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Williams syndrome
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Update on my twin pregnancy
Not sure if anyone remembers but in November I was lucky enough to find out I was pregnant after my 5th ivf attempt, with twins. On the 14th February I found out they were both boys. Which would mean that I would have 3 gorgeous boys. In April I went into early labour at only 26 weeks pregnant. The
Not sure if anyone remembers but in November I was lucky enough to find out I was pregnant after my 5th ivf attempt, with twins. On the 14th February I found out they were both boys. Which would mean that I would have 3 gorgeous boys. In April I went into early labour at only 26 weeks pregnant. The
Bobenhams3
in
Fertility Network UK
6 years ago
Warning - 12 Week Scan - Very Thankful
Hello ladies, We had our 12 week scan on Tuesday but I wanted to wait until our Nifty results were in too before I posted - not wanting to tempt fate and all that! All chromosome conditions have come back as low risk and the scan showed that all is well with the baby. After losing our first baby to
Hello ladies, We had our 12 week scan on Tuesday but I wanted to wait until our Nifty results were in too before I posted - not wanting to tempt fate and all that! All chromosome conditions have come back as low risk and the scan showed that all is well with the baby. After losing our first baby to
precioce
in
Fertility Network UK
6 years ago
Dopamine Agonist doses - the new maximum
From Buchfuhrer, Mark J., Strategies for the Treatment of Restless Legs Syndrome; Neurotherapeutics (2012) 9:776-790 Both of these drugs should be started at their lowest dose (ropinirole at 0.25 mg and pramipexole at 0.125 mg) and increased if necessary every 5 to 7 days by their initial dose until
From Buchfuhrer, Mark J., Strategies for the Treatment of Restless Legs Syndrome; Neurotherapeutics (2012) 9:776-790 Both of these drugs should be started at their lowest dose (ropinirole at 0.25 mg and pramipexole at 0.125 mg) and increased if necessary every 5 to 7 days by their initial dose until
involuntarydancer
in
Restless Legs Syndrome
6 years ago
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Anyone else with other painful conditions?
I was diagnosed with EDS Hypermobility a few years ago. I have a partial subluxation in my neck, lordosis and generally wobbly joints. Only problem is, I've recently been told I likely have Rheumatic Fever. I'm waiting to see an infectious disease specialist and cardiologist. The thing is, I never
I was diagnosed with EDS Hypermobility a few years ago. I have a partial subluxation in my neck, lordosis and generally wobbly joints. Only problem is, I've recently been told I likely have Rheumatic Fever. I'm waiting to see an infectious disease specialist and cardiologist. The thing is, I never
lily82
in
Ehlers-Danlos Support UK
6 years ago
Help to find a nottingham rheumatologist with EDS interest
Hi there ,Im 24 and have been looking for a EDS specialist rheumatologist in Nottingham so that the type of my EDS can be fully determined . I was wondering if anyone has any advice on a specific Rheumatologist local to my area. I'm finding it hard to cope with daily life at this point in time my back
Hi there ,Im 24 and have been looking for a EDS specialist rheumatologist in Nottingham so that the type of my EDS can be fully determined . I was wondering if anyone has any advice on a specific Rheumatologist local to my area. I'm finding it hard to cope with daily life at this point in time my back
Daniellak
in
Ehlers-Danlos Support UK
6 years ago
Just curious
After many, many hours and days on end without sleep, I finally found a certified sleep medicine physician that really listened to me. Here is the drug regime he put me on: 1 neupro patch every 24 hrs. plus Horizant with the patch. Somehow they work together. Clonazepam (1 1mg tablet 3 times a day)
After many, many hours and days on end without sleep, I finally found a certified sleep medicine physician that really listened to me. Here is the drug regime he put me on: 1 neupro patch every 24 hrs. plus Horizant with the patch. Somehow they work together. Clonazepam (1 1mg tablet 3 times a day)
Keitha
in
Restless Legs Syndrome
6 years ago
Child with HEDS
My 13 year old daughter has EDS, very hypermobile, suffers from headaches, aches and pains, partial joint dislocations, food allergies, low blood pressure/dizzy spells (probably undiagnosed POTS). She also has long slender fingers (she is average height and and looks normal) bruises easily, stretchy
My 13 year old daughter has EDS, very hypermobile, suffers from headaches, aches and pains, partial joint dislocations, food allergies, low blood pressure/dizzy spells (probably undiagnosed POTS). She also has long slender fingers (she is average height and and looks normal) bruises easily, stretchy
bex68
in
Ehlers-Danlos Support UK
6 years ago
Blood test
Hi all. Good morning, just wondering if any of you have had blood results of Connective Tissue Disease & what did your consultants say about the findings? My docs think Sjogren's & Lupus disease, but it's early days. Look forward to hearing from you x
Hi all. Good morning, just wondering if any of you have had blood results of Connective Tissue Disease & what did your consultants say about the findings? My docs think Sjogren's & Lupus disease, but it's early days. Look forward to hearing from you x
Angellealea1
in
LUPUS UK
6 years ago
What blood tests do i need?
I was diagnosed with post partum Thyroiditis and would like to know which blood tests I need to get checked tomorrow. Thanks!
I was diagnosed with post partum Thyroiditis and would like to know which blood tests I need to get checked tomorrow. Thanks!
Wgriffy
in
Thyroid UK
6 years ago
Reassuring all the ladies with zero symptoms
Currently 8 weeks and 4 days pregnant with zero symptoms. Up until a week ago the only symptom I had was ever so slightly sore boobs off and on every few days and now nothing. I’m having scans every 5 days or so because of my history but baby is looking good with a strong heartbeat. After 6 pregnancy
Currently 8 weeks and 4 days pregnant with zero symptoms. Up until a week ago the only symptom I had was ever so slightly sore boobs off and on every few days and now nothing. I’m having scans every 5 days or so because of my history but baby is looking good with a strong heartbeat. After 6 pregnancy
Hidden
in
Fertility Network UK
6 years ago
Relapsing polychondritis
Hello, everyone. I was diagnosed with MPA ten years ago and have recently had a nasty flare which has been treated with Rituximab but this time does not seem to be working too well. I have had a very inflamed outer ear ( the pinna) which has been itchy and developed nodules along the edge of it. Did
Hello, everyone. I was diagnosed with MPA ten years ago and have recently had a nasty flare which has been treated with Rituximab but this time does not seem to be working too well. I have had a very inflamed outer ear ( the pinna) which has been itchy and developed nodules along the edge of it. Did
trebar
in
Vasculitis UK
6 years ago
Follow up appointment
Hi all you lovelies. I have my first follow up appointment with my clinic following my miscarriage this week. Just wondering what u think I could expect and what questions u feel I could ask maybe? Am fortunate (in some ways) that I have had one period and have ovulated since so hopefully that good
Hi all you lovelies. I have my first follow up appointment with my clinic following my miscarriage this week. Just wondering what u think I could expect and what questions u feel I could ask maybe? Am fortunate (in some ways) that I have had one period and have ovulated since so hopefully that good
Dreamingofbaby
in
Fertility Network UK
6 years ago
CBD oil
Hello all, Does anyone have any advice about which CBD oil to use? I went onto the CBD brothers site but there is a bewildering variety of products. I am currently on Lyrica and Tramadol having just come off the Neupro patch. This is helping but not 100%. I live in France but at the moment am in England
Hello all, Does anyone have any advice about which CBD oil to use? I went onto the CBD brothers site but there is a bewildering variety of products. I am currently on Lyrica and Tramadol having just come off the Neupro patch. This is helping but not 100%. I live in France but at the moment am in England
macewan13
in
Restless Legs Syndrome
6 years ago
No response to Clomid
Hey all, I am on a Clomid treatment due to anovulation (1.5 years!). In the beginning I had hope that this would solve my problem, but my body does not respond to this at all. I am already on an increased dose - without any success. I am so scared that my body will not produce any eggs at all, no matter
Hey all, I am on a Clomid treatment due to anovulation (1.5 years!). In the beginning I had hope that this would solve my problem, but my body does not respond to this at all. I am already on an increased dose - without any success. I am so scared that my body will not produce any eggs at all, no matter
sarahharas
in
Fertility Network UK
6 years ago
Sjorgens symptoms
Hi Im awaiting a lip biopsy testing for Sjorgen’s. I have all of the symptoms but blood test negative . I had a period of feeling well for about 10-12 days recently and noticed that my dry also improved (unfortunately this didn’t last and I’m feel unwell again and all symptoms have returned ) I suppose
Hi Im awaiting a lip biopsy testing for Sjorgen’s. I have all of the symptoms but blood test negative . I had a period of feeling well for about 10-12 days recently and noticed that my dry also improved (unfortunately this didn’t last and I’m feel unwell again and all symptoms have returned ) I suppose
Angelamarston1963
in
LUPUS UK
6 years ago
W4 done! Undecided about how glad I am about that.
Hot day today.  Mark it in your diary folks...a bank holiday without rain. So I got up really early to get my final week 4 run done before the heat of the day. Bleary eyed, I turned off my 10am alarm (that is early for a bank holiday right?), donned my shorts, running bra and calf stockings. And headed
Hot day today.  Mark it in your diary folks...a bank holiday without rain. So I got up really early to get my final week 4 run done before the heat of the day. Bleary eyed, I turned off my 10am alarm (that is early for a bank holiday right?), donned my shorts, running bra and calf stockings. And headed
Marvo69
Graduate
in
Couch to 5K
6 years ago
Oxycodone/Naloxone
My husband’s restless legs became severe about 2 months ago. He tried changing diet and several drugs- most recently the Neupro patch which offered some relief. He just had open heart surgery to repair a valve. For several days after surgery there was no restless leg. Now it has come back. I believe
My husband’s restless legs became severe about 2 months ago. He tried changing diet and several drugs- most recently the Neupro patch which offered some relief. He just had open heart surgery to repair a valve. For several days after surgery there was no restless leg. Now it has come back. I believe
texdeb6989
in
Restless Legs Syndrome
6 years ago
Lyrica?
I wrote a post recently about my severe rls. I visited my gp today and she wanted me to try this drug called lyrica (or pregabalin). I'm very anxious about trying this new medication (to me, it's always scary trying new drugs!). I'm hoping to hear if it has helped others with rls and fibromyalgia (for
I wrote a post recently about my severe rls. I visited my gp today and she wanted me to try this drug called lyrica (or pregabalin). I'm very anxious about trying this new medication (to me, it's always scary trying new drugs!). I'm hoping to hear if it has helped others with rls and fibromyalgia (for
mariannabelle
in
Restless Legs Syndrome
6 years ago
Second time applying for pip
hi guys, not sure if anyone can help me or not or just give me a bit of advice, basically i have suffered with mental health issues for a number of years now, depression, anxiety and borderline personality disorder. i was most recently diagnosed with fybromyalgia and awaiting a pain managment course
hi guys, not sure if anyone can help me or not or just give me a bit of advice, basically i have suffered with mental health issues for a number of years now, depression, anxiety and borderline personality disorder. i was most recently diagnosed with fybromyalgia and awaiting a pain managment course
keelie94
in
Fibromyalgia Action UK
6 years ago
Petition: Provide funding for biomedical research into Myalgic Encephalomyelitis (ME & CFS)
Myalgic Encephalomyelitis (ME) often referred to as Chronic Fatigue Syndrome (CFS) a debilitating chronic neuroimmune disease worsen after even minimal physical, emotional or mental activity causing many symptoms of which the main two are chronic pain and severe fatigue.It is estimated that 7 million
Myalgic Encephalomyelitis (ME) often referred to as Chronic Fatigue Syndrome (CFS) a debilitating chronic neuroimmune disease worsen after even minimal physical, emotional or mental activity causing many symptoms of which the main two are chronic pain and severe fatigue.It is estimated that 7 million
Admin_AFMCG
Administrator
in
Andover Fibromyalgia & ME Community Group
6 years ago
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