Sorry to post im just struggling and dont know where to turn. I'm 3 weeks into an increase of thyroxine. My tsh came down to 2.6 and ft4 around 18.9. Ft3 5, in November. I was told to stay at the 50mg dose for 3 months. I tested a few weeks earlier than 3 months as I felt unwell again. Tsh had jumped up to 5.7, ft4 17.4 and ft3 5.0, Gp increased levo dose to 75mg. I've been taking it every morning for 3 weeks. I thought I felt a little better last week as my fatigue lifted slightly, I felt less anxious and less weak but the last few days I've had bad fatigue again, leg weakness and feeling off balance. I haven't crashed for 2 months but I crashed so bad yesterday with fatigue and weakness I had to spend the day in bed. I cried all day worried why I felt so bad. It made my anxiety race. All I'd done the day before was take my kids to the park and 1 shop. Can thyroid cayse these crashes and daily fatigue, weak thighs, anxiety, depression, woozy foggy head and sometimes feel I'm walking on a boat. These have been my symptoms for over a year now.
I've been on thyroxine since may last year and I went on it after a battle with the gp when my tsh went from 6.8 to 9.28 fast last January to May in a range of 0.2-4.2. I was having huge energy crashes if I did housework, took the kids to a park or a shop, socially seeing people would land me in bed for days. I still have fatigue every single day and have to pace but crashes aren't as often. Then yesterday I had a bad crash, my anxiety was very high with it. I've been anxious since, upset stomach, heart rate up a bit.... too much info but I'm on my period the last 2 days and for the first time in 5 months it's a proper flow. I'm on the pill loestrin 20 for heavy periods, I've been on it 4 years and my gp doesn't think it's a good idea to come off it yet until I'm stronger with the fatigue and my ferritin goes up.
I've spoken to my gp today. He isn't too concerned about the saliva cortisol test i did in January, he said it's only slightly elevated but said repeat in 2 months and we will go from there. I was concerned about the evening result at 10pm as that was 7 and range onlying entry up to 3.8. He thinks it's due to constant stress I'm under with the anxiety. He suggested a referral to endo to get cushings ruled out if I wanted it for peace of mind, I said no lol. Right now I'm so agoraphobic and anxious I couldn't do it
I told him I crashed yesterday, he wanted to come and see me to check me over but I refused because he just comes with a needle running more and more tests and it's what's caused me so much anxiety this last year. I've been honest and told him. My therapist has even said hea a huge cause of my anxiety because on my fatigued weak days I shouldn't be so anxious. She said you should be able to say I know it's my thyroid and chronic fatigue it's caused but she said you can't because he keeps wanting to run more tests to find another cause. I'm hoping the crash has been due to hormones and a heavy period. Am I wrong refusing a gp visit? He saw me early November, ran a huge list of bloods, as long as my arm and all ok (fbc, ferritin (needs increasing from 34 but it's always been low, folate, b12, hba1c; glucose, kidney and liver function, glandular fever, nuclear antibodies, blood films, creatine kinase... all ok other than ferritin still needs to increase. My sodium was low at 129 but repeated and it was 138. Potassium was 3.4 and range is 3.5-4.6. It's always been 3.5 so he wasn't concerned but would want to repeat it at some point soon. Random glucose was 8.9 but hba1c was good at 35 but he wants another hba1c soon to double check. Yet he still wants to do them all over again. He keeps saying he's concerned about my level of fatigue and keeps chasing me with a needle which causes anxiety so now I've become anxious even about him coming to see me. He does home visits for me this last year. Am I letting my anxiety stop me getting medical help? He seemed concerned I crashed yesterday but I'm praying it was a one off. My hubby says I've seen him 4 times in the last year and he's run an MOT of bloods twice. I've not neglected myself. I fought to have my thyroid treated when gp were saying I was fine as I didn't have antibodies. Still feeling so fatigued and weak daily, and sometimes quite ill I'm worried was it my thyroid all along and was I right to fight for thyroxine. First thyroid results was August 2015 when tsh was 5.35 in and range of 0.35-5.5 and ft4 10.2 (7-17l then in the January last year 6.8 (0.2-4.2), ft4 14 (12-22) then by may 9.28 and ft4 had gone up to about 15. Ft3 always around 5.3. I finally got thyroxine.
How soon should I re test thyroid? Gp said 3 months initially and I said no idea at her wait 8 weeks and re test. My concern is I could go over active as my ft4 in a range of 12-22 is 17.4. I know there's plenty of room but with just how anxious and unwell I've felt the last few days I'm not sure if I should test before the 8 weeks or will that be too soon for an increase?
I am just at the stage where my life is getting me down and I'very been diagnosed with depression. I'm a mum to 3 children, I cry daily I'm letting them down. I've had a tough 4 years since my attack and family cut me off, I've then become ill this last 16 months and been coping with it alone, other than hubby who is fab but he works full time. My anxiety and agoraphobia hit worse than 4 years ago after my brother attacked me. Id just got my life back after the PTSD it caused and was living again. I have to rely on hubby to take the kids to appointments or anything social. I do the school run, cook, tidy the house, i walk my dog recently again which is great.... I can't go to shops unless with hubby and then it's just small ones. My anxiety has become so high this last year I just stay at home because I'm too weak and fatigued to do anything. I crash if I do too much. I managed a few big days out last year and a caravan holiday in the summer an hour away. I plan to do that again this summer all being well but my anxiety is so severe the last 2 months since my gp keeps wanting to run more tests and having agoraphobia again it's limited my life and I'm terrified of more tests incase I end up in hospital. He keeps saying this MOT is definitive then wants to repeat it 3 months later. I'm exhausted with it all and he's made me even doubt I ever had a thyroid problem and I'm worried now if a year on this fatigue and weakness isn't thyroid then is it too late, whatever it is. I cried most of the weekend to myself worried incase I'm dying and awful images in my mind of leaving my children and not seeing the year out. Last year I kept telling him I was fatigued and crashing and he just blamed moodn anxiety etc... now suddenly a year on his poking and prodding all the time and making me an anxious wreck.
Sorry to offload. I feel so alone with it all at times. My therapist says my gp has caused all my anxiety as he's never firmly said this is your thyroid or this is depression or whatever. He wasbt concerned about the fatigue last year but now suddenly he's being very over cautious and makes me very anxious. I've done the tests he wants, now he wants to do them all again anxious and ever me to a general medical doctor at the hospital for him to run all the same tests and then he said if they're clear you'll be diagnosed with cfs if thyroid in range and you still feel so fatigued and weak. My heads all over the place.