Blood test results.

[Jenny583]

Hi wonder workers! following my blood test of 2 weeks ago at 9.20 am I was surprised to find a printout in mailbox from the Endocrinologist.

So basically many tests that were low or below range are now high.

I will mostly include those tests that are now low or high. There is no blood sugar or cholesterol test in this report, (these were high but ignored on previous bloods).

The white cell count is now a healthy 6.1 ( 3.5 - 11.0), & the calcium is now in range.

I have included the tests that I should have had in the past, ( like prolactin & Parathyroid) they were ordered but not done when needed, these are as I would now expect - normal.

But some of these others concern me, & may explain why I feel so bad?

Alanine Aminotransferase 35 H ( <35 )

TSH <0.02 L (050 -5.00

Free Thyroxine 14.3 (10.0 - 25.0 )

Prolactin 245 (64 - 395 )

Cortisol 138 (125 - 630 )

Parathyroid Hormone 5.6 ( 1.1 - 8.4 )

Free T3 9.0 H ( 4.3 - 8.1 )

Vitamin D 148 nmol/L

One odd thing that puzzles me about the Pathology report is this:

Plastered across both pages is "This is not the official report DO NOT FILE.

Is this usual?

Any comments on these results - as always gratefully received. Thank you all.

[AAP10]

Hi Jenny583,

If you don’t mind me asking. What exactly are the symptoms as you wrote you’re feeling bad ? Are you taking any medications if so which ? Can you please put the range value for the Vitamin D ?

[Jenny583 in reply to AAP10]

Hi AAp10, Thanks for asking. I started feeling worse as the day goes on, exhausted, with frequent palpitations, weakness, & swollen joints, & neuropathy. Last night I took my BP, the systolic was high & pulse 105. I have propranolol for emergencies, so I took one. I felt much better but was unable to sleep until about 4 am. The vit D on report contains no range, but it is high now, (double what it was, thanks to vit D mouth oil bought from Amazon uk, which is doubtless why the calcium is now in range. If I find the previous reports I will be better able to answer that range question.

[AAP10 in reply to Jenny583]

I agree with SlowDragon perhaps it’s best to lower/stop Tiromel. I hope you feel better soon.

[Jenny583 in reply to AAP10]

Thanks & Ditto!

[SlowDragon Administrator]

What thyroid hormones are you currently taking

Was test done as early as possible in morning before eating or drinking anything other than water and last dose levothyroxine 24 hours before test. If taking NDT or T3 was last 1/3rd of daily dose taken roughly 8-12 hours before test

What vitamin supplements are you currently taking

[Jenny583 in reply to SlowDragon]

I got the test as early as possible, but the 1st available appt was at 9.20. I fasted, I have never been able to obtain Levothyroxine, or any thing else from medics, so had to buy Tiromel & Metavive via internet. I have cut down to 6mcg Tiromel T3, now taking 1st thing AM (since test) along with 1 metavive, then 1 metavive PM. Before the test -I tried to take the last dose of metavive & T3 at midnight, but as I was exhausted I knew that I had to take it at 10.30 pm - or not at all,then I fell asleep straight away, so it was just outside the 12 hr window. However 1st dose was delayed until 10am day B4 test,as I was hoping to get in on the Monday. I did my best, but the lockdown was just starting to ease off, & hospital appts had been backlogged for a year. I could not get appt on the Monday after all, so next day I had blood draw. But to be fair It makes little difference, as the level of Ft3 is relentlessly rising, in spite of many reductions. I think my graves has come back, despite being told by 1 GP in '2017'? that "it must have burnt itself out".

I am still taking the following ( to use up existing supplies) 10 MG Biotin, Marine collagen,

Glucosamine & Chondroitin complex, boron, vitamin D3 with K2 (sublingual). Selenium, (which seems to help my eyes) I don't take all those pills religiously as I have run out of Vitamins C, 6, 3, 12, & folate, & it is now impossible to obtain the vitamins or even a decent B complex if one lives in Jersey, channel islands - even if I could afford it, + I will have to cancel Amazon this week. But vitamins are not the issue now, as a. I have a very very! good appetite now, & b. my vitamins only go low when I am hypothyroid.

I am saving up for GP, & hope to ask for relevant tests, in view of new developments.

[SlowDragon Administrator in reply to Jenny583]

10.30pm to 10am is 11.5 hours gap ...so that’s absolutely fine

Suggest you consider reducing /stopping Timorel

Then see where levels are

Currently Ft4 is on low side

Ft3 is too high

TSH is almost always suppressed on any dose T3 or Metavive

You might want to look at adding some levothyroxine after next test

[Jenny583 in reply to SlowDragon]

Thanks SlowDragon, I have been cutting out Tiromel, since Autumn, as I could not obtain it any more. The Endocrinologist knows that TSH is suppressed & also T4 - because of the affect of exogenous T3. I am not able to obtain any more tests, & was only given the last 1 because of MMH labs alarm at my low TSH & rapidly rising T3.

I could not afford Levo, even if there were a market for it, & Endo's would not prescribe. I will also cut out Metavive, then maybe I will know if the GD has returned.