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Vitamin B12 / Folic acid
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RLS returned after taking Duloxetine
Had RLS for many years, associated with Fibromyalgia. Having taken Amitriptylene, Nortriptyline , Pregabalin for my Fibro, my RLS has been under control. Recently started taking Duloxetine to help my Fibro and my RLS has returned with a vengeance. I get very little sleep, as soon as my head hits pillow
Had RLS for many years, associated with Fibromyalgia. Having taken Amitriptylene, Nortriptyline , Pregabalin for my Fibro, my RLS has been under control. Recently started taking Duloxetine to help my Fibro and my RLS has returned with a vengeance. I get very little sleep, as soon as my head hits pillow
Fra3021
in
Restless Legs Syndrome
8 months ago
Can anyone help explain what
hi I just received my blood test results back which all came back normal. I was expecting my homocysteine to be higher as I had stopped b12 twice daily and multi-B the day before. Can anyone tell me what these results mean? Homocysteine:6.9 umol/L ( 5.0 - 15.0 ) Antinuclear Ab:Negative DNA double-strand
hi I just received my blood test results back which all came back normal. I was expecting my homocysteine to be higher as I had stopped b12 twice daily and multi-B the day before. Can anyone tell me what these results mean? Homocysteine:6.9 umol/L ( 5.0 - 15.0 ) Antinuclear Ab:Negative DNA double-strand
brenanddave
in
Pernicious Anaemia Society
8 months ago
Zolendroic acid after discovering compression fractures. Osteoporosis.
This is an update and a thank you really, as well as info for others. Last time I posted I was puzzled about back pain. Later after a scan revealed compression fractures I realised that the digging in the garden in July resulting in back pain which I thought was an old war wound slipped disc, was probably
This is an update and a thank you really, as well as info for others. Last time I posted I was puzzled about back pain. Later after a scan revealed compression fractures I realised that the digging in the garden in July resulting in back pain which I thought was an old war wound slipped disc, was probably
Ebiker
in
PMRGCAuk
6 months ago
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Trial with new exercise method.
With injections of 1mg of both hydroxocabalamin and methyelcobalamin with 6mg of Adenocabalamin 4 times a day along with my oral supplements I was able to walk 5K four Saturdays in a row. I walked slow and had to stop on some of the hills of New Hampshire USA. Each time I was stopping less not reasonably
With injections of 1mg of both hydroxocabalamin and methyelcobalamin with 6mg of Adenocabalamin 4 times a day along with my oral supplements I was able to walk 5K four Saturdays in a row. I walked slow and had to stop on some of the hills of New Hampshire USA. Each time I was stopping less not reasonably
WIZARD6787
in
Pernicious Anaemia Society
8 months ago
Looking for clarity on the best type of injectable B12 please
Information seems to be a bit muddled. I’m looking for the most natural and bioavailable please From what I read, cyanocobalamin [i]
isn’t
[/i] the way to go but there again I’m not sure whether that’s in reference to oral supplementation Does anyone have any links or reliable information
Information seems to be a bit muddled. I’m looking for the most natural and bioavailable please From what I read, cyanocobalamin [i]
isn’t
[/i] the way to go but there again I’m not sure whether that’s in reference to oral supplementation Does anyone have any links or reliable information
Noelnoel
in
Pernicious Anaemia Society
8 months ago
Looking for clarity on the best type of injectable B12 please
Infomatiom seems to be a bit muddled. I’m looking for the most natural and bioavailable please From what I read, cyanocobalamin [i]
isn’t
[/i] the way to go but there again I’m not sure whether that’s in reference to oral supplementation Does anyone have any links or reliable information please
Infomatiom seems to be a bit muddled. I’m looking for the most natural and bioavailable please From what I read, cyanocobalamin [i]
isn’t
[/i] the way to go but there again I’m not sure whether that’s in reference to oral supplementation Does anyone have any links or reliable information please
Noelnoel
in
Thyroid UK
8 months ago
Can thyroid tap or pulse?
Hi, I have been having a number of issues which I thought were low thyroid related, or B12 deficient, both bloods currently look fine thought, apart from my thyroid peroxidase antibodies which have risen from 468KIUL to 502KIUL (range 0-34). What I would like to know is, can thyroid tap or pulse? I
Hi, I have been having a number of issues which I thought were low thyroid related, or B12 deficient, both bloods currently look fine thought, apart from my thyroid peroxidase antibodies which have risen from 468KIUL to 502KIUL (range 0-34). What I would like to know is, can thyroid tap or pulse? I
Ian232
in
Thyroid UK
8 months ago
Can B12 levels fluctuate?
Hi, Can B12 levels fluctuate? I have been having a number of B12 related symptoms, took supplements and felt better. I stopped supplements on the 18th June & had 4 months clear of fortified cereal & so on to check if I have a deficiency. I did an active finger prick test & my level on the 14 September
Hi, Can B12 levels fluctuate? I have been having a number of B12 related symptoms, took supplements and felt better. I stopped supplements on the 18th June & had 4 months clear of fortified cereal & so on to check if I have a deficiency. I did an active finger prick test & my level on the 14 September
Ian232
in
Pernicious Anaemia Society
8 months ago
B12 made symptoms go away
Hi. I had ME/CFS and it seemed to clear up 16 years later. About 3 years ago, I had fatigue, myclonic jerks especially while sleeping which woke me up and tremor feeling inside me. I took B12 sublingual for 2 or 3 weeks and the symptoms subsided. But then I stopped taking the B12 supplements and I have
Hi. I had ME/CFS and it seemed to clear up 16 years later. About 3 years ago, I had fatigue, myclonic jerks especially while sleeping which woke me up and tremor feeling inside me. I took B12 sublingual for 2 or 3 weeks and the symptoms subsided. But then I stopped taking the B12 supplements and I have
MEguy
in
Pernicious Anaemia Society
8 months ago
Getting there, but slowly
More blood tests back now but still don't have all the figures. Serum immunoglobulins all normal Coeliac screen - negative Ferritin 197 (range 13-150) Transferrin saturation 38% (15-45) He's not happy about this even though it's "normal" Homocysteine - normal IFA - still negative Gastric parietal antibodies
More blood tests back now but still don't have all the figures. Serum immunoglobulins all normal Coeliac screen - negative Ferritin 197 (range 13-150) Transferrin saturation 38% (15-45) He's not happy about this even though it's "normal" Homocysteine - normal IFA - still negative Gastric parietal antibodies
Onefish
in
Pernicious Anaemia Society
8 months ago
Functional B12 deficiency
Hi, I have been around a long time and read every day. I have a hard time understanding what a functional deficiency mean. In my case just a few injections brought my MMA and homocysteine down very quickly. Is that a functional deficiency? Seems like I would understand this by now. I have never
Hi, I have been around a long time and read every day. I have a hard time understanding what a functional deficiency mean. In my case just a few injections brought my MMA and homocysteine down very quickly. Is that a functional deficiency? Seems like I would understand this by now. I have never
EiCa
in
Pernicious Anaemia Society
8 months ago
bronchiectisis
hi all , I’m just after a bit of advice . I was diagnosed with this in 2018 - had loads of tests and also have mild asthma . I’m not on any meds only pump when needed which isn’t very often I find it burns and doesn’t really help at all , as I can bring the mucus up on my own . I used it yesterday
hi all , I’m just after a bit of advice . I was diagnosed with this in 2018 - had loads of tests and also have mild asthma . I’m not on any meds only pump when needed which isn’t very often I find it burns and doesn’t really help at all , as I can bring the mucus up on my own . I used it yesterday
Bitxi
in
Lung Conditions Community Forum
8 months ago
Waiting for laperoscopy
Hi everyone :) I am just wondering if anyone has had similar experiences. I had heavy bleeding and pain during my periods, pain and bleeding during and after sex, painful bowel movements during my period. At one time I went travelling and asked if I could take my pill packets together and was told
Hi everyone :) I am just wondering if anyone has had similar experiences. I had heavy bleeding and pain during my periods, pain and bleeding during and after sex, painful bowel movements during my period. At one time I went travelling and asked if I could take my pill packets together and was told
LUCY001
in
Endometriosis UK
6 months ago
Methylcobalamin vs Hydroxocobalamin ?
Does anyone else find they do better on methylcobalamin than hydroxocobalamin? I've done some major googling but not been able to find out much and would like to ask if anyone has had the same experience as me? I started SI for years with Methylcobalamin and was doing great. When stocks became impossible
Does anyone else find they do better on methylcobalamin than hydroxocobalamin? I've done some major googling but not been able to find out much and would like to ask if anyone has had the same experience as me? I started SI for years with Methylcobalamin and was doing great. When stocks became impossible
pipple
in
Pernicious Anaemia Society
8 months ago
advice please
recently been advised that my B12 is normal and waiting to see a neurologist 23 weeks waiting list I was on injections until March and everything was fine I was told nhs was stopping B12 injections and I had to have tablets which didn’t work, I returned to the doctor to and got a one off injection in
recently been advised that my B12 is normal and waiting to see a neurologist 23 weeks waiting list I was on injections until March and everything was fine I was told nhs was stopping B12 injections and I had to have tablets which didn’t work, I returned to the doctor to and got a one off injection in
Imcn1960
in
Pernicious Anaemia Society
8 months ago
Severe RLS Where do I go now?
Hi! I've been lurking reading your posts for a couple of years. I live in Sweden and am a 58 yo female and have severe burning RLS without PLMD. Here's a condensed version of my story: July 2011 Laminectomy C4-C5. no real slide effects except nerve pain in right index finger which I've learned to block
Hi! I've been lurking reading your posts for a couple of years. I live in Sweden and am a 58 yo female and have severe burning RLS without PLMD. Here's a condensed version of my story: July 2011 Laminectomy C4-C5. no real slide effects except nerve pain in right index finger which I've learned to block
e365
in
Restless Legs Syndrome
6 months ago
NICE guidelines
Just had someone at my surgery call to say I haven’t had b12 for years (needless to say untrue) and so cannot receive my usual injection. I have explained that you don’t test B12 while receiving B12 and that the guidelines should be read. I mentioned that the new guidelines are due and should be read
Just had someone at my surgery call to say I haven’t had b12 for years (needless to say untrue) and so cannot receive my usual injection. I have explained that you don’t test B12 while receiving B12 and that the guidelines should be read. I mentioned that the new guidelines are due and should be read
RoseFlowerDew
in
Pernicious Anaemia Society
8 months ago
Doctor has asked to see me.......
I have been SI'ing for 6½ years now. I get some B12 on prescription, but just one a month. I buy the rest myself, and SI every 3 days. I put in my prescription last week and got a call today from the nurse. She said the doctor wants to see me to, and I quote, 'make sure I am doing it right'. I feel like
I have been SI'ing for 6½ years now. I get some B12 on prescription, but just one a month. I buy the rest myself, and SI every 3 days. I put in my prescription last week and got a call today from the nurse. She said the doctor wants to see me to, and I quote, 'make sure I am doing it right'. I feel like
BeachArt
in
Pernicious Anaemia Society
8 months ago
Bloating
What's the score with bloating and bowels with little or to much b12
What's the score with bloating and bowels with little or to much b12
Mozza127
in
Pernicious Anaemia Society
8 months ago
B12 self injection
So we ordered some panpharma b12 injections which arrived yesterday. My partner has a b12 level of 123 with neurological symtoms and gp refuses to treat. I just got my results from my b12 test result last week a level of 202 which gp said was normal. Maybe this was abit stupid but as I have symptoms
So we ordered some panpharma b12 injections which arrived yesterday. My partner has a b12 level of 123 with neurological symtoms and gp refuses to treat. I just got my results from my b12 test result last week a level of 202 which gp said was normal. Maybe this was abit stupid but as I have symptoms
Nic878
in
Pernicious Anaemia Society
8 months ago
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