Thyroid labs : I have usually have hypothyroid... - Thyroid UK

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Thyroid labs

Chaseandcherry profile image
18 Replies

I have usually have hypothyroid. And on levo 75mg and 12 mg of T3.

Now i have come back 0.33 TSH ( classed abnormal)

I do have symptoms face heart rate, insomnia, exhaustion, skin fkushing. Sun sensitivity.

In middle of Range T4 and T3 ( classed as normal)

TPO 2,000

And low parathyroid levels and normal calcium 70 and B12 is 800 ( dont supplement can sometimes be 1,300)

And high C3 normal range C4. They tested this at doctors for ppssible lupus. S

Im due to speak to GP tomorrow, what shoild i be asking for, thyroid scan?

Many thanks

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Chaseandcherry profile image
Chaseandcherry
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18 Replies
greygoose profile image
greygoose

You're TSH is low because you are taking T3. That's what it does. It suppresses TSH.

However, am I reading it right and your TPO antibodies are two thousand? If so, you have Hashi's, and could be having a Hashi's 'hyper' swing. But impossible to say for sure because you haven't given us your FT4 and FT3 results and ranges. We don't have enough information to give a useful reply. :)

Chaseandcherry profile image
Chaseandcherry in reply togreygoose

Hello!

Yes have hashi's.

I will send full details of results 👍😊

Chaseandcherry profile image
Chaseandcherry in reply togreygoose

Serum TSH level

0.33 mIU/L - range 0.55 - 4.78

Serum free T4 level 15.9 pmol/L range 11.5 - 22.7

Serum free T3 level 4.3 pmol/L range 3.5 - 6.5

Complement -third component-C3 0.75 g/L range 0.90 - 1.70

Serum parathyroid hormone 9.4 pmol/L range 2.0 - 8.5

Serum ferritin 51 ug/L Range 10 - 291

Serum total 25-OH vit D level 70 nmol/L range > 49

dsDNA binding autoantibody lev 2 ku/L range < 16

Cant find TPO from last test , seem to have done this above instead

Many Thanks

greygoose profile image
greygoose in reply toChaseandcherry

Serum TSH level

0.33 mIU/L - range 0.55 - 4.78

Well, it's below-range, which is why they've said it's abnormal. But it's not that low, and it really isn't important because you're taking T3. And TSH doesn't cause symptoms whether it's high or low.

Serum free T4 level 15.9 pmol/L range 11.5 - 22.7 39.29%

Low. Too low? Only you can know that.

Serum free T3 level 4.3 pmol/L range 3.5 - 6.5 26.67%

Much too low! And that's probably what's causing your symptoms. You are very under-medicated even though your TSH is low.

Complement -third component-C3 0.75 g/L range 0.90 - 1.70

No idea what that is.

Serum parathyroid hormone 9.4 pmol/L range 2.0 - 8.5

Nothing to do with thyroid.

Serum ferritin 51 ug/L Range 10 - 291

Much too low, should be between 100, I think. But I'm not iron expert.

Serum total 25-OH vit D level 70 nmol/L range > 49

Stupid range! Can't tell much from that, but I think it should be around 100.

dsDNA binding autoantibody lev 2 ku/L range < 16

No idea what that is, either. But, once you've had an over-range result for TPO antibodies, you have Hashi's. Antibodies fluctuate all the time, but Hashi's is forever. Not much point in retesting them.

Chaseandcherry profile image
Chaseandcherry in reply togreygoose

Thank you. Thats interesting as i used to take 25mgs of T3 and i ran out. So started doing 12 mgs only.

Could i go back up to 25mg?

Im so scared my gp going to take me off levo and say im over medicated.

Chaseandcherry profile image
Chaseandcherry in reply togreygoose

I also had last levo and T3 (TIROMEL

24 hours before test,

greygoose profile image
greygoose in reply toChaseandcherry

Well, that gap is too long for T3. It should be 8 to 12 hours between the last dose and the blood draw.

i used to take 25mgs of T3 and i ran out. So started doing 12 mgs only.

Could i go back up to 25mg?

I wouldn't recommend going up 12.5 in one go. Try 6.25 mcg and retest correctly after six weeks. Then, if necessary, go up by the other 6.25 to take you to 25 mcg.

SlowDragon profile image
SlowDragonAdministrator

please add actual Ft4 and Ft3 results and ranges

Recommended that all thyroid blood tests early morning, ideally just before 9am, only drink water between waking and test and last dose levothyroxine 24 hours before test

This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip)

T3 ….day before test split T3 as 2 or 3 smaller doses spread through the day, with last dose approximately 8-12 hours before test

Is this how you did this test

Post all about what time of day to test

healthunlocked.com/thyroidu...

Are you self sourcing T3

Is GP aware you are taking T3

On almost any dose of T3 it’s extremely common for TSH to drop very low and below range

Do you always split T3 as 2 smaller doses per day

Bloods should be retested 6-8 weeks after each dose change or brand change in levothyroxine or T3

For full Thyroid evaluation you need TSH, FT4 and FT3 tested

Very important to test vitamin D, folate, ferritin and B12 at least once year minimum

Low vitamin levels are extremely common when hypothyroid, especially with autoimmune thyroid disease

Private tests are available as NHS currently rarely tests Ft3 or all relevant vitamins

Testing options and includes money off codes for private testing

thyroiduk.org/testing/

Medichecks Thyroid plus BOTH TPO and TG antibodies and vitamins

medichecks.com/products/adv...

Blue Horizon Thyroid Premium Gold includes BOTH TPO and TG antibodies, cortisol and vitamins

bluehorizonbloodtests.co.uk...

Only do private testing early Monday or Tuesday morning.

Link about thyroid blood tests

thyroiduk.org/testing/thyro...

Tips on how to do DIY finger prick test

support.medichecks.com/hc/e...

Medichecks and BH also offer private blood draw at clinic near you, or private nurse to your own home…..for an extra fee

Link about Hashimoto’s

thyroiduk.org/hypothyroid-b...

Symptoms of hypothyroidism

thyroiduk.org/signs-and-sym...

your high thyroid antibodies confirms that your hypothyroidism is autoimmune

About 90% of primary hypothyroidism is autoimmune thyroid disease, usually diagnosed by high TPO and/or high TG thyroid antibodies

Autoimmune thyroid disease with goitre is Hashimoto’s

Autoimmune thyroid disease without goitre is Ord’s thyroiditis.

Both are autoimmune and generally called Hashimoto’s.

In U.K. medics hardly ever refer to autoimmune thyroid disease as Hashimoto’s (or Ord’s thyroiditis)

Chaseandcherry profile image
Chaseandcherry in reply toSlowDragon

Serum TSH level

0.33 mIU/L - range 0.55 - 4.78

Serum free T4 level 15.9 pmol/L range 11.5 - 22.7

Serum free T3 level 4.3 pmol/L range 3.5 - 6.5

Complement -third component-C3 0.75 g/L range 0.90 - 1.70

Serum parathyroid hormone 9.4 pmol/L range 2.0 - 8.5

Serum ferritin 51 ug/L Range 10 - 291

Serum total 25-OH vit D level 70 nmol/L range > 49

dsDNA binding autoantibody lev 2 ku/L range < 16

Cant find TPO from last test , seem to have done this above instead

Many Thanks

SlowDragon profile image
SlowDragonAdministrator in reply toChaseandcherry

was thyroid test done as recommended ?

Ferritin on low side. Look at increasing iron rich foods in your diet

Vitamin D better around 100nmol

How much vitamin D are you supplementing

No B12 or folate results

Are you taking daily vitamin B complex

High parathyroid level

Were you on high dose vitamin D at the time?

You need PTH, vitamin D and calcium tested together

Or if they were tested together put results in this app for assessment of possible hyperparathyroid issue

calciumpro.com

app produced by this website

Masses of info all about parathyroid

parathyroid.com

Chaseandcherry profile image
Chaseandcherry in reply toSlowDragon

Hi Slow dragon

I didnt supplmemt vit d or b vits before test. Both dont make me feel great, i dont sleep on them even if taken in am.

Serumm calcium 2.33 mmol/L ( range 2.17-2.56)

Adjusted calcium 2.23

Serum albumin 45 g/L Range (35-50)

Total alkaline phosphate 61 u /L Range 30 - 130

B12 - 800 range 1,300

Not sure what to do, but insomnia and anxiety and tiredness.

Many thanks

Chaseandcherry profile image
Chaseandcherry in reply toChaseandcherry

Could i take SPA tone for iron

SlowDragon profile image
SlowDragonAdministrator in reply toChaseandcherry

Could i take SPA tone for iron

Never supplement iron without doing full iron panel test for anaemia first and retest 3-4 times a year if self supplementing.

It’s possible to have low ferritin but high iron

Test early morning, only water to drink between waking and test. Avoid high iron rich dinner night before test

Stop iron supplements 5-7 days before testing

Medichecks iron panel test

medichecks.com/products/iro...

Look at increasing iron rich foods in diet

Eating iron rich foods like liver or liver pate once a week plus other red meat, pumpkin seeds and dark chocolate, plus daily orange juice or other vitamin C rich drink can help improve iron absorption

List of iron rich foods

dailyiron.net

Chaseandcherry profile image
Chaseandcherry in reply toSlowDragon

I also had last levo and T3 (TIROMEL

24 hours before test,

SlowDragon profile image
SlowDragonAdministrator in reply toChaseandcherry

So Ft3 result is falsely low if last dose was 24 hours before test

i used to take 25mgs of T3 and i ran out. So started doing 12 mgs only.

Could i go back up to 25mg?

Look at only adding 3rd 1/4 tablet per day

Many members find SMALL dose T3 at bedtime IMPROVES sleep

Next test remember to split and last dose 8-12 hours before test

Chaseandcherry profile image
Chaseandcherry in reply toSlowDragon

Can i ask, is tiromel an ok brand? Amd us levo ok at 75mg? Thank you so much.Im do worried dictor will refuse my levo as TSH so low

SlowDragon profile image
SlowDragonAdministrator in reply toChaseandcherry

This is problem with self sourcing

Taking T3 lowers TSH

GP will only look at low TSH

You may need to get consultation with thyroid specialist

Here’s link for how to request Thyroid U.K.list of private Doctors emailed to you, but within the email a link to download list of recommended thyroid specialist endocrinologists who will prescribe T3

Ideally choose an endocrinologist to see privately initially and who also does NHS consultations

thyroiduk.org/contact-us/ge...

SlowDragon profile image
SlowDragonAdministrator

Hashimoto's affects the gut and leads to low stomach acid and then low vitamin levels

Low vitamin levels affect Thyroid hormone working

Request GP test vitamin D, folate, B12 and ferritin levels

Poor gut function can lead leaky gut (literally holes in gut wall) this can cause food intolerances.

Most common by far is gluten.

Dairy is second most common.

A trial of strictly gluten free diet is always worth doing

Only 5% of Hashimoto’s patients test positive for coeliac but a further 81% of Hashimoto’s patients who try gluten free diet find noticeable or significant improvement or find it’s essential

A strictly gluten free diet helps or is essential due to gluten intolerance (no test available) or due to leaky gut and gluten causing molecular mimicry (see Amy Myers link)

Changing to a strictly gluten free diet may help reduce symptoms, help gut heal and may slowly lower TPO antibodies

While still eating high gluten diet ask GP for coeliac blood test first as per NICE Guidelines

nice.org.uk/guidance/ng20/c...

Or buy a test online, about £20

Assuming test is negative you can immediately go on strictly gluten free diet 

(If test is positive you will need to remain on high gluten diet until endoscopy, maximum 6 weeks wait officially) 

Trying gluten free diet for 3-6 months. If no noticeable improvement then reintroduce gluten and see if symptoms get worse

chriskresser.com/the-gluten...

amymyersmd.com/2018/04/3-re...

thyroidpharmacist.com/artic...

drknews.com/changing-your-d...

Non Coeliac Gluten sensitivity (NCGS) and autoimmune disease

pubmed.ncbi.nlm.nih.gov/296...

The predominance of Hashimoto thyroiditis represents an interesting finding, since it has been indirectly confirmed by an Italian study, showing that autoimmune thyroid disease is a risk factor for the evolution towards NCGS in a group of patients with minimal duodenal inflammation. On these bases, an autoimmune stigma in NCGS is strongly supported

nuclmed.gr/wp/wp-content/up...

In summary, whereas it is not yet clear whether a gluten free diet can prevent autoimmune diseases, it is worth mentioning that HT patients with or without CD benefit from a diet low in gluten as far as the progression and the potential disease complications are concerned

restartmed.com/hashimotos-g...

Despite the fact that 5-10% of patients have Celiac disease, in my experience and in the experience of many other physicians, at least 80% + of patients with Hashimoto's who go gluten-free notice a reduction in their symptoms almost immediately.

Similarly few months later consider trying dairy free too. Approx 50-60% find dairy free beneficial

With loads of vegan dairy alternatives these days it’s not as difficult as in the past

Post discussing gluten

healthunlocked.com/thyroidu...

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