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Neupro
Good morning all. This week the doc prescribed Neupro for Mike. It's a patch that's changed once a day and may help with rigidity. Wondering if anyone has experience with it? Thought I'd share a pic from our recent trip to FL. It was a struggle but ocean/beach made up for a lot.
Good morning all. This week the doc prescribed Neupro for Mike. It's a patch that's changed once a day and may help with rigidity. Wondering if anyone has experience with it? Thought I'd share a pic from our recent trip to FL. It was a struggle but ocean/beach made up for a lot.
Flemingc
in
PSP Association
7 years ago
Cerebellar syndrome
Was diagnosed with this ten years ago. Viral based cerebellitis, would recover in a year. It didn't. Has got worse over time, and then because of poor balance, had a fall and broke right hip and right shoulder. November 2015. Struggling to avoid becoming bedridden at all costs. Trying to get 1. Proper
Was diagnosed with this ten years ago. Viral based cerebellitis, would recover in a year. It didn't. Has got worse over time, and then because of poor balance, had a fall and broke right hip and right shoulder. November 2015. Struggling to avoid becoming bedridden at all costs. Trying to get 1. Proper
Senoja
in
Ataxia UK
7 years ago
Delusions?
My guy has had PSP for about 5 years. He was dx just a year ago. He is now having very painful delusions about me being unfaithful. I have tried everything to prove it's not true. In addition, he has raised his arm several times as if he were going to hit me. Has anyone else experienced either of these
My guy has had PSP for about 5 years. He was dx just a year ago. He is now having very painful delusions about me being unfaithful. I have tried everything to prove it's not true. In addition, he has raised his arm several times as if he were going to hit me. Has anyone else experienced either of these
Dicampbell
in
PSP Association
7 years ago
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Tinnitus v deafness
Folks, There has been times that I have prayed for deafness in my left hear. I have both T and hyperacusis in that ear. Just T in my right ear. I have heard of anecdotal stories where people have had the hearing part of the ear removed rather than listening to the T. I have also heard of anecdotal
Folks, There has been times that I have prayed for deafness in my left hear. I have both T and hyperacusis in that ear. Just T in my right ear. I have heard of anecdotal stories where people have had the hearing part of the ear removed rather than listening to the T. I have also heard of anecdotal
ade-the-pade
in
British Tinnitus Association
7 years ago
Tramadol for Mollie
Mollie the Collie is my beautiful 2 year old..Collie! Diagnosed with hip dysplasia a few months ago she has been receiving medicines which help rebuild the callagen around the joint. From time to time her hip obviously causes her much pain but being the breed she is will not admit it. Vet today put
Mollie the Collie is my beautiful 2 year old..Collie! Diagnosed with hip dysplasia a few months ago she has been receiving medicines which help rebuild the callagen around the joint. From time to time her hip obviously causes her much pain but being the breed she is will not admit it. Vet today put
Bananas5
in
Pain Concern
7 years ago
Relpax and joint damage
Hello I'm 46, female, i have suffered from migraines since i was 10. I have used Relpax 40mg for the last 10 years. In the last years i've noticed after i use Relpax i have some pain in my joints, could be my fingers, knees, ankles... i asked to my primary care doctor and she said that was impossible
Hello I'm 46, female, i have suffered from migraines since i was 10. I have used Relpax 40mg for the last 10 years. In the last years i've noticed after i use Relpax i have some pain in my joints, could be my fingers, knees, ankles... i asked to my primary care doctor and she said that was impossible
anysosa
in
National Migraine Centre
7 years ago
How to cope with negative thoughts
This is a very long article about how to manage stressful thoughts. Many here write about how hopless they are, and how useless they feel. The article is written by Bruce Campbell, and it was meant for patients with fibromyalgia, but I think it can work for PMR and GCA too. http://www.cfidsselfhelp.org
This is a very long article about how to manage stressful thoughts. Many here write about how hopless they are, and how useless they feel. The article is written by Bruce Campbell, and it was meant for patients with fibromyalgia, but I think it can work for PMR and GCA too. http://www.cfidsselfhelp.org
Bittebitt
in
PMRGCAuk
7 years ago
Campaign ITT petition - make your voice count and have your say to improve thyroid treatment
https://tinyurl.com/y7rexgvw This is a Change.org petition for improving thyroid treatment started by our own Kitti1 . The current guidelines are failing people; you, your loved ones and friends. This forum all too clearly illustrates the many reasons how and why; from poor diagnosis to poor testing
https://tinyurl.com/y7rexgvw This is a Change.org petition for improving thyroid treatment started by our own Kitti1 . The current guidelines are failing people; you, your loved ones and friends. This forum all too clearly illustrates the many reasons how and why; from poor diagnosis to poor testing
Hidden
in
Thyroid UK
7 years ago
Is a barium swallow safe?
Ive been diagnosed with a couple of automimmune conditions this year. But, not satisfied with that, the consultant is still looking at the possibility of scleroderma and so wants to do a barium swallow. But Im a bit worried about the safety issues. I know that there is radiation and it is inside you
Ive been diagnosed with a couple of automimmune conditions this year. But, not satisfied with that, the consultant is still looking at the possibility of scleroderma and so wants to do a barium swallow. But Im a bit worried about the safety issues. I know that there is radiation and it is inside you
charlieab
in
Scleroderma & Raynaud's UK (SRUK)
7 years ago
Idiopathic Neuropathy
I first started with this condition over 10 years ago, it has over the years progressed to the point that I can only walk small distance, but by far the worst aspect is my totally loss of balance, which dramatically affects the forward momentum of walking, and even standing still need something for support
I first started with this condition over 10 years ago, it has over the years progressed to the point that I can only walk small distance, but by far the worst aspect is my totally loss of balance, which dramatically affects the forward momentum of walking, and even standing still need something for support
patjess
in
Pain Concern
7 years ago
Dentist
Morning all, Well I'm off to the dreaded dentist today for this broken tooth fixed. Between my TMJ and fibromyalgia with anxiety in the mix I'm not looking forward to it! Thankfully my sister is coming with me. I'm hoping for no adverse reaction to the injection this time. Hope everyone one is as well
Morning all, Well I'm off to the dreaded dentist today for this broken tooth fixed. Between my TMJ and fibromyalgia with anxiety in the mix I'm not looking forward to it! Thankfully my sister is coming with me. I'm hoping for no adverse reaction to the injection this time. Hope everyone one is as well
gail76
in
Fibromyalgia Action UK
7 years ago
Wheelchairs
I am becoming increasingly unsteady, even with my husbands support, when we go out and I am afraid of falling due to my ataxia; especially if he has to go off for a minute and there's nowhere to sit down. At such times I rely on a walking stick to maintain my balance but it's scary. So the time has come
I am becoming increasingly unsteady, even with my husbands support, when we go out and I am afraid of falling due to my ataxia; especially if he has to go off for a minute and there's nowhere to sit down. At such times I rely on a walking stick to maintain my balance but it's scary. So the time has come
SharonPS
in
Ataxia UK
7 years ago
Feeling Guilty
My Husband was diagnosed with Picks Disease 9 months ago. I am still working full time and feel so guilty about it. I blame me for him talking to himself due to him being on his own. I cant afford to stop working due to husband not working for years due to lots of other health issues. Crohns Disease.
My Husband was diagnosed with Picks Disease 9 months ago. I am still working full time and feel so guilty about it. I blame me for him talking to himself due to him being on his own. I cant afford to stop working due to husband not working for years due to lots of other health issues. Crohns Disease.
Lovethesun
in
Care Community
7 years ago
Help MRI referral and scared 😢
Not sure who to ask or even if this is the right group but I know how kind you all are so need your advice! Sorry for the length of this but if I explain it might help I hope. I'm probably panicking as I know my body is not well and after 19 months I'm getting scared. I have confirmed Hashimotos and
Not sure who to ask or even if this is the right group but I know how kind you all are so need your advice! Sorry for the length of this but if I explain it might help I hope. I'm probably panicking as I know my body is not well and after 19 months I'm getting scared. I have confirmed Hashimotos and
MissFG
in
LUPUS UK
7 years ago
Restoractive yoga
I have been diagnosed with post thoracotomy pain syndrome and intercostal neuralgia. I am constantly in pain, my therapist advised me to try restorative yoga. It is gentle form of exercise that stretches dyfunctional or damaged muscles. It prioritizes on stillness, calmness and deep breathing. It does
I have been diagnosed with post thoracotomy pain syndrome and intercostal neuralgia. I am constantly in pain, my therapist advised me to try restorative yoga. It is gentle form of exercise that stretches dyfunctional or damaged muscles. It prioritizes on stillness, calmness and deep breathing. It does
jaybrody
in
Pain Concern
7 years ago
Alpha lipoic acid & acetyl l-carnitine both thyroid inhibitors. How much extra NDT to add?
I started taking Alpha lipoic acid (1600mgs per day) and acetyl l-carnitine (5000mg per day) for some reasons not related to thyroid. I will be taking it for 3 months. I am already taking 1 grain of NDT per day. I heard that both ALA and carnitine can lower thyroid hormone and after a couple of days
I started taking Alpha lipoic acid (1600mgs per day) and acetyl l-carnitine (5000mg per day) for some reasons not related to thyroid. I will be taking it for 3 months. I am already taking 1 grain of NDT per day. I heard that both ALA and carnitine can lower thyroid hormone and after a couple of days
confused85
in
Thyroid UK
7 years ago
Life continues for some, while other's don't
Ok, so I've been off of here for 2 months or more dealing with my health and then having to step up from a medical standpoint to help my Mom and Dad negotiate through Hospital Inpatient stuff, Medical Terms, Medication Names and Hospice Care that was really End of Life Care, but my mom and I both agreed
Ok, so I've been off of here for 2 months or more dealing with my health and then having to step up from a medical standpoint to help my Mom and Dad negotiate through Hospital Inpatient stuff, Medical Terms, Medication Names and Hospice Care that was really End of Life Care, but my mom and I both agreed
LifeAsALupie
in
LUPUS UK
7 years ago
Painful Thyroiditis - treatment options?
For 19 months since diagnosis I've suffered with ongoing flares of painful thyroiditis including neck pain, struggling and painful swallowing, chest pain flu like symptoms & throat mucus etc. My Endo has arranged a barium swallow and I've got this Thursday - within a week which is excellent on the NHS
For 19 months since diagnosis I've suffered with ongoing flares of painful thyroiditis including neck pain, struggling and painful swallowing, chest pain flu like symptoms & throat mucus etc. My Endo has arranged a barium swallow and I've got this Thursday - within a week which is excellent on the NHS
MissFG
in
Thyroid UK
7 years ago
Lumpectomy
I have grown a big lump on top of my head this year. Today a gp squirted it with liquid nitrogen which isn't as exciting as it sounds, jolly cold though. I had read that scleroderma can increase the likelihood of solar keratosis. He said it can make you more sensitive to sunlight. I've not heard that
I have grown a big lump on top of my head this year. Today a gp squirted it with liquid nitrogen which isn't as exciting as it sounds, jolly cold though. I had read that scleroderma can increase the likelihood of solar keratosis. He said it can make you more sensitive to sunlight. I've not heard that
Inamoment
in
Scleroderma & Raynaud's UK (SRUK)
7 years ago
Provera
I've suffered from endo for what seems like forever, I've had 2 laps and about to have a 3rd in a few weeks I was put on provera just before Christmas and it's been good no periods means no pain which was great but last month I had a period lasting 3 weeks and with it massive pain the gp said likely
I've suffered from endo for what seems like forever, I've had 2 laps and about to have a 3rd in a few weeks I was put on provera just before Christmas and it's been good no periods means no pain which was great but last month I had a period lasting 3 weeks and with it massive pain the gp said likely
Wilcoxbeccy
in
Endometriosis UK
7 years ago
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