PSP Association
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Delusions?

My guy has had PSP for about 5 years. He was dx just a year ago. He is now having very painful delusions about me being unfaithful. I have tried everything to prove it's not true. In addition, he has raised his arm several times as if he were going to hit me. Has anyone else experienced either of these symptoms? He is in a NH. I see him every evening, feed him his dinner, get him ready for bed and tuck him in. He is the love of my life and it all just hurts beyond belief. I am still working as well.

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I'm sorry you are going through this. My guy sometimes didn't know me or where he was for brief periods, but he never went off like that. Several people have reported similar experiences, though. It's sadly not rare for that particular delusion to arise. Insecurity and fear are at the heart of it, I suppose.

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Dad has had several episodes where is has no idea what is going, who I am, where he is, etc. He has never been hmm threatening though, always afraid and emotional. These episodes are short in duration and usually followed by a bad headache plus tiredness.

Ron

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I have had a similar experience . It's all so heartbreaking 💛🙏

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I have also had similar experience at the beginning before he was diagnosed , not now thank god, it was very unpleasant time, sending you a big hug. Yvonne xxxx

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Delusions not caused by medications are exclusionary for PSP. Delusions are very common in Lewy Body Dementia. Many in our local LBD support group end up treating delusions with antipsychotics, despite the FDA black box warning.

You can read about non-pharmacological approaches to delusions with our webinar notes on delusions and hallucinations in LBD:

brainsupportnetwork.org/web...

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John was like that in the beginning and very aggressive verbally not so much physically. It passed after a couple of years into the total apathy he has now. Xx

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My husband started accusing me of being unfaithful 3 years before his diagnosis. Eventually I persuaded him. To go to couples therapy but by then his verbal aggression was such he frightened the counsellor!!!! As the years have progressed the accusations continue- as if I had the time or the energy togVe an affair quite frankly !!! Sadly we had two years of physical as well as verbal aggression after diagnosis but in recent years I am better at spotting the warning signs.

Xxxxx

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Good to know I am not alone. It is so sad bc I spend every available minute with him. And like you said, who would have the energy? Thanks!

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My father did this to my mother. It went on for several years and it was extremely heartbreaking, frustrating, and frightening. We did fear for my mother's life, and she was frightened also however not matter what would not break the vow she took 47+ years prior. We could not figure out where the accusations were coming from. Dad had such detailed stories of events that NEVER took place but to him they were real, we could not convince him otherwise. That was probably 10 years ago, about 2-3 years before we noticed the physical symptoms.

My mother suspected possible some type of Alzheimer at the time, as she worked in a Nursing Home for nearly 30 years and saw some of these types of things. It wasn't till about 8 years later (2 years ago) did we get the DX of PSP. We now think, these accusations may have been the first signs.

We made it through, I should say my mother made it through, the only thing my siblings and I could do at the time was try to reason with my father. We encouraged my mother to move in with one of us, which she never did, the best we got her to do was she move out of the bedroom into my old room.

This is my first post, I have been reading this site for couple months now. I felt compelled to reply as it so hard to grasp that one who is making these accusations is against you is the person you haves dedicated all your energy and every waking moment to care of.

I am so sorry you are going through this on top of everything else. My heart is breaking for you.

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What really hurts me is that it hurts him emotionally and there is nothing I can say or do. He is the love of my life. But, just last week because of this site I was able to convince his doctor to try medical marijuana (pill form, Marinol). It is more for his wait loss and doesn't state it helps with anxiety but I am praying it will take the edge off. For his sake.

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Weight loss

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