Recently diagnosed -Hello!: Good evening everyone... - PMRGCAuk

PMRGCAuk

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Recently diagnosed -Hello!

Rrdance profile image
6 Replies

Good evening everyone. Ive been recently diagnosed with PMR, been looking on this site prior to joining, and found it very interesting and informative. I am a 78 year old woman, until recently fit and healthy, other than having full knee replacement 10 months ago, and having a stressful couple of years before that.2 things someone maybe able to give me answers to. Since symptoms began I've been very constipated, very unusual for me. I have a good diet - lots of veg and Ive been taking lactulose, which helped a bit, but still not normal. Dr. said nothing to do with PMR? Also had my first Alendronic acid few days ago which made me feel drugged, spaced out completely for 6 hours. Am I going to be like that every time?

Thanks for listening. I'm sure I'm going to need to pick the brains of you experienced PMRers when struggling to find answers.

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Rrdance profile image
Rrdance
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6 Replies
DorsetLady profile image
DorsetLadyPMRGCAuk volunteer

hi and welcome,

Maybe have a look at this intro post- but would say do you actually need Alendronic Acid. Do you have osteoporosis? Or been offered a DEXA scan? If no to both or either, then I’d hold off the AA until proven you need it…it is handed out too readily in some cases. I did take it for 4 years with no issues, but it doesn’t suit everyone, so if not really required, then say no. Have you been offered a VitD/Calcium supplement- that’s usually sufficient bone protection.

Not sure constipation is a common side effect of PMR, so maybe that needs more investigation.

healthunlocked.com/pmrgcauk...

Always someone around, so just ask as you have.. and we’ll do our best to help.

When you’ve got settled in, a bit more info on your bio would be helpful… thanks.

agingfeminist profile image
agingfeminist

The PMR tends to make you less physically active and that can cause constipation.

A few prunes (3 or 4 a day) and lots of fiber (loads of veggies)together with drinking more water (some of it as coffee and tea) solves the problem for me.

Hope this helps.

Oh-my profile image
Oh-my in reply toagingfeminist

Prunes are great. A lower sugar choice of dried fruit and also have the added benefit of helping preserve our bones.

pubmed.ncbi.nlm.nih.gov/357...

Bridge31 profile image
Bridge31

I agree completely with Dorset Lady. Request a Dexa Scan if you haven’t had one. A Acid is on the tick list for PMR with some of the medical profession . They tried to make me take it but having read the information on this wonderful forum I refused. My Dexa scan was fine for my age (76).

As for the constipation , when your GP said he didn’t think it was anything to do with the PMR did he not suggest anything to help ?

PMRpro profile image
PMRproAmbassador

Were you constipated with the PMR before starting pred? It is a listed effect of pred - sometimes you think there isn't much that isn't ...

This is a discussion from another forum

patient.info/forums/discuss...

However - this study

scielo.br/j/rn/a/YKJ6sYFRd9...

found constipation is more common in patients with myofascial pain syndrome - and some of the aspects of MPS are considered by some experts in the field as the defining pathology of PMR.

jrheum.org/content/46/12/1552

I think Claire's paper is one of the important ones in the field in the last few years - so I'd disagree with your GP!! I don't expect other patients to read all the publications I link but sometimes they would be a comeback to an uninformed comment from a GP (or rheumy).

As for the AA - there are other options if you NEED a bisphosphonate but the questions is as to whether you need one, not everyone does. Before you take any more - make sure you see a dentist and have any necessary work sorted out now before taking the AA since many dentists get very iffy about doing anything once you are on it.

LIVEORDIEHEREIAM profile image
LIVEORDIEHEREIAM

An apple a day...

Works for me!

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