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Nephrologist Visit
I saw the nephrologist today and am so glad that I did. First, she is a total sweetheart and spent a lot of time asking questions and really listening to the answers. Then she spent time telling me what she thinks happened and what she thinks will happen in the future. Everything was positive and
I saw the nephrologist today and am so glad that I did. First, she is a total sweetheart and spent a lot of time asking questions and really listening to the answers. Then she spent time telling me what she thinks happened and what she thinks will happen in the future. Everything was positive and
TopazForests
in
Kidney Disease
2 years ago
Laser emitting diodes compared to LED light therapy ?
Bryan Johnson , a regenerative medicine extremist, uses Laser emitting diodes on his head instead of our standard red light therapy. This peaked my interest. https://www.vice.com/en/article/z34ay8/bryan-johnson-blueprint-aging-biotech https://lightforcemedical.com/improved-cognitive-function-after-transcranial-light-emitting-diode-treatments-in-chronic-traumatic-brain-injury-two-case-reports
Bryan Johnson , a regenerative medicine extremist, uses Laser emitting diodes on his head instead of our standard red light therapy. This peaked my interest. https://www.vice.com/en/article/z34ay8/bryan-johnson-blueprint-aging-biotech https://lightforcemedical.com/improved-cognitive-function-after-transcranial-light-emitting-diode-treatments-in-chronic-traumatic-brain-injury-two-case-reports
Little_apple
in
Cure Parkinson's
2 years ago
Test results advice
Hello, I wondered if you might be able to advise me on my recent test results from Thriva? Blood taken at 11.30 am fasting. I had taken Levo at 10 pm previous night. I'm taking Solgar sub lingua B12 which includes folate - do I need to stop this and change to just B complex to bring down B12? Is
Hello, I wondered if you might be able to advise me on my recent test results from Thriva? Blood taken at 11.30 am fasting. I had taken Levo at 10 pm previous night. I'm taking Solgar sub lingua B12 which includes folate - do I need to stop this and change to just B complex to bring down B12? Is
HotelHurricaine
in
Thyroid UK
2 years ago
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Dietary restrictions and the workplace...
Hi all,I am wondering what your experiences with working and your diet? My department got rewarded with a pizza party. I requested a salad to accommodate low sodium diet. I was told no special treatment. Won't be showing up to that lunch despite being the team lead. Thoughts? Am I being the unreasonable
Hi all,I am wondering what your experiences with working and your diet? My department got rewarded with a pizza party. I requested a salad to accommodate low sodium diet. I was told no special treatment. Won't be showing up to that lunch despite being the team lead. Thoughts? Am I being the unreasonable
Bananas2007
in
Kidney Disease
2 years ago
Flare up after a pretty settled period
Two years ago I had a massive flare and was in a lot of pain / extreme fatigue. I was on prednisolone which was like a magic cure initially and then caused a host of gastric problems. I also trialled methotrexate tablets and methotrexate injections and really struggled with the side effects. After about
Two years ago I had a massive flare and was in a lot of pain / extreme fatigue. I was on prednisolone which was like a magic cure initially and then caused a host of gastric problems. I also trialled methotrexate tablets and methotrexate injections and really struggled with the side effects. After about
sazkabaz
in
NRAS
2 years ago
dietary changes
I’m having a difficult time shifting my diet to low carb to combat the sugar intake. Any suggestions on how to get started? Thanks
I’m having a difficult time shifting my diet to low carb to combat the sugar intake. Any suggestions on how to get started? Thanks
Sawdust23
in
Diabetes Support
2 years ago
Update 8.0 - Next chapter
He does not advise any action other than healthy
diet
, exercise, and continue with
weight
loss
. I have lost about 5 pounds in the last month, so that is moving in the right direction. I will meet with my PCP next week to review the plan. In somewhat better news, I met with my cardiologist.
He does not advise any action other than healthy
diet
, exercise, and continue with
weight
loss
. I have lost about 5 pounds in the last month, so that is moving in the right direction. I will meet with my PCP next week to review the plan. In somewhat better news, I met with my cardiologist.
hunter5582
in
MPN Voice
5 months ago
8 months since first post..new results and questions
8 months on from my first noobie post on the forum asking for help. I’m pretty pleased with this, feeling so much better than I did, the advice here has been life changing. Still work to do, very achy, limited capacity to do anything outside of turning up to work/home stuff but that is an improvement
8 months on from my first noobie post on the forum asking for help. I’m pretty pleased with this, feeling so much better than I did, the advice here has been life changing. Still work to do, very achy, limited capacity to do anything outside of turning up to work/home stuff but that is an improvement
Regenallotment
in
Thyroid UK
2 years ago
Light Therapy for Parkinson’s Disease
I'm not using light therapy, but somebody mentioned it to me again and I found this in depth page that pulls a LOT of light therapy information together in one place: https://www.apdaparkinson.org/article/light-therapy-for-parkinsons-disease/
I'm not using light therapy, but somebody mentioned it to me again and I found this in depth page that pulls a LOT of light therapy information together in one place: https://www.apdaparkinson.org/article/light-therapy-for-parkinsons-disease/
Bolt_Upright
in
Cure Parkinson's
2 years ago
Country-wide medical records infer increased allergy risk of gastric acid inhibition
A newspaper article and a paper in Nature that raise questions about the effects of Proton Pump Inhibitors (PPI - such as Omeprazole, Lansoprazole, Dexlansoprazole, Esomeprazole, Pantoprazole and Rabeprazole), Sucralfate, H2-receptor antagonists (such as Cimetidine, Ranitidine, Famotidine, Nizatidine
A newspaper article and a paper in Nature that raise questions about the effects of Proton Pump Inhibitors (PPI - such as Omeprazole, Lansoprazole, Dexlansoprazole, Esomeprazole, Pantoprazole and Rabeprazole), Sucralfate, H2-receptor antagonists (such as Cimetidine, Ranitidine, Famotidine, Nizatidine
helvella
Thyroid UK
in
Thyroid UK
2 years ago
Weight loss or weight gain on ndt?
I'm curious if anyone has lost or gained weight on ndt, assuming the dosage is correct, given that ft4 decreases and ft3 increases on ndt (due the rațio in pig thyroid 4:1)
I'm curious if anyone has lost or gained weight on ndt, assuming the dosage is correct, given that ft4 decreases and ft3 increases on ndt (due the rațio in pig thyroid 4:1)
adin
in
Thyroid UK
2 years ago
Food Sensitivities
Any advice on working out food sensitivities? I did the “Happy Gut” diet a couple of years ago which is low FODMAP, vegan and gluten-free. I felt great on it initially and was starting to reintroduce foods when I became really anaemic and had to stop (I don’t think vegan is for me!). I have recently
Any advice on working out food sensitivities? I did the “Happy Gut” diet a couple of years ago which is low FODMAP, vegan and gluten-free. I felt great on it initially and was starting to reintroduce foods when I became really anaemic and had to stop (I don’t think vegan is for me!). I have recently
DaisyTed
in
Thyroid UK
2 years ago
Has anybody tried Light Therapy?
I live in an area that has at most 20 days of light. After using a light therapy lamp that delivers up to 10,000 lux for a week the severe RLS symptoms are now very mild. I have also found that I no longer need to take medication at night. Hopefully the light therapy continues to work for me. I am
I live in an area that has at most 20 days of light. After using a light therapy lamp that delivers up to 10,000 lux for a week the severe RLS symptoms are now very mild. I have also found that I no longer need to take medication at night. Hopefully the light therapy continues to work for me. I am
LadyFlyer
in
Restless Legs Syndrome
2 years ago
New Member. Like to eat healthy. Vegetarian. Low Carb , diet. Need more protein
Nothing. Read and learn.
Nothing. Read and learn.
Skinnyblue
in
Healthy Eating
2 years ago
Felodipine
Ok- been on a variety of anti hypertensives for about 10 years- Ramipril made me cough continually so a couple of others were tried and eventually settled on Losartan 50mg. Until about 3 months ago when it seemed to stop working. Dose increased with no effect so GP added in amlodipine 5mg- cue awful
Ok- been on a variety of anti hypertensives for about 10 years- Ramipril made me cough continually so a couple of others were tried and eventually settled on Losartan 50mg. Until about 3 months ago when it seemed to stop working. Dose increased with no effect so GP added in amlodipine 5mg- cue awful
Hidden
in
High Blood Pressure Support
2 years ago
Diagnosed with ARLD cirrhosis decompensated July 2022. Any helpful tips or advice would be greatly appreciated
I presented to GP with ascities, jaundice and pain in around abdomen. Sent me straight to hospital. Had not been feeling well for a year or so and was putting it down to perhaps the start of menopause or heamacromatosis which is in my family. I had also relapsed after many years of recovery but had to
I presented to GP with ascities, jaundice and pain in around abdomen. Sent me straight to hospital. Had not been feeling well for a year or so and was putting it down to perhaps the start of menopause or heamacromatosis which is in my family. I had also relapsed after many years of recovery but had to
Chick_atee
in
British Liver Trust
2 years ago
Joint pain remedies - Infra red light?
Nothing seems to help with the anastrozole side effect of pain in joints, ligaments, muscles. I have been reading recently about infra-red light therapy (LED phototherapy - has a bunch of names), used on skin but also on athletes for injuries of all sorts. Has anyone tried this? If so, did you get
Nothing seems to help with the anastrozole side effect of pain in joints, ligaments, muscles. I have been reading recently about infra-red light therapy (LED phototherapy - has a bunch of names), used on skin but also on athletes for injuries of all sorts. Has anyone tried this? If so, did you get
TammyCross
in
SHARE Metastatic Breast Cancer
2 years ago
b12 deficiency symptoms
morning everyone Just wondering if anyone else experienced issues with eyes/eyelids? I have had many neurological symptoms, many of which have reduced. Im on gluten free diet, 10 weekly injections, and self inject weekly now as was not given more frequently by surgery. Plus iron, folic acid however
morning everyone Just wondering if anyone else experienced issues with eyes/eyelids? I have had many neurological symptoms, many of which have reduced. Im on gluten free diet, 10 weekly injections, and self inject weekly now as was not given more frequently by surgery. Plus iron, folic acid however
Dancers1
in
Pernicious Anaemia Society
2 years ago
Weight loss surgery.
I have primary Lymphodeama in both lower legs and one hand. It’s been stable for many years and managed with compression garments. I have over the last decade put on quite a lot of weight. I’ve tried everything and weight loss is so slow I get get up and give up only to gain more. I’m also a stress
I have primary Lymphodeama in both lower legs and one hand. It’s been stable for many years and managed with compression garments. I have over the last decade put on quite a lot of weight. I’ve tried everything and weight loss is so slow I get get up and give up only to gain more. I’m also a stress
Jenny113
in
LSN
2 years ago
Gluten Free
I av just been advised to go on a strict gluten free diet, I know it won't be a overnight miracle but have any fellow Ataxia seen any positive outcomes over time doing a gluten free diet Thanking you 😊
I av just been advised to go on a strict gluten free diet, I know it won't be a overnight miracle but have any fellow Ataxia seen any positive outcomes over time doing a gluten free diet Thanking you 😊
claire01
in
Ataxia UK
2 years ago
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