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Vitamin B12 / Folic acid
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B12 injections and low dose naltrexone (LDN)
I have recently started using LDN (.25mg) w/ positive effects, however it recently seems like I need to increase my B12 injections. I have only been using LDN for a month. Maybe it is just a coincidence but would like others to share their experience/knowledge about this combination.
I have recently started using LDN (.25mg) w/ positive effects, however it recently seems like I need to increase my B12 injections. I have only been using LDN for a month. Maybe it is just a coincidence but would like others to share their experience/knowledge about this combination.
boisland
in
Pernicious Anaemia Society
8 months ago
Alendronic Acid - First Day
..... that's it! I took my first Alendronic Acid pill 70mg an hour ago... I am worried that things will go wrong but let's see. I have been getting a lot of aches and pains of late and it really is bothering me so - hey ho here we go! Hope you are all well David
..... that's it! I took my first Alendronic Acid pill 70mg an hour ago... I am worried that things will go wrong but let's see. I have been getting a lot of aches and pains of late and it really is bothering me so - hey ho here we go! Hope you are all well David
Hidden
in
PMRGCAuk
6 months ago
Alendronic Acid side effects
I've been on Prednisolone for PMR since October 2022, starting on 15mg and now down to 4.5. Reumatologist has told my GP I should be on a bisphosphonate and she's just prescribed Alendronic Acid. Reading the patient leaflet, the side-effects sound pretty grim. I'm going on a river cruise at the
I've been on Prednisolone for PMR since October 2022, starting on 15mg and now down to 4.5. Reumatologist has told my GP I should be on a bisphosphonate and she's just prescribed Alendronic Acid. Reading the patient leaflet, the side-effects sound pretty grim. I'm going on a river cruise at the
Hercules307
in
PMRGCAuk
7 months ago
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Neuropathy in feet, stopping Cymbalta - try more natural?
I'd like to get your opinion if you have been on something like Cymbalta (Duloxetine) and came off to do more natural methods. I'd like to stop the Cymbalta that I've been using for years to help with the neuropathy in my feet and look at other way to see if I can control it vs using an SNRI. I've
I'd like to get your opinion if you have been on something like Cymbalta (Duloxetine) and came off to do more natural methods. I'd like to stop the Cymbalta that I've been using for years to help with the neuropathy in my feet and look at other way to see if I can control it vs using an SNRI. I've
Shomacco
in
Neuropathy Support
8 months ago
Needles for B12 self injection
Hi I used to purchase my B12 and syringes & needles from Rotexmedica which I believe no longer exist. I have now found another company in Germany to order B12 from but they do not supply the needles. Does anybody have a good supplier in Europe? I can't order from the UK as I now in France and there
Hi I used to purchase my B12 and syringes & needles from Rotexmedica which I believe no longer exist. I have now found another company in Germany to order B12 from but they do not supply the needles. Does anybody have a good supplier in Europe? I can't order from the UK as I now in France and there
Mariemcdo
in
Pernicious Anaemia Society
8 months ago
Early signs of PA
I've been giving some thought to how long I've had PA. I was diagnosed about 2 years ago. BUT, when i look back at old photos of myself, my skin colour changed to be quite yellowy (my mum says my dad and his mum both had the yellowy skin tone). This yellowy colour has faded out and I'm much more "white
I've been giving some thought to how long I've had PA. I was diagnosed about 2 years ago. BUT, when i look back at old photos of myself, my skin colour changed to be quite yellowy (my mum says my dad and his mum both had the yellowy skin tone). This yellowy colour has faded out and I'm much more "white
Sailinglady
in
Pernicious Anaemia Society
8 months ago
confused about high b12 but now have PA
I started having small fiber neuropathy several years ago after being exposed to Lyme and Mold. Spent a lot of time treating with herbs to put both into remission, but I still deal with the small fiber neuropathy in my feet, my lips have a blue tinge to them as to the moons on my thumb nails. I just
I started having small fiber neuropathy several years ago after being exposed to Lyme and Mold. Spent a lot of time treating with herbs to put both into remission, but I still deal with the small fiber neuropathy in my feet, my lips have a blue tinge to them as to the moons on my thumb nails. I just
SunriseDaily
in
Pernicious Anaemia Society
23 days ago
Interesting article on more sustainable B12 production
[i]"Research at the Quadram Institute has developed sustainable manufacturing processes for B12, helping address a growing global need for the synthesised vitamin."[/i] The article addresses the issues with high production costs and environmental damage from B12 production, and also mentions CluB-12.
[i]"Research at the Quadram Institute has developed sustainable manufacturing processes for B12, helping address a growing global need for the synthesised vitamin."[/i] The article addresses the issues with high production costs and environmental damage from B12 production, and also mentions CluB-12.
Technoid
in
Pernicious Anaemia Society
8 months ago
Sylvia Plath and B12?
Has anyone else pondered on the links here? Although I can find all sorts of discussion about her early stresses, repeated losses and struggle with depression, even chemical imbalances, possible bipolar, not a jot can I find about the B12 deficiency which she would have had at least at one point, even
Has anyone else pondered on the links here? Although I can find all sorts of discussion about her early stresses, repeated losses and struggle with depression, even chemical imbalances, possible bipolar, not a jot can I find about the B12 deficiency which she would have had at least at one point, even
bookish
in
Pernicious Anaemia Society
8 months ago
Ducks in a row
I was first diagnosed with Pernicious anaemia 3 or 4 years ago but thought nothing of it until my legs and arms started going numb and I kept falling round the place and had difficulty walking and getting up from a fallen or seated position. I now am aware of how serious it is, I've stopped drinking
I was first diagnosed with Pernicious anaemia 3 or 4 years ago but thought nothing of it until my legs and arms started going numb and I kept falling round the place and had difficulty walking and getting up from a fallen or seated position. I now am aware of how serious it is, I've stopped drinking
Whiteways4711
in
Pernicious Anaemia Society
8 months ago
does anyone use cyano b12 and have mthfr mutated genes
hello Everyone, I have been studying reading on this issue and find it very controversial, I feel more calm on the cyano for my last two inj. and have been on the methyl b12 because I read I had to take that only but I realized it was on sites that were selling vitamins. does anyone have any information
hello Everyone, I have been studying reading on this issue and find it very controversial, I feel more calm on the cyano for my last two inj. and have been on the methyl b12 because I read I had to take that only but I realized it was on sites that were selling vitamins. does anyone have any information
JesusMercy60
in
Pernicious Anaemia Society
1 month ago
90 day Update.
Years ago I rejected the principle that EOD was all I could do although it 'worked'. A year ago I rejected the science of detention times as applied to vitamins and minerals. The day I injected 3 times a day was my start of self treatment that not only worked but was more effective. I used the
Years ago I rejected the principle that EOD was all I could do although it 'worked'. A year ago I rejected the science of detention times as applied to vitamins and minerals. The day I injected 3 times a day was my start of self treatment that not only worked but was more effective. I used the
WIZARD6787
in
Pernicious Anaemia Society
1 month ago
Glaucoma B12 relationship?
Has anyone already commented on this or can anyone make any sense from it? Especially the discussion para which just makes no sense to me at all https://www.frontiersin.org/articles/10.3389/fnut.2023.1130032/full Thanks for any thoughts
Has anyone already commented on this or can anyone make any sense from it? Especially the discussion para which just makes no sense to me at all https://www.frontiersin.org/articles/10.3389/fnut.2023.1130032/full Thanks for any thoughts
bookish
in
Pernicious Anaemia Society
8 months ago
Point me in the right direction please :)
Can anyone help me purchasing b12 ampules from bodfeld please.. The packaging and wording has changed since my last lot and don't want to order the wrong thing. Tia x
Can anyone help me purchasing b12 ampules from bodfeld please.. The packaging and wording has changed since my last lot and don't want to order the wrong thing. Tia x
Lj1115
in
Pernicious Anaemia Society
8 months ago
Possible IBD?
Hi Everyone, I hope you’re all doing okay. Sorry to be a pain but I’d love some thoughts and advice from you if possible, please. I’m a 46 male with real worries about the possibility of Crohn’s disease and don’t seem to be able to move past it. It started with a perianal abscess 10 months ago which
Hi Everyone, I hope you’re all doing okay. Sorry to be a pain but I’d love some thoughts and advice from you if possible, please. I’m a 46 male with real worries about the possibility of Crohn’s disease and don’t seem to be able to move past it. It started with a perianal abscess 10 months ago which
farranccc
in
Crohn's and Colitis Support
8 months ago
Query on changing brands and types
Hello all, I am desperately waiting for my usual Panpharma hydroxycobalamin acetate to come back onto the usual German shelves so I can get it ordered. I am on my last box now and bought some different to tide me over but it’s the 2ml product and I am not looking forward to having to use it. 2 questions
Hello all, I am desperately waiting for my usual Panpharma hydroxycobalamin acetate to come back onto the usual German shelves so I can get it ordered. I am on my last box now and bought some different to tide me over but it’s the 2ml product and I am not looking forward to having to use it. 2 questions
Rosydawn
in
Pernicious Anaemia Society
8 months ago
I have hypothyroidism, elevated B12 and elevated MCH. No one knows why. Has anyone experienced this and do you know how to correct it?
I have hypothyroidism, elevated B12 and elevated MCH. No one knows why. Has anyone experienced this and do you know how to correct it?
I have hypothyroidism, elevated B12 and elevated MCH. No one knows why. Has anyone experienced this and do you know how to correct it?
Jeannebon46
in
Pernicious Anaemia Society
8 months ago
B12 injections frequency
Hi I diviculutis (diagnosis November 2022) and in March 2023 was told that I have B12 malabsorption after a blood test due to this I have been having B12 injections every 12 weeks since then. I have also been diagnosed with coeliac disease a few months ago. My problem is around 3 weeks before
Hi I diviculutis (diagnosis November 2022) and in March 2023 was told that I have B12 malabsorption after a blood test due to this I have been having B12 injections every 12 weeks since then. I have also been diagnosed with coeliac disease a few months ago. My problem is around 3 weeks before
Welshtoffee
in
Pernicious Anaemia Society
8 months ago
should I keep going
I started my loading doses of B12 and l was very up and down with it. Then in October l got my first 3mth injection and it floored me for 2wks after that my energy levels started coming back up. I spoke to my doctor about it and she said that maybe I should come off of B12. I got another 3mth in January
I started my loading doses of B12 and l was very up and down with it. Then in October l got my first 3mth injection and it floored me for 2wks after that my energy levels started coming back up. I spoke to my doctor about it and she said that maybe I should come off of B12. I got another 3mth in January
Ooopsy
in
Pernicious Anaemia Society
8 months ago
Alendronic Acid and...
Hi everyone :) I saw my lovely GP last week and we talked about my problems in a really kind manner. I said that I am in pain and aching too often these days. Paracetomol doesn't help :/ I have been on a taper from 7mg - 6mg and in achy town all the time. I told him, again, that the Rheumy ( I
Hi everyone :) I saw my lovely GP last week and we talked about my problems in a really kind manner. I said that I am in pain and aching too often these days. Paracetomol doesn't help :/ I have been on a taper from 7mg - 6mg and in achy town all the time. I told him, again, that the Rheumy ( I
Hidden
in
PMRGCAuk
7 months ago
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