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Gochujan
My GP discovered that I had elevated liver enzyme 7800 April 23 and sent me an ambulance to be thoroughly checked and went through CT San, MRI etc, seen by Hepatologist and Rheumatologist who suspected Myositis and after muscle biopsy on my thigh, she confirmed I have Mhositis. Since then, I have been
My GP discovered that I had elevated liver enzyme 7800 April 23 and sent me an ambulance to be thoroughly checked and went through CT San, MRI etc, seen by Hepatologist and Rheumatologist who suspected Myositis and after muscle biopsy on my thigh, she confirmed I have Mhositis. Since then, I have been
Gochujan
in
Myositis UK
3 months ago
Management Advice Endo & Adeno stage4
Hi everyone, I am new to this but many years of experience. Endo stage 3, diagnosis at 19, several operations, Adeno diagnosis at 42 am now 53. I want to let you know how I have managed. Bowel Learn about the difference between soluable and insoluble fibre. You need Soluable fibre oats and inulin are
Hi everyone, I am new to this but many years of experience. Endo stage 3, diagnosis at 19, several operations, Adeno diagnosis at 42 am now 53. I want to let you know how I have managed. Bowel Learn about the difference between soluable and insoluble fibre. You need Soluable fibre oats and inulin are
Serenechaos
in
Endometriosis UK
3 months ago
Help please with blood test results
Hi Everyone, Would appreciate some help on some blood test results please. I’m asking on behalf of my niece who was diagnosed with ME when she was a teenager. She is in her forties now and has had a range of health issues over her life. She has suffered many tummy issues and she believes she now has
Hi Everyone, Would appreciate some help on some blood test results please. I’m asking on behalf of my niece who was diagnosed with ME when she was a teenager. She is in her forties now and has had a range of health issues over her life. She has suffered many tummy issues and she believes she now has
Bookworm63
in
Thyroid UK
4 months ago
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Graves Disease Private Endo recommendation (SW) London please PM 🙏
Hello, I’d appreciate a PM if anyone can recommend an Endo who specialises or is experienced in treating Graves’ disease in London or ideally SW London. I’ve been on NHS waitlist to see someone for three months and have only now started to get heart palpitations which are concerning so wanting to commence
Hello, I’d appreciate a PM if anyone can recommend an Endo who specialises or is experienced in treating Graves’ disease in London or ideally SW London. I’ve been on NHS waitlist to see someone for three months and have only now started to get heart palpitations which are concerning so wanting to commence
Gravie
in
Thyroid UK
3 months ago
wanted injections sooner than the 12 weeks
so i feel my injections need to be shorter than every 12 weeks as i start to getting very tired. So when my injection day came i mentioned it and said could they do them maybe every 10 weeks . so i got sent for bloods which obviously my b12 was fine because i had had my injection but my B9 folate is
so i feel my injections need to be shorter than every 12 weeks as i start to getting very tired. So when my injection day came i mentioned it and said could they do them maybe every 10 weeks . so i got sent for bloods which obviously my b12 was fine because i had had my injection but my B9 folate is
pinkypurple58
in
Pernicious Anaemia Society
3 months ago
Supplement timings with Levo
Hi all, Could anyone recommend supplement timings for me? I am getting confused with what conflicts with what. I take my Levo between 6 and 7am, and do not want to move it to taking it at night for various reasons. Breakfast 7am to 8am. I am taking; Iron B complex Selenium Magnesium Vit D Berberine
Hi all, Could anyone recommend supplement timings for me? I am getting confused with what conflicts with what. I take my Levo between 6 and 7am, and do not want to move it to taking it at night for various reasons. Breakfast 7am to 8am. I am taking; Iron B complex Selenium Magnesium Vit D Berberine
RuthNelson
in
Thyroid UK
3 months ago
Help!
I am a 57 year old male. I've been feeling very tired and run down over the past months. I've been suffering from bouts of dizziness and my balance has become a real problem. My G.P. has run a whole range of blood tests. One of the tests carried out was Iron Profile and another was the Haematinics
I am a 57 year old male. I've been feeling very tired and run down over the past months. I've been suffering from bouts of dizziness and my balance has become a real problem. My G.P. has run a whole range of blood tests. One of the tests carried out was Iron Profile and another was the Haematinics
Henbud
in
Pernicious Anaemia Society
3 months ago
Filling the syringe
I did my first 8 subcutaneous b12 injections as I was shown by the doctor. Since then the nurse at my g.p. surgery has been doing my injections every 2 weeks as prescribed. (She offered me the choice of continuing to do it myself or she would do it.)The consultant had told me if I wanted to give myself
I did my first 8 subcutaneous b12 injections as I was shown by the doctor. Since then the nurse at my g.p. surgery has been doing my injections every 2 weeks as prescribed. (She offered me the choice of continuing to do it myself or she would do it.)The consultant had told me if I wanted to give myself
Suesue246
in
Pernicious Anaemia Society
3 months ago
T3 and cortisol issues?
hello, I could really use some help piecing my mess together. I’ll try to be brief but that may be difficult because there’s a lot to unpack. 2009 thyroidectomy for large goiter and hashimotos Lived comfortably on 150/175 mcgs of Levo until perimenopause. Around that time i developed severe anxiety
hello, I could really use some help piecing my mess together. I’ll try to be brief but that may be difficult because there’s a lot to unpack. 2009 thyroidectomy for large goiter and hashimotos Lived comfortably on 150/175 mcgs of Levo until perimenopause. Around that time i developed severe anxiety
Knittergirl3
in
Thyroid UK
3 months ago
Intrinsic Factor (IF) Antibodies testing while on B12
Hello folks - If someone has IF Antibodies and is taking b12 ...would that affect an IF and IF Antibodies blood test..? I dont think it should - as if you have errosive gastritis / malabsorbtion issues etc, you got them...and the B12 wont improve that in any way...? Thanks lovely PA folks
Hello folks - If someone has IF Antibodies and is taking b12 ...would that affect an IF and IF Antibodies blood test..? I dont think it should - as if you have errosive gastritis / malabsorbtion issues etc, you got them...and the B12 wont improve that in any way...? Thanks lovely PA folks
Treesong2023
in
Pernicious Anaemia Society
3 months ago
UPDATE: RLS, magnesium, calcium and hard water
Hello everyone, wanted to share my experience/thoughts. I'm a 58-yo female from the UK. I've suffered from RLS for around 20 years. I've never tried any prescription meds for this (the medications all sound quite dodgy to me as they seem to lead to dependence, and don't treat the root cause, which seems
Hello everyone, wanted to share my experience/thoughts. I'm a 58-yo female from the UK. I've suffered from RLS for around 20 years. I've never tried any prescription meds for this (the medications all sound quite dodgy to me as they seem to lead to dependence, and don't treat the root cause, which seems
sydaway
in
Restless Legs Syndrome
3 months ago
latest bloods
I’m on a journey with t3 it’s taking a while. Latest bloods reflect 15mcg taken in one dose and 50mcg levothyroxine I think I need to increase levo but on 75 I was slightly over medicated I felt. A reply on here suggested 62.5mcg as middle road which makes sense to me but pills are tiny and crumbly
I’m on a journey with t3 it’s taking a while. Latest bloods reflect 15mcg taken in one dose and 50mcg levothyroxine I think I need to increase levo but on 75 I was slightly over medicated I felt. A reply on here suggested 62.5mcg as middle road which makes sense to me but pills are tiny and crumbly
Mag999
in
Thyroid UK
3 months ago
Parathesia
Hi everyone, could the vitamin B6 in a Vitamin B complex tablet (Thorne Basic B Complex to be specific) cause parathesia symptoms and are there any vitamin B complex tablets which do not contain B6? Thanks in advance
Hi everyone, could the vitamin B6 in a Vitamin B complex tablet (Thorne Basic B Complex to be specific) cause parathesia symptoms and are there any vitamin B complex tablets which do not contain B6? Thanks in advance
Pinkisland
in
Pernicious Anaemia Society
3 months ago
Vit D
Does anyone have any idea what's so ever why I can not tolerate vit D supplements. I'm low in vit D. I need it. But I rwct badly to it.I don't understand and every doctor and natropath I speak to say it's not possible. Well it is because it happens to me.
Does anyone have any idea what's so ever why I can not tolerate vit D supplements. I'm low in vit D. I need it. But I rwct badly to it.I don't understand and every doctor and natropath I speak to say it's not possible. Well it is because it happens to me.
Popcorn12345
in
Pernicious Anaemia Society
3 months ago
A great site!
I have had thyroid diagnosed 14 years ago. My mother had Hypothyroidism and my younger brother developed Graves disease although now Hypothyroidism. I have been on 100 dose all that time. Reading items on this site has been so informative - and explains such a lot. My GP practices never ever mention
I have had thyroid diagnosed 14 years ago. My mother had Hypothyroidism and my younger brother developed Graves disease although now Hypothyroidism. I have been on 100 dose all that time. Reading items on this site has been so informative - and explains such a lot. My GP practices never ever mention
Pumpkin11
in
Thyroid UK
3 months ago
High FT4 and Low TSH
I am new to this group but have been diagnosed with underactive thyroid for quite some time. I have been taking levothyroxine for 10+ years titrating up to 200mcg over that time but after bloods last week I have been reduced to 100mcg. My recent bloods (July) were FT4 31.7 and TSH 0.04. My bloods
I am new to this group but have been diagnosed with underactive thyroid for quite some time. I have been taking levothyroxine for 10+ years titrating up to 200mcg over that time but after bloods last week I have been reduced to 100mcg. My recent bloods (July) were FT4 31.7 and TSH 0.04. My bloods
Verbena13
in
Thyroid UK
3 months ago
Why ?
Parkinson's is well known for a loss of manual dexterity. Why then do they keep prescribing me these vile little blue vitamin D capsules that are in a foil that is more of a launch vehicle than a storage solution and when I do get my fingers on one they are slipperier than a greased politician? Is it
Parkinson's is well known for a loss of manual dexterity. Why then do they keep prescribing me these vile little blue vitamin D capsules that are in a foil that is more of a launch vehicle than a storage solution and when I do get my fingers on one they are slipperier than a greased politician? Is it
Grey_Area
in
Cure Parkinson's
3 months ago
Partners ALP gradually increasing.
Hi all, My partner is in the interim of moving to NHS after being diagnosed with liver disease on private . He has hemochromatosis and the disease from this. His next appointment isn't until November and his last was in February. He and myself are worried as we've noticed his ALP has risen in the last
Hi all, My partner is in the interim of moving to NHS after being diagnosed with liver disease on private . He has hemochromatosis and the disease from this. His next appointment isn't until November and his last was in February. He and myself are worried as we've noticed his ALP has risen in the last
ARM8
in
British Liver Trust
4 months ago
Cofactors - B complex?
should I be starting on a B complex? I had iron infusion end of May and have been on EOD B12 injections since then. I am also taking folic acid 5mg every day and a spray vitamin D & K. I have been reading that some people take a B complex, but the one I saw also has folate in it and don’t want to
should I be starting on a B complex? I had iron infusion end of May and have been on EOD B12 injections since then. I am also taking folic acid 5mg every day and a spray vitamin D & K. I have been reading that some people take a B complex, but the one I saw also has folate in it and don’t want to
Chickens44
in
Pernicious Anaemia Society
3 months ago
Genuine question ‘Declined’ by a company
My posting on their Facebook page after having send the question by email first and not receiving the right answer. Declined by….. [Bioactive vitamin B12 drops - High dosed, 500 mcg B12 in 3 … I mailed you about the proportions of the 3 active forms you mention on the label . You replied that you
My posting on their Facebook page after having send the question by email first and not receiving the right answer. Declined by….. [Bioactive vitamin B12 drops - High dosed, 500 mcg B12 in 3 … I mailed you about the proportions of the 3 active forms you mention on the label . You replied that you
ACritical
in
Pernicious Anaemia Society
3 months ago
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