The reason I ask is my GP rang me today regarding my recent blood results. My TSH hit 9.28 last May, Ft4 was 14 and Ft3 was 5.3. I was put on 25mg of thyroxine. It came down somewhat by July. In September I started 50mg of thyroxine and by November my TSH was 2.6,, FT4 was 19 and Ft3 5. All pretty good and my crippling fatigue was getting a little better. Then last month I had a tough month with an anxiety setback due to some stress. My fatigue and weakness hit hard again very much like how I felt for the first 6 months of last year before thyroxine. I had a thyroid test last week and my TSH was 5.7, Ft4 17 and FT3 5.0.
My GP rang today and he has now worried me and made my anxiety worse. He has also made me feel like I am not this fatigued due to my thyroid as it's not even that bad at a TSH of 5.7. I felt so unwell last year, I spent months almost crawling around my house, weak legs, feeling cold, drained and I had energy crashes that hit if I went out and did too much or if I over did the housework I'd end up in bed for a day or 2 with weakness and bad fatigue. Awful. The crashes had lessened but recently are happening again. They hit if we have visitors I end up bed ridden. They hit if I even just take my children to the park, I will feel so weak and ill for a good 24 hours after. It's horrible and this last year has made me very anxious and agoraphobic.
I explained to my GP today on the phone that I'd had chronic fatigue for a year, which he already knew but he didn't realise it had been daily for a year, do they ever listen?? The thing is I gave up seeing him for 7 months last year and battled on myself. When I saw him in November I told him I'd had chronic fatigue all year and that was why he ran that mountain of tests. He did full bloods, folate, b12, blood film, ferritin, liver function, kidney function. ceratine kinase, nuclear antibodies, random sugar, hba1c, glandular fever... he ran loads and all ok other than sodium which soon corrected itself. Potassium was 3.4 and range starts at 3.5 but they weren't concerned. Then today he said random sugar was 8.9 so he wants to monitor my HBA1C every 3 months even though that at 35 showed I didn't have diabetes. He has now concerned me why he wants to re test it, he said high sugar can cause fatigue so he wants to monitor me as 8.9 was high. He is implying the faitgue is due to high sugar I have. I feel he isn't taking me serious or believing that thyroid can cause chronic fatigue. I feel I am going into another year of tests that show nothing and are putting me through more and more anxiety. I thought after that mountain of tests in November he would accept it was thyroid and stop making me have more and more tests. He said after 2 weeks on 75mg of thyroxine which I increase as of tomorrow, he wants to see me to do more tests and examinations???? He said if my energy levels don't pick up after 2 weeks he will be concerned, that raised my anxiety even higher. It's no wonder i am an anxious wreck this last year. I have had chronic fatigue for a whole year and noone will confirm it's just the thyroid and I keep being poked and prodded.
So after that ramble, how unwell did you feel and how high was your TSH/FT4? My GP seems to think a TSH of 5.7 even thought it's more than doubled what it was in November, can't be causing my chronic fatigue. I am just curious because my GP has made me feel like I am either making this up or he is convinced something else is causing this.