100 levo.

Never had an issue or symptoms.

Didn't really understand all your meds or what you said.levo and iron don't mix.

I had low iron and tablets over a long time didn't raise it.

Something did work for me (but i was neve symptomatically ill in the first place) and that was magnesium that got rid of joint pain (probably took 6 months)

And then out of vanity and curiosity i tried an experiment.The idea was could i reverse my grey hair.I still have some grey so i don't know if is reversed or not.Other than that it is the closest thing to miracle i've ever seen in terms of feeling as though i have the vitals of someone thirty years younger.

So in my case it was an accident, but logic led me there.So next i started looking up why this should be.There is a lot, notably two books on the subject; Copper.

The people who wrote these books are clearly nutcases, but they also happen to have stumbled onto something huge.Life changing.

It's a funny thing but in the field of diets and life style people can be very dogmatic and argumentative.And things only really get heard when there is some money in it.

So on a site where you can't give advice do your own research, but the message is don't take iron, do plenty of exercise and you are probably deficient in copper and magnesium .(I'm saying all old people are, not you personally).The problem with this advice is that it seems so improbable that the answer could be so simple.But there you are.

greygoose profile image
greygoose in reply tobagsypartime

There's one other problem there. Copper needs to be balanced with zinc. However, hypos are usually low in one, and therefore high in the other. Usually they are low in zinc, so taking extra copper would make the ill. Best to get both tested before supplementing either.

I was low in zinc, and my copper was high. Before I understood the mechanics I took a supplement containing balanced zinc/copper. But, the excess copper made me realise that something was wrong. It was not pleasant! Nutrient supplements will only help if we need them. More is never better. :)

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