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UK RLS sufferers this is for you.
This week I received an Email from Professor David Nutt also from our Manerva ;] Buprenorphine in the form of TEMGESIC 200mcg is available from your GP also I suspect Norspan patches which is buprenorphine dosing starting at 5mg. Buprenorphine is a very superior drug it hangs onto very few receptors
This week I received an Email from Professor David Nutt also from our Manerva ;] Buprenorphine in the form of TEMGESIC 200mcg is available from your GP also I suspect Norspan patches which is buprenorphine dosing starting at 5mg. Buprenorphine is a very superior drug it hangs onto very few receptors
Shumbah
in
Restless Legs Syndrome
4 years ago
Has anyone augmented on Tramadol
I’ve read that augmentation on Tramadol is rare but I think I may be augmenting already. Did so on Recuip after about 8 months now after only 2 months same appears to be happening on Tramadol. I was so happy thinking I found something to help me. 50mg Tramadol and some THC Edibles and I was doing pretty
I’ve read that augmentation on Tramadol is rare but I think I may be augmenting already. Did so on Recuip after about 8 months now after only 2 months same appears to be happening on Tramadol. I was so happy thinking I found something to help me. 50mg Tramadol and some THC Edibles and I was doing pretty
mmb8083
in
Restless Legs Syndrome
4 years ago
Should I be taking this.
Hi everyone I’ve had loads of advice from this site and I’m still seeking it. I’ll give you a quick synopsis of what I’ve been going through and where I am now. I have had RLS what seems like forever. I took Ropinirole for 10 years, went through augmentation, developed a gambling problem and managed
Hi everyone I’ve had loads of advice from this site and I’m still seeking it. I’ll give you a quick synopsis of what I’ve been going through and where I am now. I have had RLS what seems like forever. I took Ropinirole for 10 years, went through augmentation, developed a gambling problem and managed
Scattypatty
in
Restless Legs Syndrome
4 years ago
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Increase in steroids?
I have upped my steroids from 2 to 3 with Docs permission. Now I am thinking of taking a bit more ! My John is now terminal with metastasised lung cancer to the brain and now spine. He is in a hospice for pain relief but I think when that is sorted he will have to leave. I would like him to come home
I have upped my steroids from 2 to 3 with Docs permission. Now I am thinking of taking a bit more ! My John is now terminal with metastasised lung cancer to the brain and now spine. He is in a hospice for pain relief but I think when that is sorted he will have to leave. I would like him to come home
5lupins
in
PMRGCAuk
4 years ago
TREATMENT ADD-ONS WEBINAR
Thursday 27th August, 5pm Stuart Lavery is a consultant gynaecologist at the Hammersmith Hospital and a senior lecturer at Imperial College in London. He has been an NHS consultant for 18 years, and also works in the private sector in Harley Street. His main research interests are IVF and fertility
Thursday 27th August, 5pm Stuart Lavery is a consultant gynaecologist at the Hammersmith Hospital and a senior lecturer at Imperial College in London. He has been an NHS consultant for 18 years, and also works in the private sector in Harley Street. His main research interests are IVF and fertility
DianeArnold
Administrator
in
Fertility Network UK
4 years ago
Update to current status
Hi everyone, Since joining this group I have learned a great deal about this debilitating condition that has been a part of my life for the best part of 20 years- thanks to all contributors. As an update, I thought I would share my current status. I was on 2mg’s ropinirole with very variable results
Hi everyone, Since joining this group I have learned a great deal about this debilitating condition that has been a part of my life for the best part of 20 years- thanks to all contributors. As an update, I thought I would share my current status. I was on 2mg’s ropinirole with very variable results
Earlyriser13
in
Restless Legs Syndrome
4 years ago
Ultrasound on salivary glands to check for Sjogren's
[i]I am based in the UK - and have had a negative blood test for Sjogren's - but have been offered an ultrasound scan of my salivary glands. Just wondered if anyone has been diagnosed this way. I am extremely grateful I have been offered this as I know some people hit a brick wall when bloods come back
[i]I am based in the UK - and have had a negative blood test for Sjogren's - but have been offered an ultrasound scan of my salivary glands. Just wondered if anyone has been diagnosed this way. I am extremely grateful I have been offered this as I know some people hit a brick wall when bloods come back
meggiemog
in
The Australian Sjögren's Syndrome Association
4 years ago
Is saliva testing better? Five things to know about the new COVID-19 test.
Early in the pandemic, it became clear that testing for COVID-19 might be key to controlling outbreaks. But the existing tests have presented logistical challenges. Health officials have been clamoring for a cheaper, easier, and quicker test that would boost the country’s testing capability, which is
Early in the pandemic, it became clear that testing for COVID-19 might be key to controlling outbreaks. But the existing tests have presented logistical challenges. Health officials have been clamoring for a cheaper, easier, and quicker test that would boost the country’s testing capability, which is
2greys
in
Lung Conditions Community Forum
4 years ago
14 week old with restless legs
Hi all. I'm hoping somebody might be able to help me on this. I have a 14 week old and for the past two months,she has been waking at around 4am and cycling her legs back and forth. It seems that she gets woke up,tries to go back to sleep and can't and the legs start cycling. She then gets more upset
Hi all. I'm hoping somebody might be able to help me on this. I have a 14 week old and for the past two months,she has been waking at around 4am and cycling her legs back and forth. It seems that she gets woke up,tries to go back to sleep and can't and the legs start cycling. She then gets more upset
giddyg2001
in
Restless Legs Syndrome
4 years ago
Buprenorphine.....I slept through the night.
Last night I commenced Buprenorphine 200 micrograms (As hydrochloride) In Western Australia it is sold under the label Temgesic Sublingual Tablets. It is a controlled Drug here in Western Australia so possession without Authority is illegal. My Doctor went through the appropriate channels to get
Last night I commenced Buprenorphine 200 micrograms (As hydrochloride) In Western Australia it is sold under the label Temgesic Sublingual Tablets. It is a controlled Drug here in Western Australia so possession without Authority is illegal. My Doctor went through the appropriate channels to get
Jules1953
in
Restless Legs Syndrome
4 years ago
Finding myself crying... again
I feel hurt and disappointed, i‘m finding myself crying again in front of the mirror after a long time. I joined my clinic in May and I have to wait September to start my Clomid treatment because I had to do Rubella vaccine which took 2 months. I just found out on instagram that one my husband’s friends
I feel hurt and disappointed, i‘m finding myself crying again in front of the mirror after a long time. I joined my clinic in May and I have to wait September to start my Clomid treatment because I had to do Rubella vaccine which took 2 months. I just found out on instagram that one my husband’s friends
FrancyItaly
in
Fertility Network UK
4 years ago
RLS, tramadol and the opiate epidemic.
I wish we could start a movement promoting opiates for RLS. John Hopkins University states that "Dr. Willis (as in Willis-Ekbom diesease) in his description of this disease in 1685 also reported on the benefits of opiates for treating the symptoms. Thus for over 300 years opiates remained the only truly
I wish we could start a movement promoting opiates for RLS. John Hopkins University states that "Dr. Willis (as in Willis-Ekbom diesease) in his description of this disease in 1685 also reported on the benefits of opiates for treating the symptoms. Thus for over 300 years opiates remained the only truly
Stdorn
in
Restless Legs Syndrome
4 years ago
Feeling more positive
Hi I posted about 3 weeks ago really at the end of my tether, and wondering if I would be able to return to work again. Since then I have contacted the hospital and I have a telephone appointment with an EP at the end of Sept and then out of the blue I got a call from the cardiologist who suggested I
Hi I posted about 3 weeks ago really at the end of my tether, and wondering if I would be able to return to work again. Since then I have contacted the hospital and I have a telephone appointment with an EP at the end of Sept and then out of the blue I got a call from the cardiologist who suggested I
Dickieticker
in
AF Association
4 years ago
Restless leg medication side effects
Had bad restless legs for few months now as have A/f so taking Amiodarone and Bisoprolol and 5mg Zoplicone to help me sleep. Have tried Ropinirole 0.25mg and Pramipexole 0.088mg and finally Gabapentin 100mg for my restless legs which all seem to work to a degree if helped by Restless leg calming cream
Had bad restless legs for few months now as have A/f so taking Amiodarone and Bisoprolol and 5mg Zoplicone to help me sleep. Have tried Ropinirole 0.25mg and Pramipexole 0.088mg and finally Gabapentin 100mg for my restless legs which all seem to work to a degree if helped by Restless leg calming cream
Mike-tyson
in
Restless Legs Syndrome
4 years ago
Can Ubiquinol and other muscle supplements CAUSE muscle aches?
Hi All Tried 100 mgs Ubiquinol yesterday before my regular Sunday 60 m ride. And, unexpectedly, had the worst ride in a very long time! I've tried ubiquinol in the past, with nil effect, good or bad. Any ideas what caused this please? I have also (recently) had similar bad results with other supplements
Hi All Tried 100 mgs Ubiquinol yesterday before my regular Sunday 60 m ride. And, unexpectedly, had the worst ride in a very long time! I've tried ubiquinol in the past, with nil effect, good or bad. Any ideas what caused this please? I have also (recently) had similar bad results with other supplements
Hidden
in
Fibromyalgia Action UK
4 years ago
Nightwalkers Magazine from the RLS Foundation and opiates
There was a great article from the latest issue of Nightwalkers which is the quarterly journal from the Restless Legs Syndrome Foundation. They were describing some of the studies on opiates and RLS. There was lots of information on the ramifications of using opiates like oxycodone and methadone for
There was a great article from the latest issue of Nightwalkers which is the quarterly journal from the Restless Legs Syndrome Foundation. They were describing some of the studies on opiates and RLS. There was lots of information on the ramifications of using opiates like oxycodone and methadone for
Hidden
in
Restless Legs Syndrome
4 years ago
Ropinirole
Hello everyone, new to this group been suffering with RLS for a few years but its got to the point I want to chop my legs off, having tried amatryptaline, codeine magnesium and ibuprofen gel nothing has worked . Had a consultation with a GP tonight not my own and she has put me on Ropinirole which I
Hello everyone, new to this group been suffering with RLS for a few years but its got to the point I want to chop my legs off, having tried amatryptaline, codeine magnesium and ibuprofen gel nothing has worked . Had a consultation with a GP tonight not my own and she has put me on Ropinirole which I
Louise121179
in
Restless Legs Syndrome
4 years ago
A cheeky rash!
After several incidents of having a photosensitive rash on my cheeks, I sent photos to my rhuematologist. I have just recieved a letter from the Rhuemy stating that the opionion of dermatologist is being sought. The photos show lovely red cheeks (sparing nasolabial fold) on two seperate times. Can the
After several incidents of having a photosensitive rash on my cheeks, I sent photos to my rhuematologist. I have just recieved a letter from the Rhuemy stating that the opionion of dermatologist is being sought. The photos show lovely red cheeks (sparing nasolabial fold) on two seperate times. Can the
RosieA
in
LUPUS UK
4 years ago
Barium swallow with hx of DLBCL and low WBC
hx of dlbcl as well as thyroiditis and esophagitis with low WBC. Is barium swallow fluoroscopy risky or dangerous given history.
hx of dlbcl as well as thyroiditis and esophagitis with low WBC. Is barium swallow fluoroscopy risky or dangerous given history.
ugon
in
Thyroid UK
4 years ago
Pregabalin
Hi everyone I’ve just been reading some posts . I can’t believe the affect RLS has on so many people’s lives . It is just so so sad 😞. I started Pregabalin nearly 3 weeks ago . I know the dose of 25 mg is far too low but have requested a higher dose from my gp . I rang my pharmacy today and they have
Hi everyone I’ve just been reading some posts . I can’t believe the affect RLS has on so many people’s lives . It is just so so sad 😞. I started Pregabalin nearly 3 weeks ago . I know the dose of 25 mg is far too low but have requested a higher dose from my gp . I rang my pharmacy today and they have
Esme2007
in
Restless Legs Syndrome
4 years ago
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