I’ve been told I have thyroiditis and blood tests show thyroid antibodies of 422ku/l (0-34)
I was under investigation for muscle wasting and have just been diagnosed with Dermatomyositis.
The hospital endocrinologist says that my thyroid levels are normal so I don’t need to be seen. I don’t have my most recent results unfortunately.
28/6 serum TSH 4.43 min/l (0.35-3.5)
Free T4 12pmol/l (8-21)
28/6 - serum TSH 2.88miu/l (0.35-3.5)
Free T4 12pmol/l (8-21)
The tests were done one day after the other because I was told the first one was borderline.
I’ve just had some other test results back today-
Vitamin D 26nmol/l (50-120)
Ferritin 78ug/l (23-300)
B12 389ng/l (130-1100)
Folate 13.3ug/l (2.7-15)
I’ve been told that my thyroid levels will be monitored by my GP for now. I’m going to ask if I can have a copy of my most recent thyroid results from the hospital.
I just started on high dose iv steroids today for my myositis. But any advice on the way forward with my thyroid would be much appreciated. Thank you.
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helipops
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Your high antibodies confirm you have Hashimoto's also called autoimmune thyroid disease. But because TSH is currently in range and FT4 also in range endocrinologist is saying no treatment.....yet
Hashimoto's affects the gut and leads to low stomach acid and then low vitamins. Low vitamin levels can affect Thyroid hormone working
Your vitamin D is already very low. See GP for prescription for loading dose of vitamin D to improve to at least 80nmol (but 100nmol may be better)
Other vitamin levels are ok at moment, though B12 is borderline and may need improving
Poor gut function of autoimmune diseases can lead leaky gut (literally holes in gut wall) this can cause food intolerances. Most common by far is gluten.
According to Izabella Wentz the Thyroid Pharmacist approx 5% with Hashimoto's are coeliac, but over 80% find gluten free diet helps, sometimes significantly. Either due to direct gluten intolerance (no test available) or due to leaky gut and gluten causing molecular mimicry (see Amy Myers link)
Changing to a strictly gluten free diet may help reduce symptoms, help gut heal and slowly lower TPO antibodies
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