I had to battle for thyroxine after 9 months of seeing the GP feeling so badly fatigued, weak, losing my eyesbrows, hair loss, anxiety.... I got told my results were fine time and time again when TSH was 5.35 and 6.51. Told it was all in my head and just depressed and anxious. It drove me bloody anxious. By May after I did a few private tests my GP took me seriously. My TSH hit 9.28 (0.27-4.2) and I think T4 was 15.7 (12-22). Finally he gave me thyroxine 25mg. Test after 7 weeks showed TSH had dropped to 6.8 and T4 was 17. I had started to feel so much better. My energy crashes which led to me being bed bound for days on end were happening alot less often. I took my kids on holiday for 4 nights an hour away in June and I coped so well. I only felt crash like on the last day. So things improved. I asked for another month on 25mg, my choice as I was feeling well.
In the last 4 weeks I have been struggling again. I put it down to the summer holidays, kids home and doing alot more at home. Cleaning and cooking Last 2 weeks if I over do things i crash alot. 2 weekends ago I felt so ill. My legs were so very weak, my thighs felt they were burning. I felt off balance again like last year, exhausted and just a general drained feeling. For the first time in 8 months I asked the GP to come and see me. Right now since being this ill I have also had a relapse in anxiety and agoraphobia, due to spending so much time at home. He came out, said it did seem I had CFS which I have had suggested to me before. I was attacked by my brother 4 years ago and have had PTSD which led to me becoming very anxious and in turn chronically fatigued so they think I have had CFS. He said he would leave me a blood form and said he would test me for anaemia?? I said I am not anaemic, I never have been. He said maybe i had a virus but no it was an almighty crash i know what they feel like.
I picked up the blood form and he wanted to test for glanudlar fever, lupus and other autoimmune disorders, blood film, fbc, diabetes tests...... I right now struggle to do appointments and find blood tests VERY difficult because last September when i was really poorly and getting no answers from the GP and i was saying this is my thyroid, but noone listened, my GP kept dragging me in for more bloods. I had a terrible panic attack having blood taken 11 months back and since then I just hate bloods and am terrified of going back. I have a mental block now, it would never have happened if he hadn't have dragged me out to test for diabetes when i was already feeling so weak and unwell. Which was normal. Since then my agoraphobia crept up again. I was far too ill to go that day. I told my husband I will face blood tests and appointments again when I am well enough to cope, being this poorly my anxiety has taken a huge blow. I guess that makes me sound a bit weird but right now taking my children out in the car causes me anxiety, I rarely do shops due to how ill I have felt this last year but I had started getting out much more until this latest set back. When i feel well my anxiety is much better.
So my results today I have had done private show my TSH has climbed again by a point and T4 has dropped too. So am i right to think this could be why I am crashing in energy again and having to pace myself so much? I wasn't as ill a month ago, I was definitely improving with the thyroxine, now suddenly taken a huge set back and my anxiety has increased with it too. (photo of todays results attached to this post).
I have forwarded my results to my GP and he is calling me tomorrow. He will insist on the 50mg which I will agree to of course. I am just wondering am I likely to have side effects doubling my dose?
Also would you say I don't need to force myself to do these further bloods my GP is requesting? I had a thorough blood test done private with thyroid in July which showed my B12 had gone up to 1070, ferritin up to 49. They were both so low previously. Folate is good, Vitamin D was about 70. CRP was 1.6. All really good. My thyroid antibodies were normal too.
I felt sad today when I saw my results but hopefully 50mg will do the trick and I will improve again. I have been ill for over a year now, last spring i had the worst fatigue and by November I was so weak I couldn't do anything at home. I am now able to cook, clean, shower but I have to pace myself or I crash badly and feel terrible weak and poorly. The main symptom for me has always been the chronic fatigue and weak legs. Is this normal with an underactive thyroid if my TSH is only about 8? Then again over the winter it was 6-7 and I was so ill. I just wonder can this just be an underactive thyroid I am dealing with or does it also sound like CFS with how I crash and have to pace myself?