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Hydroxyurea to give
Since doc change my meds to Jakafi and Pegasys, I want to give my HU 1 box (100 caps) to anyone who need it.I can to send it to MPN fellow with this treatment who live in Indonesia, simple because cost of air cargo. Cheers
Since doc change my meds to Jakafi and Pegasys, I want to give my HU 1 box (100 caps) to anyone who need it.I can to send it to MPN fellow with this treatment who live in Indonesia, simple because cost of air cargo. Cheers
william-Indo
in
MPN Voice
1 year ago
Starting to struggle
Hi I've been diagnosed for a couple of years now although I've struggled on medication, I'm waiting to go on adalimumab injection. I feel like even though I've felt rough on other meds waiting to start this I've felt as if I've crashed and burnt with Ra. I feel so bad joint wise and feel so down which
Hi I've been diagnosed for a couple of years now although I've struggled on medication, I'm waiting to go on adalimumab injection. I feel like even though I've felt rough on other meds waiting to start this I've felt as if I've crashed and burnt with Ra. I feel so bad joint wise and feel so down which
Penelopepitstoq1uk
in
NRAS
1 year ago
eye problem
Hi all, any advice as it being Saturday. Yesterday, right eye got a swelling at the side of eyebrow, not painful just hurt to touch. By last night small lump which then became very itchy developed. Thought it may be a bite. Woke up this am. Small lump or spot still there, still itchy but eyelid all puffy
Hi all, any advice as it being Saturday. Yesterday, right eye got a swelling at the side of eyebrow, not painful just hurt to touch. By last night small lump which then became very itchy developed. Thought it may be a bite. Woke up this am. Small lump or spot still there, still itchy but eyelid all puffy
lennysmummy
in
PMRGCAuk
1 year ago
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The Double Vision Issue with GCA
Hi all, I'm a GCA patient, having been diagnosed in AUG 2022. I started on 60 MG PRED, and after 9 months have titrated down to 12.5MG. I am under the care of a GP, ophthalmologist, and rheumatologist. PRIOR to being diagnosed with GCA, somewhere around MARCH 2022, I started noticing I had double
Hi all, I'm a GCA patient, having been diagnosed in AUG 2022. I started on 60 MG PRED, and after 9 months have titrated down to 12.5MG. I am under the care of a GP, ophthalmologist, and rheumatologist. PRIOR to being diagnosed with GCA, somewhere around MARCH 2022, I started noticing I had double
montebello
in
PMRGCAuk
1 year ago
Help please is it possible in a month for the angle to change from narrow to wide open angles? This just doesn’t make sense to me.
Hello again, Well I am still in the system waiting for my next appointment on July 4th. My new consultant says I now have treated primary narrow angles, does that mean the laser has worked is this what opens the angles? My letter on 17th April stated the following: This was 6 Weeks after 2nd
Hello again, Well I am still in the system waiting for my next appointment on July 4th. My new consultant says I now have treated primary narrow angles, does that mean the laser has worked is this what opens the angles? My letter on 17th April stated the following: This was 6 Weeks after 2nd
KBIOW
in
Glaucoma UK
1 year ago
Upcoming Trabeculectomy
I've put a couple of posts on here, mainly about driving and my troubles with Specsavers and the DVLA. I'm currently still driving after getting a 12 month licence back on appeal. My latest visits to my consultant have revealed that my pressures are rising in both eyes ([i]I have advanced closed angle
I've put a couple of posts on here, mainly about driving and my troubles with Specsavers and the DVLA. I'm currently still driving after getting a 12 month licence back on appeal. My latest visits to my consultant have revealed that my pressures are rising in both eyes ([i]I have advanced closed angle
nstewart61
in
Glaucoma UK
1 year ago
Uti and vaginal irritation
.I suffer from recurrant uti .I also have on going vaginal itching on and off .does anyone have this prob and could uti cause irritation. Would appreciate any information thank you and have a nice day 🥲
.I suffer from recurrant uti .I also have on going vaginal itching on and off .does anyone have this prob and could uti cause irritation. Would appreciate any information thank you and have a nice day 🥲
Dextersam10
in
Pelvic Pain Support Network
1 year ago
DVLA /SPECSAVERS
Hi everyone -after reading of so many people and their awful experience with Specsavers and having licences revoked- and I am so fearful for my own future in this regard as we just never know! I contacted the administrators of this group to see if they could help or raise issues on our behalf and I
Hi everyone -after reading of so many people and their awful experience with Specsavers and having licences revoked- and I am so fearful for my own future in this regard as we just never know! I contacted the administrators of this group to see if they could help or raise issues on our behalf and I
swanlady123
in
Glaucoma UK
1 year ago
Woo hoo I've finally smashed it!
Set off at 7am, still 18C, can you believe it? I told myself this was just another run and if it was too warm to go the distance, well the graduation run would still be there for another day. A few minutes in and I've hit my happy pace. My music was calming overlaid by beautiful birdsong. Then the 15
Set off at 7am, still 18C, can you believe it? I told myself this was just another run and if it was too warm to go the distance, well the graduation run would still be there for another day. A few minutes in and I've hit my happy pace. My music was calming overlaid by beautiful birdsong. Then the 15
Sax64
Graduate
in
Couch to 5K
1 year ago
Methylene Blue
Has anyone used or considered Methylene Blue in very low dosages for their Parkinson's? Franciso Gonzalez-Lima of the University of Texas, Austin is an expert on its advantages for treating neurological diseases. Mercola did an interview with him on the subject. Mercola does not promote synthetic drugs
Has anyone used or considered Methylene Blue in very low dosages for their Parkinson's? Franciso Gonzalez-Lima of the University of Texas, Austin is an expert on its advantages for treating neurological diseases. Mercola did an interview with him on the subject. Mercola does not promote synthetic drugs
Trailing
in
Cure Parkinson's
1 year ago
Blepharitis and Gluacoma
Does anyone suffer with the above with their gluacoma, my gluacoma is open Angle and I also have Cataracts in both eyes which need surgery but first I have to get my blepharitis uncontrol, I have brought a eye bag to heat in the microwave which is working well, are there other things people used like
Does anyone suffer with the above with their gluacoma, my gluacoma is open Angle and I also have Cataracts in both eyes which need surgery but first I have to get my blepharitis uncontrol, I have brought a eye bag to heat in the microwave which is working well, are there other things people used like
PeterRabbit62
in
Glaucoma UK
1 year ago
US doctor discusses ways to prevent PD
US doctor discusses ways to prevent PD. The estimate is 15% of PwP have a genetic cause and 85% is from environmental exposure to chemicals. Some have been discussed here. I don't think TCE has been. It was used in dry cleaning and semiconductor processing, but for many years now the US and Japan
US doctor discusses ways to prevent PD. The estimate is 15% of PwP have a genetic cause and 85% is from environmental exposure to chemicals. Some have been discussed here. I don't think TCE has been. It was used in dry cleaning and semiconductor processing, but for many years now the US and Japan
pvw2
in
Cure Parkinson's
1 year ago
Pegasys Injection Help
Anyone use insulin needles to inject Pegasys? It appears to be exactly the same other than it says "units" where my prescription calls out "mls". However they both measure out the same. .25ml = 25units Thanks!
Anyone use insulin needles to inject Pegasys? It appears to be exactly the same other than it says "units" where my prescription calls out "mls". However they both measure out the same. .25ml = 25units Thanks!
russkatt
in
MPN Voice
1 year ago
Cataracts and Lazy eye
Hi every one, I am due to have cataract surgery in a few months. I will be having my left eye done first which is a Lazy eye.Has anyone had this done and does it improve sight in that eye.
Hi every one, I am due to have cataract surgery in a few months. I will be having my left eye done first which is a Lazy eye.Has anyone had this done and does it improve sight in that eye.
Lizzyanne567
in
Glaucoma UK
1 year ago
DVLA licence renewal
Two years ago I had to inform the DVLA that I had developed glaucoma in both eyes. It was a very stressful time as I had a trabeculectomy, corrective surgery and cataract removal before embarking on the vision test. The Specsavers team was very helpful in deferring my test until I felt ready to take
Two years ago I had to inform the DVLA that I had developed glaucoma in both eyes. It was a very stressful time as I had a trabeculectomy, corrective surgery and cataract removal before embarking on the vision test. The Specsavers team was very helpful in deferring my test until I felt ready to take
Eahldt
in
Glaucoma UK
1 year ago
Another Potential Benefit Of Melatonin for PwP
People with PD have a higher prevalence of cataracts compared to the general older population as discussed in the following link : https://www.ajmc.com/view/cataract-surgery-more-common-in-patients-with-parkinson-disease-prior-to-diagnosis Here is a relevant quote from the article :
' Patients
People with PD have a higher prevalence of cataracts compared to the general older population as discussed in the following link : https://www.ajmc.com/view/cataract-surgery-more-common-in-patients-with-parkinson-disease-prior-to-diagnosis Here is a relevant quote from the article :
' Patients
chartist
in
Cure Parkinson's
1 year ago
New law coming from Dvla concerning eyesight
https://www.express.co.uk/life-style/cars/1774268/dvla-eyesight-driving-law-changes?fbclid=IwAR1MPiCB1eWCZxqm0KokCBkai3R4dKy4GYMtNhRHIwPy2ZrnnYKni1TbdtY DVLA to introduce major overhaul of eyesight driving rules 'in the coming weeks "Major changes could be introduced in the very near future which could
https://www.express.co.uk/life-style/cars/1774268/dvla-eyesight-driving-law-changes?fbclid=IwAR1MPiCB1eWCZxqm0KokCBkai3R4dKy4GYMtNhRHIwPy2ZrnnYKni1TbdtY DVLA to introduce major overhaul of eyesight driving rules 'in the coming weeks "Major changes could be introduced in the very near future which could
Christian636
in
Glaucoma UK
1 year ago
Extrahelp
Does anyone have an update on taking vitB3 niacin? After asking what I could personally do to help with my glaucoma, apart from the obvious healthy eating and regular excercise my consultant wrote down supplements, albeit no strength was mentioned. So since nov 2022 (the last time I saw that particular
Does anyone have an update on taking vitB3 niacin? After asking what I could personally do to help with my glaucoma, apart from the obvious healthy eating and regular excercise my consultant wrote down supplements, albeit no strength was mentioned. So since nov 2022 (the last time I saw that particular
Extrahelp
in
Glaucoma UK
1 year ago
Does anybody have uveitic glaucoma? What treatment have you had
I was diagnosed with uveitis when i was 14 and unfortuently also developed secondary glaucoma induced by the steriod eye drops which were being used to treat the uvietis. I had a bardvelt shunt to both eyes approx 10 years ago but they are no longer functioning so I am back on eyedrops to control my
I was diagnosed with uveitis when i was 14 and unfortuently also developed secondary glaucoma induced by the steriod eye drops which were being used to treat the uvietis. I had a bardvelt shunt to both eyes approx 10 years ago but they are no longer functioning so I am back on eyedrops to control my
summersea
in
Glaucoma UK
1 year ago
Fixapost (latanoprost/ timolol) sore eyes please share your expereinces
Hi there, I've been using fixapost eye drops for 2 days now and my eyes feel extremely gritty, dry and red. Is this likely to pass once my eyes adjust to the new drops? Ive also noticed the redness is even worse upon waking up in the morning/ after a nap/ Prior to this i had been on tiopex (timolol
Hi there, I've been using fixapost eye drops for 2 days now and my eyes feel extremely gritty, dry and red. Is this likely to pass once my eyes adjust to the new drops? Ive also noticed the redness is even worse upon waking up in the morning/ after a nap/ Prior to this i had been on tiopex (timolol
summersea
in
Glaucoma UK
1 year ago
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