Experiences with

Creatine kinase test (CK)

A concern stemming from the very few questions I was able to successfully ask of the new to me Rheumatologist without being sssshhh'd.... She ordered a Muscle Enzyme Creatine Kinase lab test be performed, as did my GP a month earlier and after comparing the results, it had dropped significantly from

Every time I go to this surgery I feel like it’s a total waste of time - I asked for a ck blood test as I had read about a condition called rhadbo only because I googled pictures that looked similar to my veins in my feet sigh - I ended up pouring my heart out over my anxieties of taking all these

Hello all-just looked at my blood tests and sed rate is 11, creatine kinase is 50. Are these the correct tests? And are they showing elevated results? I know some of you have said the Pred could mask results.

Hi - I had my blood test results back CPR 5 CK 203 they wouldn’t do the ERS test at my doctors surgery .unknowingly My rheumatologist looked at the results and sent me an email yesterday saying no inflammation and has referred me to another consultant prof Emma Clarke bristol for 2nd opinion to look

I increased my t3 to 12.5mcg yesterday after being on 10mcg for two weeks (split doses + 87.5mcg levo ). No ill effects up to now, but after my last dose (12md) I started to feel a bit dizzy and my pulse banging at the back of my head (pulse not racing). It has lasted all afternoon. I was going to take

Hey, I'm pretty new to all this. I had a large PE 6 years ago thought to be attributed to birth control, was told all genetic testing after was fine. Hematology didn't want to do precautionary asprin daily after released from care. Fast forward 3 years ago, I had another (very small) blood clot, this

Getting to the position that this is now really difficult to cope with and having a major impact on sleep (obviously) and day time activities. Lucky to get 90 mins sleep some nights and if that happens 3 nights in a row, absolutely wrecked/zombie during the day time. On daily 2,700Mg of Gabapentin

Hi, hoping some more experienced members might be able to advise. I take 112.55mcg of levothyroxine through the night, between 2.00 - 4.00am. I take 5mcg of T3 at the same time. I take the remainder (10mcg) of T3 in the early afternoon. Splitting the dose was to try and avoid afternoon slump / crash

Hi everyone, my Dad’s PSA at the end of 2023 was 0.008. This year (2024), PSA had some fluctuations: 0.024, 0.029, 0.026, 0.025. PSMA Pet showed one small spot on the rib which was radiated by Dr. Kishan at UCLA. After SBRT, PSA was 0.015, and then in August was 0.022. He started having pain recently

Hi I have recently had a 24 hour blood pressure monitor. The doctor has rang today to say that the readings are fine yet they want to see me tomorrow for an ECG and urine test. What would this be about? Does anyone have experience in this?

Like many people on this forum I'm having problems accessing the help I need to feel well and manage my condition. I was diagnosed with Hashimotos 20 years ago but despite taking levo I have not seen any improvement in my symptoms. I have had SAD depression since adolescence so I put my symptoms down

Soon to go back into battle with my Gloucestershire NHS endo over T3 prescription... I would welcome communication, whether direct or public, from anyone with experience of them, good or bad....

I recently ordered my T3 from my usual supplier in USA, but received 50mcg pills in error instead of my usual ones. They apologised, sent me the correct 5mcg ones, & reimbursed the extra customs charge. I offered to send the large dose pills back, but understandably they probably aren't permitted

Hi My Hba1c has just gone upfront 46 to 51 about 4 years ago it was about 39 , it had gone down from 44 after loosing weight on slimming world , but I regained the 3and a half stone I had lost before , Been on and of S.W for years and it just doesn’t work for me anymore, I am desperate to loose weight

Hi please can anyone recommend anyone in the south West? I'm specifically in Devon but will travel further for a decent endo who will - A. Prescribe over 10mcg lio if needed B. Not drop your levo at the same time as starting and increasing lio (I'm yet to start) C. Respond to your questions and understands

just a question really. My T3 is top of range, and my T4 more middling... I don't want to be taking more T3 than I need, and have tried to reduce it previously when my T4 was higher but it didn't suit me. Now circumstance has set my T4 lower (NHS endo meddling), should I try a tweak lower for my

Hi Im just wondering if anyone has noticed fairly immediatesymptoms after taking sublingual b12 please? I’ve recently managed to get monthly jabs back ( after a fashion) MCh was still overange on 2 monthly. Know other things can be interplaying am correcting ferritin in 30’s, bottom range folate,

Hi I've never posted before and might have asked my question in the wrong place earlier and apologise. 😬 I've had Hashimoto for 24 years and am therefore at late stages I assume. I've managed to get my consultant to agree to give me T3 about 15 years ago as I was so unwell on just T4. I currently

I’ve been experiencing tachycardia every day for 18 months. Heart rate is totally normal lying down, POTs ruled out as HR sometimes fine standing. Things like walking upstairs can cause jump from 70 - 160, having a shower causes at least HR of 130 every day. Interestingly it gets better the more exercise

Hi, annual draw came back with this. GP is freaking out but I'll try appease them when I get to having t deal with that. Background is Hashimoto's, now on 42mcg T3 and 25mcg T4 pd. I skipped all meds for 24hrs a hard of this draw. Does this look relatively common /uncommon to you? Am I overdosing