I posted on here about a month and half ago: thankyou so much to all those who replied and gave me advice. Since my post, I have actually found out that I have coeliac disease (from very high antibodies not a biopsy as 5 months pregnant) and so have been gluten free for about 5 weeks. A lot of brain fog has lifted and sleep has improved somewhat, however, after an initial few days of increased energy, the constant fatigue is very much back with a vengeance. Since that post I have done a private thyroid panel with medichecks and another one with the hospital as the doctors wouldn't accept the medichecks results. I don't have the print out yet for my latest NHS results unfortunately but all blood tests so far have shown very similar results with my TSH averaging 4.5 (NHS ref range 0.2- 6.0 and medichecks range 0.27-4.2) and my FT4 and FT3 to either be just beneath the defined reference ranges or very close to the bottom of that range.
I have now seen one GP and two hospital consultants and despite me informing them of all the more recent guidelines around the world recommending a TSH of beneath 2.5 in pregnancy no-one will consider me anything but 'normal' based on my results and will not medicate me as it would be 'unethical' and would make me poorly apparently. My below range FT3 (based on their test) was also just dismissed as apparently T3 can vary so much throughout the day. Makes me wonder what the point of a reference range is if that's the case?! I have even drawn their attention to the link between Coeliac disease and hypothyroid and the need to support fixing the thyroid to help heal a leaky gut and vice versa but they refuse to believe I have a thyroid problem. My vitamin B12 is 399 ng/L (ref. range 180-910) and my ferritin level was 34ng/ml (ref. range 10-291) a few months ago so, again, in range but towards the lower end - none of the doctors want to do anything about them so I have started taking extra Vitamin B12 and Vitamin D as well as my usual ante-natal vitamin in the hope that might bump them up. After a heated discussion with a consultant today, she refuses to consider the thyroid being my problem but at least I have had another iron panel and Vitamin D blood test taken this afternoon. I have asked the consultant to write a letter to my GP saying that I want a referral to a private consultant although she has said that she is an expert in all things thyroid and it is unlikely anyone else will treat me at this TSH level unless they are 'unscrupulous' etc etc..
Sooo, does anyone have any ideas on what I can do now? I feel totally trapped into a corner with no way out other than to just try and eat well, take lots of vitamins and hope my body can manage the pregnancy. My baby is my main concern. I am considering the merits of self-medicating after my pregnancy and would welcome any advice on what avenue may be the best to look into, e.g. T4, T3 or NDT? Does it look like I could have a T4/T3 conversion problem - especially as 20% of this apparently takes place in the gut - of which mine could be damaged from the coeliac diesease? I tested positive for the main thyroid antibodies but they were within reference range so I'm assuming/hoping is isn't Hashimotos? Would this affect the medication approach?
Alternatively - could anyone recommend a good book to buy? or recommend any readily available thyroid support vitamins? My hope is that, as my TSH is not sky high and seems to have remained fairly consistent over the last five years, my gluten free diet might help in the long-term however apparently it can take a long time for your gut to heal once gluten free and that's only in the minority of cases where people heal completely.
So thanks for reading again and any advice on what I could do would be much appreciated, thank you so much, Zoe