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Vitamin B12 / Folic acid
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B12 Def + Porphyria possible connection!
Hello Friends, My porphyria symptoms showed up about 15 years ago when I suddenly became "allergic" to the sun. Symptoms include digestive inflammation, feelings of heat travelling up and down my legs and arms, and an emotional feeling of desperation. Since then I have pretty much kept out of the
Hello Friends, My porphyria symptoms showed up about 15 years ago when I suddenly became "allergic" to the sun. Symptoms include digestive inflammation, feelings of heat travelling up and down my legs and arms, and an emotional feeling of desperation. Since then I have pretty much kept out of the
GracePV
in
Pernicious Anaemia Society
5 months ago
Infusions
Can anyone tell me if you can have B12 infusions, similar to iron infusions I suppose .Thank you.
Can anyone tell me if you can have B12 infusions, similar to iron infusions I suppose .Thank you.
36Hele
in
Pernicious Anaemia Society
5 months ago
Gastric parietal cell antibodies OR IFAB? Do I need both??
Hi there, I tested negative for GPCA, but I haven't done IFAB. Having done GPCA, is that enough? Should I also do IFAB? I am on eod si injections, but for my peace of mind and for my GP to stop upsetting me/scaring me with their lack of b12 knowledge. I'd really like to at least TRY for a confirmatory
Hi there, I tested negative for GPCA, but I haven't done IFAB. Having done GPCA, is that enough? Should I also do IFAB? I am on eod si injections, but for my peace of mind and for my GP to stop upsetting me/scaring me with their lack of b12 knowledge. I'd really like to at least TRY for a confirmatory
Suffering_sunny
in
Pernicious Anaemia Society
5 months ago
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Tips for Circumcision
These are just some handy tips from what I have been through and I thought to share them as many have helped me and gave me advice. It’s a long read but hopefully it’s helpful. There can be a lot of uncertainty and impatience over the first 10 days or so but it’s really helpful to find someone to talk
These are just some handy tips from what I have been through and I thought to share them as many have helped me and gave me advice. It’s a long read but hopefully it’s helpful. There can be a lot of uncertainty and impatience over the first 10 days or so but it’s really helpful to find someone to talk
Barkincroup
in
Men's Health Forum (Penis Health)
3 months ago
Good news on memory following B12 treatment
Hi, some of the regular posters may remember me posting in absolute despair last autumn about my husband’s cognitive issues and extreme memory loss. I’m now posting an update in case it helps anyone else in his position. In summary he had experienced symptoms over a couple of decades since he was twenty
Hi, some of the regular posters may remember me posting in absolute despair last autumn about my husband’s cognitive issues and extreme memory loss. I’m now posting an update in case it helps anyone else in his position. In summary he had experienced symptoms over a couple of decades since he was twenty
Zmalp
in
Pernicious Anaemia Society
5 months ago
Elderly relative ignoring my advice re B12.
I wonder if others on this forum have a similar problem and can help. My MIL is 91 and has some symptoms of B12D, Which could be put down to 'old age' but I'm beginning to wonder if a lot of 'old age' is really B12D. We have repeatedly told her about the importance of B12 and how many older people
I wonder if others on this forum have a similar problem and can help. My MIL is 91 and has some symptoms of B12D, Which could be put down to 'old age' but I'm beginning to wonder if a lot of 'old age' is really B12D. We have repeatedly told her about the importance of B12 and how many older people
charks
in
Pernicious Anaemia Society
5 months ago
Surprised!!!
I have been feeling bit cocky as I think I've been doing well.....decided to take the step method of tapering (Kate Gilbert book) Dr supporting me.....Now down to 8/7 mg of steroids 2 days for this week..... discomfort in right shoulder but nothing to complain about... Yesterday I was poleaxed could
I have been feeling bit cocky as I think I've been doing well.....decided to take the step method of tapering (Kate Gilbert book) Dr supporting me.....Now down to 8/7 mg of steroids 2 days for this week..... discomfort in right shoulder but nothing to complain about... Yesterday I was poleaxed could
Tescohednesford
in
PMRGCAuk
3 months ago
B12 or B complex
Hi just wondering is it better to take b12 or complex for hypothyroidism? Thanks
Hi just wondering is it better to take b12 or complex for hypothyroidism? Thanks
Bridkid67
in
Thyroid UK
5 months ago
PA/stomach pain
Hi all, I’m so grateful for all of your support as I’ve started down this road. Got diagnosed with PA/AIG in the fall via an endoscopy. I am on B12 injections. My stomach pain has gotten steadily worse instead of better even though I am on a very restrictive diet. Is there any reason for me to believe
Hi all, I’m so grateful for all of your support as I’ve started down this road. Got diagnosed with PA/AIG in the fall via an endoscopy. I am on B12 injections. My stomach pain has gotten steadily worse instead of better even though I am on a very restrictive diet. Is there any reason for me to believe
Lhood08
in
Pernicious Anaemia Society
5 months ago
versandApo order
hi, Ordered b12 ampoules from above site (have ordered before and arrived quickly). Order was placed 10th April and haven’t received yet. I messaged them and have had a reply saying it’s currently at customs. The email says contact customs to resolve matter. So not sure now if there is an issue or
hi, Ordered b12 ampoules from above site (have ordered before and arrived quickly). Order was placed 10th April and haven’t received yet. I messaged them and have had a reply saying it’s currently at customs. The email says contact customs to resolve matter. So not sure now if there is an issue or
Fluffyone
in
Pernicious Anaemia Society
5 months ago
Trying to understand thyroid test results
Good morning I'm new here & been reading posts, it's been incredibly helpful.I'm 61, been feeling unwell since last summer, pushed my GP for tests etc but now paying privately for endocrinologist who is testing everything! My latest results are: Serum free triiodothyronine 5.6 (3.5-5.8) Serum TSH 5.32
Good morning I'm new here & been reading posts, it's been incredibly helpful.I'm 61, been feeling unwell since last summer, pushed my GP for tests etc but now paying privately for endocrinologist who is testing everything! My latest results are: Serum free triiodothyronine 5.6 (3.5-5.8) Serum TSH 5.32
Elle137
in
Thyroid UK
5 months ago
Versandapo Panpharma B12 available ?
I have had 3 emails from Versandapo alerting me Panpharma is now in stock. Each time I go on their site and check it says currently out of stock ! I’ve been checking on the same day I receive the emails. Is this happening to anyone else ? I have already purchased the Pascoe brand B12 1500ug ampoules
I have had 3 emails from Versandapo alerting me Panpharma is now in stock. Each time I go on their site and check it says currently out of stock ! I’ve been checking on the same day I receive the emails. Is this happening to anyone else ? I have already purchased the Pascoe brand B12 1500ug ampoules
Ryaan
in
Pernicious Anaemia Society
5 months ago
Low B12
Please can you lovely people let me know which B12 and Vit B complex are the best bearing in mind I’m vegetarian and dairy free? My levels are miserable! Thank you 🥰
Please can you lovely people let me know which B12 and Vit B complex are the best bearing in mind I’m vegetarian and dairy free? My levels are miserable! Thank you 🥰
Joant24
in
Thyroid UK
5 months ago
omeprazole
so just discovered that stomach acid inhibeters(omeprazole) stop you producing b12 and can lead to restless leg! now taking b12 supplements and NO rls for 20 days. May not work for you but for 14 pounds its worth a punt. good luck
so just discovered that stomach acid inhibeters(omeprazole) stop you producing b12 and can lead to restless leg! now taking b12 supplements and NO rls for 20 days. May not work for you but for 14 pounds its worth a punt. good luck
otter5
in
Restless Legs Syndrome
5 months ago
zoledronic acid infusion
I had my second infusion of zoledronic acid on the 25th April and I must say it seems to be helping I am not getting as much back pain, I know that they don't know exactly when to stop it because it begins to make bones brittle after a time, and then it looks like prolia which seems dodgy,
I had my second infusion of zoledronic acid on the 25th April and I must say it seems to be helping I am not getting as much back pain, I know that they don't know exactly when to stop it because it begins to make bones brittle after a time, and then it looks like prolia which seems dodgy,
Radars
in
Bone Health and Osteoporosis UK
3 months ago
B12 - a hidden inflammation trigger
I found this of interest. When I were diagnosed both my ESR and CRP were both above range when tested and still are !..... https://www.eurekalert.org/news-releases/1004963#:~:text=A%20new%20study%20has%20identified,%2C%20diabetes%2C%20and%20neurodegenerative%20disorders. Added this one in case other
I found this of interest. When I were diagnosed both my ESR and CRP were both above range when tested and still are !..... https://www.eurekalert.org/news-releases/1004963#:~:text=A%20new%20study%20has%20identified,%2C%20diabetes%2C%20and%20neurodegenerative%20disorders. Added this one in case other
Jillymo
in
Pernicious Anaemia Society
5 months ago
I feel like crying ...
I consulted a private B12 specialist who put me on EOD
B12
and high dose
folic
acid
and
Vitamin
D. They did a blood test and confirmed I had autoimmune antibodies. Neurologist then excluded any neurological autoimmune condition.
I consulted a private B12 specialist who put me on EOD
B12
and high dose
folic
acid
and
Vitamin
D. They did a blood test and confirmed I had autoimmune antibodies. Neurologist then excluded any neurological autoimmune condition.
Wwwdot
in
Pernicious Anaemia Society
14 days ago
B-12 Def in Mexico (no health insurance)
Here is my (ongoing) thread to detail my B12 journey. Here goes! 2-3 years before diagnosis I began having the following symptoms. Numbness in toes which slowly spread to feet then ankles, then calves. A slow deterioration of muscle tone all over. Periods of intermittent dizziness/vertigo and fatigue
Here is my (ongoing) thread to detail my B12 journey. Here goes! 2-3 years before diagnosis I began having the following symptoms. Numbness in toes which slowly spread to feet then ankles, then calves. A slow deterioration of muscle tone all over. Periods of intermittent dizziness/vertigo and fatigue
GracePV
in
Pernicious Anaemia Society
6 months ago
Frequency of Hydroxocobalamin injections in UK
Hi everyone, I'm a long time sufferer of PA, initial symptoms aged 13, finally diagnosed at 26, will be 50 this year. Also suffer with chronic fatigue, endometriosis, now menopause, all good fun! I am lucky that for years I have had an understanding doctor, used to have my injections every 8 weeks
Hi everyone, I'm a long time sufferer of PA, initial symptoms aged 13, finally diagnosed at 26, will be 50 this year. Also suffer with chronic fatigue, endometriosis, now menopause, all good fun! I am lucky that for years I have had an understanding doctor, used to have my injections every 8 weeks
MissPoshOxford
in
Pernicious Anaemia Society
6 months ago
b12 deficiency and MRI scanner...
Hi everyone, Weird question... Did anyone else who has had an MRI, find that it upset your nerves for a while after? (Like weeks) I cannot tell if it was that, or the heightened stress of awaiting my results... So, thought I'd ask on here? It was 2 weeks after my first one that my whole body crashed
Hi everyone, Weird question... Did anyone else who has had an MRI, find that it upset your nerves for a while after? (Like weeks) I cannot tell if it was that, or the heightened stress of awaiting my results... So, thought I'd ask on here? It was 2 weeks after my first one that my whole body crashed
Suffering_sunny
in
Pernicious Anaemia Society
6 months ago
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