Thyroid UK
82,604 members97,646 posts

Hashimoto's Hypothyroidism and Dermatomyositis

I was diagnosed with Hashimoto's hypothyroidism in May 2015 and began levothyroxine treatment. About the same time I developed muscle weakness, skin rashes and began to lose weight. These symptoms accelerated during the autumn and in December I was diagnosed with dermatomysositis. Fortunately no malignancy has been found so far and both conditions are responding to treatment. I should be interested to hear from anyone with experience of dermatomyositis associated with Hashimoto's hypothyroidism and what the longer term prognosis may be. I am 69 and male.

3 Replies
oldestnewest

Michaeloxon, muscle weakness is common in hyperthyroid and hypothyroid patients and will usually improve when thyroid levels are optimal. There aren't many posts on dermatomyositis on TUK but there are some in other communities in the link below.

healthunlocked.com/search/d...

1 like
Reply

Thank you Clutter. The consultant diagnosed dermatomyositis because of the skin rashes, especially the diagnostic one on the back of the finger joints. This didn't itch but I had severe itching on the back, chest, neck and scalp. It was like eczema that didn't respond to the normal ointment treatments. I had a very high ANA level of 1:2560 in early November. I am glad you say muscle weakness is common in conjunction with hypothyroid conditions because the consultant was sceptical about this and looked for a malignancy cause as there is a 20-25% association with this, higher in the elderly. The weakness is already better as I have been on 125 mcg levothyroxine for several months now after going up to 150 and back down again. TSH was at 58 before diagnosis in May. So it could well be that varying the thyroxine level sparked the myositis off. Thank you for your help.

1 like
Reply

Michael- I am not sure if you are still following this... I have Hashimoto’s since the mid 1990’s I just got my dm last year & my dermatologist say it is from my CLL. I do a lot of internet research & never came across thyroid issues & dm. Only about ⅓ of dm patients have an underlying condition. I had my CLL first. We think a treatment allowed my dm to rear it’s ugly head

Reply

You may also like...