Surprised!!!: I have been feeling bit cocky as I... - PMRGCAuk

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Surprised!!!

Tescohednesford profile image

I have been feeling bit cocky as I think I've been doing well.....decided to take the step method of tapering (Kate Gilbert book) Dr supporting me.....Now down to 8/7 mg of steroids 2 days for this week..... discomfort in right shoulder but nothing to complain about...

Yesterday I was poleaxed could hardly do anything I had felt tired since Sat...such an effort!

As with most of us you try to explain it away.....is it this....oh it's the steroids.

I then realised ....I'd had a real temper tantrum and stood and did my son's and his children's ironing as it had been sitting there for 10 days....it took me hrs.

So lesson learned...next time my son decides to leave his mess everywhere.... throw it out in the garden....problem solved.... 😂

I decided not to take the Alendronic Acid and upped my calcium intake instead ...

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Tescohednesford profile image
Tescohednesford
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23 Replies
DorsetLady profile image
DorsetLadyPMRGCAuk volunteer

Temper tantrums might make you feel good at the time, but they do have a habit of reminding you afterwards that the extra adrenaline you require for them isn’t forthcoming when on Pred.. 🤦🏻‍♀️

.. what step down method - the alternate days approach? Many find the slower taper easier on body.. but if what you are doing suits you, fair enough.

Not sure about throwing son’s stuff in garden.. you might have to clear it up… and that’s too much bending..🤣😂

Tescohednesford profile image
Tescohednesford in reply to DorsetLady

Hi Dorset Lady.....yes it's dropping 1mg week 1....2mg week 2 and so on....Apparently the body gets fooled into not really noticing the drop and a good way to switch the adrenal glands on....

So I thought I would try it....but will still use the flare up protocol if needed....

Hopefully my son's house will be ready in a couple of weeks and further tantrums can be avoided... 😂

DorsetLady profile image
DorsetLadyPMRGCAuk volunteer in reply to Tescohednesford

So the same as my 7 week simple taper then…. not alternate days…but do monitor the shoulder, and we usually say don’t continue tapering if there is a return of pain. Or return to previous stage [week] and repeat that.

Tescohednesford profile image
Tescohednesford in reply to DorsetLady

Yes.....and thank you for the advice.xx

random901 profile image
random901

Throw stuff in garden and LEAVE it there. I've done same, put it in bin bags 1st.

Tescohednesford profile image
Tescohednesford in reply to random901

Good idea!!I was just so angry.....

Temoral profile image
Temoral in reply to Tescohednesford

We were not born into slavery....adults clean their own mess...we are helping them to grow up! 😉🤣

Tescohednesford profile image
Tescohednesford in reply to Temoral

He's 43......Only moved in till his house was completed.....

Just a few more weeks!!!😂

Tescohednesford profile image
Tescohednesford in reply to Tescohednesford

Oh, that was 9 months ago.....Not long after that I developed PMR!

DorsetLady profile image
DorsetLadyPMRGCAuk volunteer in reply to Tescohednesford

Doesn’t time fly when you are having fun!

Think you need a crowbar!

Tescohednesford profile image
Tescohednesford in reply to DorsetLady

Well you joke..I've just engaged a builder who can do most things....

I'm taking him over to my son's today.....just told him to do what he needs to do so my son can move in..

Expensive crow bar......but bloody effective.... 😂

DorsetLady profile image
DorsetLadyPMRGCAuk volunteer in reply to Tescohednesford

Think you need to put your tough love hat on… firmly! 🙄

Tescohednesford profile image
Tescohednesford in reply to DorsetLady

After feeling I've gone backwards.....after I've felt so well.You are right.....x

Rynn33 profile image
Rynn33

on the ironing - I just fold them and put them in the drawers then get your son to iron “on demand” when they come back out and look dodgy - the kids used to throw them all around the drawers etc anyway so waste of time ! Sore shoulders are very draining as you realise how much you use them.

Almostaweed profile image
Almostaweed

I gave up ironing a long time ago. Waste of time in my opinion. If you shake out clothes and flatten them, and sometimes fold them, before you dry them they iron themselves (near enough!). But I did laugh at your meltdown. In the last year I have developed a 'zero tolerance of anxiety' policy. Once an anxiety about something I don't want to do reaches a certain pitch, is interfering with my capacity to live, and doesn't go away, I just dodge the challenge - tell people that although I said I would do something, I can't actually do it without suffering too much anxiety. It's embarrassing and gives people a shock but I feel I have to put survival ahead of keeping my own good opinion of myself and pleasing whoever it is. I am hoping I will gradually be able to be more helpful and reliable again as I get better (but will keep zero tolerance of anxiety in my toolbox). I once saw a dachshund being dragged along the street by its owner and its short little legs could not keep up. It suddenly flopped on the pavement and refused to comply. Interesting, and successful, tactic. Hope I'm not encouraging bad behaviour!

PMRpro profile image
PMRproAmbassador in reply to Almostaweed

My younger daughter used to do the dachshund trick!!!! Very effective!

Almostaweed profile image
Almostaweed in reply to PMRpro

More laughs. I like this thread.

Temoral profile image
Temoral in reply to Almostaweed

😉🤣

Tescohednesford profile image
Tescohednesford in reply to Almostaweed

Trouble is.... he puts all the stuff in the tumble drier....and then leaves it....that's after forgetting he's put washing in the washing machine...... for a few hrs ..So even tho the shake n flatten is good (tried tested and used)....

I'm afraid it would be lost on him!😂

But I may take up the Dachshund method....

Almostaweed profile image
Almostaweed in reply to Tescohednesford

I was afraid you might mention a tumble drier!

Tescohednesford profile image
Tescohednesford in reply to Almostaweed

You could feel it in your water🤣😂

Almostaweed profile image
Almostaweed

Or in my poor old bones. People who don't do the washing imagine that it is all done by machines.

Tescohednesford profile image
Tescohednesford in reply to Almostaweed

That's true....it always seems easy if someone else is doing it....

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