Experiences with
Alanine transaminase test (ALT)127,209 public posts
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Just checking in...
How is everyone doing lately with their PBC? For some of us, the temps are cooler - maybe helping with less itching. Do you feel you are still living life as best you can despite any of the symptoms that may occur unexpectedly in your day?
We all have PBC so differently, don't we? I hope you all try
Tuesday's Tip
[i]For the most part physicians have given Urso up to a year to decide if you are a responder or not -- has the Urso decreased your numbers significantly in that time period.[/i]
[i]According to Dr. Jones (world 's leading expert on PBC) the thinking may soon be that only a 6 month period
another pharma update
This is in regards to the pharma Ipsen...
They are trialing a drug called Elafibranor. It is being used for treatment in PBC, biliary atresia (in children) , PSC, Alagille Syndrome, and Primary Familial Cholestasis.
With patients taking Urso, often up to 40% do not see improvement. 3-5% of patients
Seladelpar update
About a month or more ago, I wrote about this upcoming drug's potentially to be the next drug for second line treatment. By that I mean that for some reason someone was not responding to or not able to take Urso. 40% of patients are failed by Urso.
Cymabay, the pharma who manufacturers Seladelpar,
Good report
Had my every 6 month check up with the hepatologist today. Labs were all good. My alk phos is 121 - normal range for my lab is 37-153. Kidney function good as well.. always make sure part of your regular lab work is a comprehensive metabolic profile (CMP).
Now just to make myself committed to making
Wednesday's Word
[u][i]Alkaline Transaminase ()[/i][/u]
This is a blood test that is part of our liver panel. It is released predominantly by injured hepatocytes (cells of the liver), making it usually more prone to be seen in hepatitis.