I have been struggling with hair loss for 3 years. It is now falling at an alarming rate and I fear being forced into wigs or hair replacement surgery. It's been a long journey, so I don't know that I'll remember everything, but I'll try to hit the important points:
1. I have no thyroid
2. I am on 60 mg Armour (NDT) once per day and 25 mcg Liothyrnone 3 times per day (But hair loss began when I was on NP Thyroid 90 mg twice per day and 25 mcg Liothyronine)
3. I am over 50 and post menopausal
4. I have a wonderful naturopathic doctor who runs tests for everything, so I'm not fighting an endo who only looks for TSH. I do get Free T3, T4 and RT3 levels checked every time.
** Last thyroid labs were:
T3: 4.4 (Range 2.0-4.4)
RT3: <5.0
T4: .4 (Range 0.82-1.77)
Keep in mind that RT3 and T4 are low because my dose of T3 is higher
I originally upped the T3 to try to "cure" a continually high RT3 result and also because I didn't want to take too much Armour, having had a bad experience with it in the past. Prior to this low Armour / high T3 combo, I had been on NP Thyroid 90 mg twice per day and T3 25 mcg. I was concerned that maybe the NP Thyroid was causing the hair loss (just another rabbit trail I went down) and so switched to Armour but with high T3. I have felt fine on the high dose, but the hair loss persists.
Last ferritin check was in August 2021 and it was at 87. I was actively losing hair at that time.
5. Hair loss began in late 2019 and has escalated ever since. No major recent stress or health events that I knew of - until this past year.
6. After trying a lonnnngggg line of remedies, in January 2022 I took a comprehensive gut health test which shockingly revealed leaky gut and toxicity. My naturopath put me on a series of protocols over the spring and summer of 2022 to heal the leaky gut and rid the toxicity. Now, all that remains of the protocol is taking a mega supplement for mitochondrial function (which was extremely low on test result).
I can tell the mitochondrial supplement is working because my energy level is back after being completely drained by August. I can now do shopping, etc. without fatigue.
7. As another last ditch effort to help, I've also been on estrogen cream for 3 months.
8. Prior to the gut health test, I had done everything under the sun- essential oils, Biotin, B vitamins, collagen, changed shampoos and hair color products, changed thyroid meds, changed to drinking only spring water, and even an expensive treatment that was supposed to supply human growth factors to my scalp but did nothing.
9. Last test for iron was Iron binding capacity of 332 (range 250-450)
Iron ug/dL was 90 (range 27-159)
B12 was 967 (range 232-1245)
10. Ever since cancer, I have had to color my hair every 2-3 weeks because my hair doesn't absorb the color. It just sits on top of the strands, so it washes right out. I fear this has contributed to the hair loss, but not sure what to do about this right now. I don't have nice, evenly distributed gray hairs but rather bright white hair at the roots. I don't wish to look like I have a skunk stripe, so I keep coloring... but I also keep losing hair.
At this point, I don't know if I'm just being impatient and I need to keep taking the mitochondrial support and "hope" it eventually helps my hair, and keep taking the estrogen cream for the same reason, or if there's something else I can do. I am using Rosemary oil (along with Thyme, Cedarwood, Peppermint oils) on my scalp twice per week, but otherwise, just taking supplements. After 3 years and seeing the hair getting thinner and thinner, my distress level is so high that I really don't have any patience left in me. If I knew for certain just waiting would work, I would do my best to do so, but I fear I am taking things and "hoping" but I will end up just losing so much hair that I don't want to leave the house.
This is affecting every area of my life. I have to wear barrettes, which is uncomfortable and I can NEVER lie down during the day or lay my head back against a couch or car seat for fear of pulling the barrettes loose. It has taken me up to an hour to get the hair pinned, so pulling them loose is a nightmare. Any bit of wind or precipitation outside is terrible. I have to sleep with my hair twisted a certain direction to avoid a giant part the next day. When loved ones hug me, I pull away because if they accidentally tug at my hair, it will be a nightmare. I am not myself with my family and have lost confidence when going out. I think about this almost 24/7. I need to see some hair sprouting.... just anything to give me some hope that it IS coming back. But so far, all I see is more falling out.
I need to feel like I'm going in the right direction, but I don't even know the root cause of the hair loss for certain.
What am I missing? There has to be something I haven't thought of yet. Help!