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Vitamin B12 / Folic acid
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b1 vitamins
what has been your experience with taking B1 supplements? Dosage and frequency?
what has been your experience with taking B1 supplements? Dosage and frequency?
Teacher111
in
Cure Parkinson's
2 months ago
New to PA and need info and support
Hi, for nearly 10 years I have been returning blood tests with low b12 levels, recently these have been 140 / 155 / 170 and 2 weeks ago 165. I continued to advise GP that there was an issue. In 2018 I had 6 loading doses but no follow up treatments. Throughout 2023 I reported tiredness and more concerningly
Hi, for nearly 10 years I have been returning blood tests with low b12 levels, recently these have been 140 / 155 / 170 and 2 weeks ago 165. I continued to advise GP that there was an issue. In 2018 I had 6 loading doses but no follow up treatments. Throughout 2023 I reported tiredness and more concerningly
Sailing63
in
Pernicious Anaemia Society
2 months ago
Blood test results in full. Can anyone find a cause in there for my continued fatigue etc?
I still have the same symptoms, although some have improved a bit, but not gone, by any means. Still housebound. I list below Blood test results. Can anyone suggest an issue that may cause my symptoms because my GP says no action, normal. Serum 25 - HO Vit D3 level 135nmol/L 50-174
I still have the same symptoms, although some have improved a bit, but not gone, by any means. Still housebound. I list below Blood test results. Can anyone suggest an issue that may cause my symptoms because my GP says no action, normal. Serum 25 - HO Vit D3 level 135nmol/L 50-174
DandyButch
in
Thyroid UK
2 months ago
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Hello, I'm new!
Hi everyone, I usually hang out in the Thyroid group because I've got Hashimoto's, but someone suggested I may have pernicious anaemia based on my B12 blood test results, below. My levels have been high for years. They used to be over 1000 but they've come down now. It is normal for levels to go up
Hi everyone, I usually hang out in the Thyroid group because I've got Hashimoto's, but someone suggested I may have pernicious anaemia based on my B12 blood test results, below. My levels have been high for years. They used to be over 1000 but they've come down now. It is normal for levels to go up
Jojozo
in
Pernicious Anaemia Society
8 months ago
Topping OFF
I consider topping off to be a medicial breakthrough in the treatment of Cobalamin Cellular Inactivity. The fact that the medicial community has yet to bless it has no importance to me. The reduction of suffering is what is important to me and is not the prominent focus of the medicial field. When
I consider topping off to be a medicial breakthrough in the treatment of Cobalamin Cellular Inactivity. The fact that the medicial community has yet to bless it has no importance to me. The reduction of suffering is what is important to me and is not the prominent focus of the medicial field. When
WIZARD6787
in
Pernicious Anaemia Society
8 months ago
Advice following GP visit please
Hi, I posted a few days ago asking for advice after having had results back from blood tests and struggling to see my GP. Well, I finally saw her today. She was sympathetic, and has referred my results to an endocrinologist for guidance. I wanted to get some thoughts on something she did say, bearing
Hi, I posted a few days ago asking for advice after having had results back from blood tests and struggling to see my GP. Well, I finally saw her today. She was sympathetic, and has referred my results to an endocrinologist for guidance. I wanted to get some thoughts on something she did say, bearing
TheMudRunner
in
Thyroid UK
2 months ago
Muscle Cramps?
I'm following Elliott Overton's B1 therapy and am on week 4 of his protocol using various forms of thiamine totaling 1500 mg a day. I'm noticing improvement in Parkinsons symptoms but have developed very sore and cramping calf muscles for the past couple of days. Since I haven't increased physical activity
I'm following Elliott Overton's B1 therapy and am on week 4 of his protocol using various forms of thiamine totaling 1500 mg a day. I'm noticing improvement in Parkinsons symptoms but have developed very sore and cramping calf muscles for the past couple of days. Since I haven't increased physical activity
Carrielam
in
Cure Parkinson's
2 months ago
Looking for advice please
Hello folks. I've been on here for a couple weeks reading peoples comments/stories. but have not posted anything until now. Hope you all are doing ok. Im looking for a bit of advice if anyone can help please. Back in august last year i was diagnosed with Liver cirrhosis from drinking. for the
Hello folks. I've been on here for a couple weeks reading peoples comments/stories. but have not posted anything until now. Hope you all are doing ok. Im looking for a bit of advice if anyone can help please. Back in august last year i was diagnosed with Liver cirrhosis from drinking. for the
StokieB
in
British Liver Trust
2 months ago
Risk of reversing out for A'levels
Hi everyone. I'm in a conundrum. My youngest daughter, 17, has low B12 (181ng/L, so not low enough for our GP to take any notice), inherited from me (141ng/L and now self-injecting) and her grandmother (hospitalised on intravenous B12 for several months in the '50s). She has quite low folate at 5.5.
Hi everyone. I'm in a conundrum. My youngest daughter, 17, has low B12 (181ng/L, so not low enough for our GP to take any notice), inherited from me (141ng/L and now self-injecting) and her grandmother (hospitalised on intravenous B12 for several months in the '50s). She has quite low folate at 5.5.
Cotswolds23
in
Pernicious Anaemia Society
2 months ago
Mum's battle
Hi all, Mum has suffered from adrenal insufficiency over the past 15 years, as well as pernicious anemia, hypothyroidism, low WBC count and was hospitalised several times with low electrolytes. The electrolyte imbalance was caused by the cortisol acetate supplement she takes. She was numerous doctors
Hi all, Mum has suffered from adrenal insufficiency over the past 15 years, as well as pernicious anemia, hypothyroidism, low WBC count and was hospitalised several times with low electrolytes. The electrolyte imbalance was caused by the cortisol acetate supplement she takes. She was numerous doctors
quicklyinsignificant
in
Thyroid UK
2 months ago
Help please in results interpretation of advanced function thyroid test
I’ve just received results of private test because surgery has reduced levothyroxine from 75mcg to 50mcg. Please see below. I would welcome some advice before I approach anyone. Jan 30 TSH 0.23 (0.27-4.2) T4 17.7 (10.5-24.5) At this point doctor wanted me to reduce to 50mcg but I confessed that
I’ve just received results of private test because surgery has reduced levothyroxine from 75mcg to 50mcg. Please see below. I would welcome some advice before I approach anyone. Jan 30 TSH 0.23 (0.27-4.2) T4 17.7 (10.5-24.5) At this point doctor wanted me to reduce to 50mcg but I confessed that
Libuse
in
Thyroid UK
2 months ago
Au/ml help
The range for intrinsic factor test result is any result below 1.21u/ml (negative )and above 1.53u/ml (positive). I was informed my result was 1.63. Yes, no measurements of u/ml. When I asked for B12 injections (local GP Wales) as I believed I'd proved I was deficient by these tests coming back high
The range for intrinsic factor test result is any result below 1.21u/ml (negative )and above 1.53u/ml (positive). I was informed my result was 1.63. Yes, no measurements of u/ml. When I asked for B12 injections (local GP Wales) as I believed I'd proved I was deficient by these tests coming back high
AlmWales
in
Pernicious Anaemia Society
8 months ago
Bad batch of B12
Hi I'm just adding to the posts about bad batches of B12 - there's been a couple in the last month. I have self-injected since 2020 - originally every other day, increased to every day after having Covid in July 2021. Taking control has felt miraculous as I have been able to return to full-time
Hi I'm just adding to the posts about bad batches of B12 - there's been a couple in the last month. I have self-injected since 2020 - originally every other day, increased to every day after having Covid in July 2021. Taking control has felt miraculous as I have been able to return to full-time
LizWilsonpa
in
Pernicious Anaemia Society
2 months ago
Ferritin, B12 and folate results
Hi all I’d be grateful for any advice on the following results and details of the best supplements to take if you think I should boost them? The ferritin seems particularly low (even if it is technically in range). I eat red meat and leafy greens but struggle with things like liver so I guess I’d
Hi all I’d be grateful for any advice on the following results and details of the best supplements to take if you think I should boost them? The ferritin seems particularly low (even if it is technically in range). I eat red meat and leafy greens but struggle with things like liver so I guess I’d
Mogget
in
Thyroid UK
2 months ago
How often to Self Inject
Hello all. I was just wondering what you all think about how often we should inject with Vit B12. I had been taking shots since about last Dec of 22, but even though it helped, didn't help much. So after finally being diagnosed with PA, I told my wife to inject me every day for 30 days to sort of give
Hello all. I was just wondering what you all think about how often we should inject with Vit B12. I had been taking shots since about last Dec of 22, but even though it helped, didn't help much. So after finally being diagnosed with PA, I told my wife to inject me every day for 30 days to sort of give
MrJustatip
in
Pernicious Anaemia Society
8 months ago
Weeping eye
Hi folks.. 2 months ago, I discovered a huge enlarged nodule 2.6 cm on my thyroid. The week leading up to finding this I felt very sick, one side of my face was puffy and filled with fluid. My eye kept weeping. It was the same side I had my nodule. Fast forward 2mths,the nodule is benign tg and endo
Hi folks.. 2 months ago, I discovered a huge enlarged nodule 2.6 cm on my thyroid. The week leading up to finding this I felt very sick, one side of my face was puffy and filled with fluid. My eye kept weeping. It was the same side I had my nodule. Fast forward 2mths,the nodule is benign tg and endo
madeline05
in
Thyroid UK
2 months ago
Help needed please
I just received my B12 . Please can someone tell me how ot SI? For a start how do I open the glass ampoule without spilling what's in it? Please blow by blow instuctions, I am a SI virgin😀
I just received my B12 . Please can someone tell me how ot SI? For a start how do I open the glass ampoule without spilling what's in it? Please blow by blow instuctions, I am a SI virgin😀
totallyFrustrated
in
Pernicious Anaemia Society
8 months ago
(update) B12, Peripheral Neuropathy, oh and Ozempic...
A few months back I seemed to be 'overdosing' on the B12 injections (I was peeing it straight back out at one point!), so I stopped injecting and things were going okay. But now the past few weeks I'm back to low/no energy, bumping into things, knocking things over, Brain Fog, and incontinence struck
A few months back I seemed to be 'overdosing' on the B12 injections (I was peeing it straight back out at one point!), so I stopped injecting and things were going okay. But now the past few weeks I'm back to low/no energy, bumping into things, knocking things over, Brain Fog, and incontinence struck
Saoirse2016
in
Pernicious Anaemia Society
8 months ago
Misdiagnosis? Fibromyalgia or PA?
I was diagnosed with fibromyalgia about 19 years ago, but I wonder whether it was a misdiagnosis. I am still waiting for a PA diagnosis, but have been experiencing many of the symptoms of PA for months. Many of the tests I have done have shown low B12, low folate, low ferritin, all within range but low
I was diagnosed with fibromyalgia about 19 years ago, but I wonder whether it was a misdiagnosis. I am still waiting for a PA diagnosis, but have been experiencing many of the symptoms of PA for months. Many of the tests I have done have shown low B12, low folate, low ferritin, all within range but low
Chickens44
in
Pernicious Anaemia Society
2 months ago
first lap - nothing found. Please help.
Hi, I’m new here (or I’ve been acting like a shadow for months, reading your stories & experiences and feeling a sense of support from you all without reaching out, so firstly thank you) I have had ongoing pelvic pain since 2021. Continuously. It started as a niggle in my right ovary. I noticed it
Hi, I’m new here (or I’ve been acting like a shadow for months, reading your stories & experiences and feeling a sense of support from you all without reaching out, so firstly thank you) I have had ongoing pelvic pain since 2021. Continuously. It started as a niggle in my right ovary. I noticed it
GraceElli
in
Endometriosis UK
7 months ago
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