Ok quick recap. Many of you will know my situation.
Symptoms sinxe last summer of fatigue, feeling cold alot mainly if it is cold but I feel it b more so than others, general lethargy and anxiety. Gp ran tests in August and told me i was fine.
August 2015
TSH 5.35 (0.35-5.5)
FT4 11 (7-17)
B12 was 212 and ferritin 15. Both I supplemented myself and are now up to 477 and 34. Climbing slowly. Gp said b12 was fine when it was 212 so I self supplemented. He treated ferritin but it'd been low for many years.
I then in January went private as I became more exhausted and suffering from stress with my sons health suffering. My gp ran bloods again but tool them at 1.30pm at my house so not fasted. Tsh was 2.92 and ft4 10.2.
January 2016 Blue Horizon test.
TSH 6.54 (0.27-4.2)
FT4 14.2 (12-22)
FT3 5.8
Antibodies normAl.
Blue horizon test March 2016.
TSH 7.51 (0.27-4.2)
FT4 15.8 (12.22)
FT3 5.3
Antibodies normAl.
I spoke to my gp this week. He read my latest results and said in just 7 weeks that was quite a change from my January result. I asked why ft4 was climbing and tsh because normally t4 drops with hypothyroidism. He said it's obvious the thyroid is struggling for tsh to be climbing so quickly and ft4 is working hard to keep producing thyroxine at the fats rate the tsh is demanding it. He said eventually that ft4 will drop as the thyroid fails. I said right ok it made sense. So he said i on my have to wait 4 weeks to have a re test and if that tsh has even gone up a tiny amount he will start me on thyroxine. He said it was obvious with how bad my fatigue is there is a problem.
I told him I have crash days often. I'm tired daily and feel weak. Taking care of 3 children and my home is a challenge. Last week I had some energy so I hoovered and mopped 3 times that week and took the kids on a day out and had a 4 day crash. No energy and felt very ill. He said it sounds very like cfs but more likely my thyroid is causing this body weakness and fatigue. He said do 1 more test then he has a case to say there's a trend, family history and he can go against the guidelines of waiting until tsh hits 10. About time.
He said to have the bloods done at the surgery in 4 weeks. He's accepting the bh results but said to save me money go for an NHS test. Thing is I've suffered anxiety and agoraphobia since being unwell and appointments especially blood tests I find very tough. I had a huge panic attack there last winter when I was fatigued and weak and having blood taken. Mental block right now I guess. So will doing a blur horizon finger prick one be ok? He will accept it but are they definitely reliable and accurate?
Thank you all for your support. It's been a long road to get a gp to listen. I last saw him in January and he was saying anxiety was why I was tired and I kept telling him I'm on my anxious because I feel so ill and no one's telling me why!!!
Last time I posted a few weeks ago with my recent results mamy of you replied saying with a rising ft4 it was more likely my adrenals and stress causing this. I thought it could be as I've just come through a stressful time. I am very confused by the rising ft4 but I hope my gp knows what he's talking about before putting me on thyroxine.
Thanks again.
Julie