I'm sorry to post again but I'm so upset and have nowhere to turn.
Quick recap for anyone new who doesn't know me. I started with chronic fatigue in summer 2015. Gp ran test, one being thyroid and it showed....
tsh was 5.35 (0.35-5.5)
Ft4 10.2 (7-17)
B12 212 (190-900)
Feritin 15 (15-150)
Gp said to take iron and all others were fine. He ran full blood count, liver, kidney etc on top. I wasn't anaemic but ferritin was low. I then cane to this site to ask advice on my tsh as my gp said I wasn't borderline and I was fine. I then started supplementing iron and b12.
Continued to feel tired and in November 2015 my son told me he felt suicidal and depressed. He was 11 and being badly bullied. I had 3 months of hell and the NHS gave little support. It led to me being bed bound with severe leg weakness, dizziness where it felt I was walking on a boat, awful fatigue...it felt like a huge crash. Gp came to the house very concerned, did lots or checks and diagnosed stress and a trauma was the cause. I'd been attacked by my brother in 2012 so had history of trauma and stress. He said it had been another trauma and caused a bad reaction. I stayed in bed for a few weeks on and off. Gp came to see me again in the December and ran bloods. Again all fine, b12 had risen to 470. Ferritin up to 31. Folate fine. Full bloods, liver and kidneys ok. Just cholesterol a tad high. January I felt no better. Constantly fatigued, weak legs, feeling off balance and crashing easily after a trip out or housework. I'd be bed ridden feeling dreadful. I ran private thyroid bloods and they showed ..
Tsh 6.53 (0.2-4.2)
Ft4 14. 2 (12-22)
Ft3 5.3 (3.1-6.8)
GP diagnosed me subclinical.
March 2016. Same ranges as above
I then went on levo 25mg. Re tested July 2016.
I stupidly stayed on 25mg and in September my results showed my tsh had jumped up again.
I then went on 50mg levo.
I stayed on 50mg.
Gp also ran a lot of bloods November 2016. Fbc, blood film, folate, Feritin, hba1c, random glucose, kidney and liver function, creatine kinase, glandular fever, nuclear antibodies... all ok. Sodium was low so had to re test and came back fine at 138. Random glucose was raised at 8.9. Gp said it was fine but now 3 months on he's said he is concerned I have diabetes causing my fatigue and wants to do a hba1c every 3 months despite last year my hba1c being 35 both times. Well in normal non diabetic range. All other bloods ok.
I went on 75mg of levo 4 weeks ago. Second week I had some energy, able to walk my dog daily, felt less weak and far less anxious. Then the last 2 weeks I've felt maybe worse than usual. I've had 2 crashes which were after a trip to the park for half an hour. Weak legs, fatigue and generally ill lethargy body feeling. Feeling woozy, brain fog, anxious, depressed, crying all the time... literally terrified why I feel so bad. This last year has destroyed me. I had anxiety and agoraphobia for a year or 2 after my brother attacked me but with therapy I overcame it all. Then once I began feeling this weak and fatigued I had a panic attack at a nurses appointment and wham agoraphobic again. I have to have the gp to my house and I panic just doing that. I cry every day because I'm scared of how ill i feel. I wake every day drained and weak. I shower and do breakfast and then have to rest again. I have 3 children and they deserve a mum who is well. I'm 37, 5ft tall and 8 stone 8lbs. I was always painfully thin all my life but the last few years I gained weight after going on a small dose anti depressant to help me eat and sleep. It helped me after the attack.
My gp saw me 4 times last year and plenty of calls to discuss thyroid results etc... when he saw me in August I was in and huge crash, he blamed mood, anxiety or a virus. He knew I'd been crashing and fatigued all year but never seemed alarmed. He had done full MOT bloods and physical exams and said I was ok. Then suddenly last month he rang me to discuss thyroid results and he said it's not normal after a year I'm still so heavily fatigued and weak. He said he was concerned and wanted to run diabetes tests every 3 months. I was surprised as my hba1c was good all last year, I've no history of it in my family, not over weight and eat healthy. He still it causes fatigue and and as I had 1 random high glucose which was right after eating a sugary nakd bar, he wanted to check if high glucose was making me ill. He then said the full MOT he did just 3 months ago he wanted to repeat it now. I asked why and he said to make sure nothing has changed. I told him it concerned me aa he was suddenly so worried why I'm crashing and fatigued so badly. Where as last year he showed no concern why I was so fatigued. He said he was sorry for now worrying me buto I said to him I'd got a print out and my November bloods were great, best they've been in years. He also told me that full MOT was to reassure him and me that nothing more sinister as happening. He said then we could just focus on thyroid and now he's wanting to use me as a pin cushion again and put fear of God in me. He's said he wants to refer me to a general medical doctor in a few weeks if my thyroid results show 75mg has got the tsh down to normal levels. I asked why and he said he will run more tests, possibly same ones gp has done and maybe diagnose cfs. I'm beside myself with worry. I'm agoraphobic so I've no idea how he expects me to throw myself into a hospital right now.
He just doesn't entertain thyroid can make you as ill as I am. I daily feel weak legged, heavy body, drained all over and fatigued eyes. Brain fog, unreality, feelings of woozy or off balance but gp has said balance wise tests ok, when I walk i just feel so weak and rough and I cry all day why I feel so bad. I've developed severe anxiety and recently diagnosed with depression after scoring high on gp test and therapist test. I can't seem to do much or I crash and land myself in bed weak and fatigued beyond belief for a couple of days. My mum visit after Christmas and wanted a huge heart to heart about how she's not been a mum to me since my brother attacked me, she's not offered any support to me this last year. It's hurt and as a result we don't have a relationship. After her visit I crashed severely for 2 days. So anything emotional or physical I crash. My family treated me terribly for 2 years after the attack with abusive messages telling me to forgive my brother etc.. it was awful so they caused me constant stress so any contact from them causes me panic and stress.
Since the increase in levo I've felt a little worse the last week especially. No energy to walk my dog, feel I'm dragging my weak heavy body around all day and too anxious to attempt anything due to worrying about how bad I feel. My friend thinks it's stress, she thinks since thr gp rang last month with his worries suddenly and wanting to refer me I've been highly stressed and anxious which has led to me physically feeling worse. I'm not so sure. I thought I'd feel better on thyroxine at higher dose, surely my tsh be lowering by now. I felt great in November, I had 3 brilliant weeks once tsh was 2.6. Then wham December hit and I had an anxiety setback as that time of year triggers me as my mother and sisters get in touch and it triggers my past traumas with them. Which results in severe anxiety. My anxiety was severe for all of December and that's when my fatigue worsened, crashes returned and my weak thighs were constant. I've improved anxiety wise since then, I'm much better now that month has passed but it's left my health in this state. I did a saliva cortisol test early January which was slightly high for each of the samples. Gp said it looked like stress and Genova said psychological stress would cause that kind of profile.
Sorry to offload. I'm worried this isn't my thyroid, was I right to go on thyroxine, why am I dealing so bad the last 2 weeks on levo increase, can thyroid cause how I feel?? My gp treats my thyroid but he's suddenly wanting to find another cause and even clutching at diabetes when my hba1c is fine. Or wanting to refer me to a general medical doctor. I see a therapist thank goodness and even she has said the reason I'm so anxious is because when I feek bad I can't tell myself it's just my thyroid or chronic fatigue because my gp is worrying me and digging for another cause. She's righr, it's turned me into a nervous wreck and I'm spending every day in tears when I walk wound. I'm spending my days worrying all kinds of things. Have I got terminal cancer and after a year he's missed it as he dismissed my fatigue all last year, is it cushings, diabetes, brain tumour.. you name it I'm worrying. I wasn't until my gp concerned me. I have always though deep down worried as time went on why I still felt so bad a and if thyroid could cause the level of fatigue and weakness or the crashes i experience.
I'm sorry this got long and I'm sorry for posting again, I'm sure you're all sick of me. If anyone can give me a glimmer or hope or reassurance I'd appreciate it. Right now I'm just confused about what's going on and what to do.