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Vitamin B12 / Folic acid
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Things are getting worse
So i started getting vitaminb12 shots (had a recording of 161 ) in Jan 2024.My doctor started giving me 3 shots in the first week then one shot a week for subsquent 4 weeks.I was told that i will be getting monthly injections now-so in total i have had 7 shots to date.Im experiencing insomnia ever since
So i started getting vitaminb12 shots (had a recording of 161 ) in Jan 2024.My doctor started giving me 3 shots in the first week then one shot a week for subsquent 4 weeks.I was told that i will be getting monthly injections now-so in total i have had 7 shots to date.Im experiencing insomnia ever since
Vongai
in
Pernicious Anaemia Society
5 months ago
Bleeding when injecting
Hi everyone, I have just done a IM in the outside upper thigh area which I always do, alternating legs I use. I have never had bleeding before until this recent injection when I can only describe as a spurt of blood which then became discoloured with the B12 appearing tinged brown. Should I be worried
Hi everyone, I have just done a IM in the outside upper thigh area which I always do, alternating legs I use. I have never had bleeding before until this recent injection when I can only describe as a spurt of blood which then became discoloured with the B12 appearing tinged brown. Should I be worried
Helliborous
in
Pernicious Anaemia Society
5 months ago
New NICE guidelines
On the Pernicious Anaemia Society forum, there is a new thread re the newly released NICE guidelines for Pernicious Anaemia/B12 Deficiency Diagnosis and Treatment in Over 16s [i]
New NICE guidelines
[/i] https://healthunlocked.com/pasoc/posts/150619728/new-nice-guidelines Within that thread,
On the Pernicious Anaemia Society forum, there is a new thread re the newly released NICE guidelines for Pernicious Anaemia/B12 Deficiency Diagnosis and Treatment in Over 16s [i]
New NICE guidelines
[/i] https://healthunlocked.com/pasoc/posts/150619728/new-nice-guidelines Within that thread,
helvella
Thyroid UK
in
Thyroid UK
5 months ago
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Fibro or B12 deficiency??
Hi All I just wanted to share this link which feature Dr Chandy talking about B12 deficiency. I am in both the fibromyalgia group and the one for pernicious anemia. I have been struggling lately with extreme fatigue, pins and needs, numbness in my arms, pain etc, worse then normal. I figured a Fibro
Hi All I just wanted to share this link which feature Dr Chandy talking about B12 deficiency. I am in both the fibromyalgia group and the one for pernicious anemia. I have been struggling lately with extreme fatigue, pins and needs, numbness in my arms, pain etc, worse then normal. I figured a Fibro
Blueoxo
in
Fibromyalgia Action UK
6 months ago
Help! Have I messed up
I have just had a telephone consultation with a GP hoping for help with the symptoms I have been experiencing. I tried to point him in the direction of the relevant guidelines for treating B12 deficiency, he said that he was familiar with the NICE CKS as he deals with B12 all the time and I m not anaemic
I have just had a telephone consultation with a GP hoping for help with the symptoms I have been experiencing. I tried to point him in the direction of the relevant guidelines for treating B12 deficiency, he said that he was familiar with the NICE CKS as he deals with B12 all the time and I m not anaemic
SpringerMom
in
Pernicious Anaemia Society
6 months ago
Increased symptoms after injections.
I'm still trying to get my head around everything and I have a memory like a sieve regarding what I've read to date...I always have had so that's not necessarily due to the P.A. So after 18 years of 10 weekly injections I have now had one a week so far for the last 4 weeks as advised by a consultant.
I'm still trying to get my head around everything and I have a memory like a sieve regarding what I've read to date...I always have had so that's not necessarily due to the P.A. So after 18 years of 10 weekly injections I have now had one a week so far for the last 4 weeks as advised by a consultant.
Suesue246
in
Pernicious Anaemia Society
6 months ago
Advice before I see the endo
hi oracles I could really do with some advice as to what I should do next. I’m going to see my Endo next Tuesday and my TSH is under the range, she’s going to want to reduce my meds and I don’t know what I feel anymore. Here’s my last results from private tests from 2 weeks ago … TSH - 0.154 Range
hi oracles I could really do with some advice as to what I should do next. I’m going to see my Endo next Tuesday and my TSH is under the range, she’s going to want to reduce my meds and I don’t know what I feel anymore. Here’s my last results from private tests from 2 weeks ago … TSH - 0.154 Range
Fliplaar
in
Thyroid UK
6 months ago
The ongoing battle to be well
Since I had Graves diagnosed years ago have struggled with levothyroxine alone..had RAI ...although my previous doctor gave me a private prescription for Thybon Henning Liothyronine. Which I have got - but due to house move changed doctors..present one said it would not help so I did not take it!!
Since I had Graves diagnosed years ago have struggled with levothyroxine alone..had RAI ...although my previous doctor gave me a private prescription for Thybon Henning Liothyronine. Which I have got - but due to house move changed doctors..present one said it would not help so I did not take it!!
Hurtlocker
in
Thyroid UK
6 months ago
B12 Injection Side Effects
Hi! I had my first of 6 B12 injection yesterday and it’s totally floored me. It’s like I’ve been given a sleeping tablet I feel so groggy and spaced out, sick and dizzy and my arms and legs hurt too. Is this normal? The nurse giving it said there shouldn’t be any side effects apart from a sore or red
Hi! I had my first of 6 B12 injection yesterday and it’s totally floored me. It’s like I’ve been given a sleeping tablet I feel so groggy and spaced out, sick and dizzy and my arms and legs hurt too. Is this normal? The nurse giving it said there shouldn’t be any side effects apart from a sore or red
Hidden
in
Pernicious Anaemia Society
6 months ago
Would Low Dose Naltrexone (LDN) affect the absorption of B12 injections?
Would Low Dose Naltrexone (LDN) affect the absorption of B12 injections? Answered by Sebastian Denison, RPh https://youtu.be/jA1P9Jpf2_Y
Would Low Dose Naltrexone (LDN) affect the absorption of B12 injections? Answered by Sebastian Denison, RPh https://youtu.be/jA1P9Jpf2_Y
Shewulf
Administrator
in
LDN Research Trust
6 months ago
Uncooperative GP
My husband died in summer 2022 in hospital. At the time I was having very successful B12 loading injections for anaemia but after his death I was overwhelmed with work. I had asked the surgery not to use my mobile phone number (which they insisted on having) and use my landline instead but the GP
My husband died in summer 2022 in hospital. At the time I was having very successful B12 loading injections for anaemia but after his death I was overwhelmed with work. I had asked the surgery not to use my mobile phone number (which they insisted on having) and use my landline instead but the GP
Eulophia47
in
Pernicious Anaemia Society
6 months ago
BD microfine integral needle and syringe. 199 surplus to requirements.PM me if anyone wants them
Got these for my son to inject B12 but he prefers the separate needle and syringe. Understandably Amazon don’t want them back
Got these for my son to inject B12 but he prefers the separate needle and syringe. Understandably Amazon don’t want them back
Noelnoel
in
Pernicious Anaemia Society
6 months ago
Draft NICE B12?
Hi everyone, I was checking the NICE site for B12 guidelines in anticipation of Wednesday’s publication and noticed that the release date has been removed and the stakeholders updated. I am praying that this is not another delay as my confirmed diagnosis from 2016 was overturned by a new GP as a false
Hi everyone, I was checking the NICE site for B12 guidelines in anticipation of Wednesday’s publication and noticed that the release date has been removed and the stakeholders updated. I am praying that this is not another delay as my confirmed diagnosis from 2016 was overturned by a new GP as a false
RoseFlowerDew
in
Pernicious Anaemia Society
6 months ago
Winter Down Turn
I experienced a slowing of healing during the winter months. The reasons are not definitively knowable. This seems to be on the wane. Factors are less light, less sun energy, lower outside ambivalent temperature and only 16 weeks of not under supplementing. It is also a factor I have learned to expect
I experienced a slowing of healing during the winter months. The reasons are not definitively knowable. This seems to be on the wane. Factors are less light, less sun energy, lower outside ambivalent temperature and only 16 weeks of not under supplementing. It is also a factor I have learned to expect
WIZARD6787
in
Pernicious Anaemia Society
6 months ago
Long Covid, B12 and Iron Deficiency
From our friend Mixteca A long listen - so make a brew, or two! 👂 https://podcasts.apple.com/gb/podcast/tlc-sessions-living-with-long-covid/id1574768076?i=1000647589189
From our friend Mixteca A long listen - so make a brew, or two! 👂 https://podcasts.apple.com/gb/podcast/tlc-sessions-living-with-long-covid/id1574768076?i=1000647589189
Wwwdot
in
Pernicious Anaemia Society
6 months ago
B12 ??
Hi does anyone else have episodes of lightheadedness, reaching out for an object to miss it or keep dropping things. Also miss judging space, like walking into things. I have constant brain fog and fatigue . I have lucid dreaming it's not fun it's like having a tv on in my head 24/7 I am excusted all
Hi does anyone else have episodes of lightheadedness, reaching out for an object to miss it or keep dropping things. Also miss judging space, like walking into things. I have constant brain fog and fatigue . I have lucid dreaming it's not fun it's like having a tv on in my head 24/7 I am excusted all
LorraineQ
in
Pernicious Anaemia Society
6 months ago
Haz58
Hello Haz58, I’m sorry you are having such a rotten time in sorting out the medications which you can tolerate. I could not take Azapriothine or Methotrexate but have settled reasonably happily with a daily routine of Bisoprolol, Levothyroxine, Amlodipine, Prednisolone, Ursodeoxycholic Acid, Losartan
Hello Haz58, I’m sorry you are having such a rotten time in sorting out the medications which you can tolerate. I could not take Azapriothine or Methotrexate but have settled reasonably happily with a daily routine of Bisoprolol, Levothyroxine, Amlodipine, Prednisolone, Ursodeoxycholic Acid, Losartan
Katiecatweazel
in
NRAS
3 months ago
low levels of T4 & T3 on 3 grains of NDT
Dear all, Again I need some help with my blood tests interpretation and further steps. I’m currently on 3 grains of thyroid-s and my results are as shown on the table below. Both FT3 & FT4 levels are not satisfactory. Could this be because of the low levels of ferritin, D3 and B12? Or do I need to
Dear all, Again I need some help with my blood tests interpretation and further steps. I’m currently on 3 grains of thyroid-s and my results are as shown on the table below. Both FT3 & FT4 levels are not satisfactory. Could this be because of the low levels of ferritin, D3 and B12? Or do I need to
selenipap
in
Thyroid UK
6 months ago
Help Ordering B12 from Germany, pls
I need to order B12 injection so gone to VersandApo site, gone to checkout but where it says 'Address should be in Germany' what do I need to do for delivery to UK, please? I've had B12 ampoules from here twice before but not experienced this so I'm at loss and need some help please ... Many thanks
I need to order B12 injection so gone to VersandApo site, gone to checkout but where it says 'Address should be in Germany' what do I need to do for delivery to UK, please? I've had B12 ampoules from here twice before but not experienced this so I'm at loss and need some help please ... Many thanks
JMN2017
in
Pernicious Anaemia Society
6 months ago
Alendronic acid and raised Potassium levels
Hi I have been on Alendronic acid for 4 mths now. I have - 3 lumbar spinal osteoporosis but also have chronic kidney deficiency. My past two blood tests are showing raised 5.7 mmols/l and I’m wondering if it’s linked to my Alendronic acid?
Hi I have been on Alendronic acid for 4 mths now. I have - 3 lumbar spinal osteoporosis but also have chronic kidney deficiency. My past two blood tests are showing raised 5.7 mmols/l and I’m wondering if it’s linked to my Alendronic acid?
Ukalady
in
Bone Health and Osteoporosis UK
3 months ago
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