Extrahelp

[Extrahelp]

Does anyone have an update on taking vitB3 niacin? After asking what I could personally do to help with my glaucoma, apart from the obvious healthy eating and regular excercise my consultant wrote down supplements, albeit no strength was mentioned. So since nov 2022 (the last time I saw that particular consultant) I have been taking Ginkgo Biloba/120mg, CoQ-10/100mg and VitB3 Niacin/100mg-all x1 dose daily. I read an old post on here recently and someone was taking 6x500mg VitB3 daily and their glaucoma had become stable. I can't find where I can purchase the higher dose. Any help/suggestions/update re VitB3 greatly appreciated.. thankyou

[VerdiG]

I have been taking B3 because I read about the experiment done with glaucoma patients. In that research they were given very high doses of it . 3000 mg every day for a period of time. I believe Moorfiekds are now doing trials. I asked my Eye consultant about it. He said they are not allowed to prescribe it at present, as research is insufficient. You can easily find it to buy in online health stores. I have it in 250mg and 500mg capsules. I started on 250 and gradually built up to 1000 a day. Eye consultant said it was worth trying although he couldn’t recommend a dose. My glaucoma has stabilised although I don’t think it would be down to B3 alone as I am a bit forgetful with pills. Definately worth trying . I also take Ginko Bilbao but I think research on that has only be done in mice.

[Extrahelp in reply to VerdiG]

Brilliant. thanku.I already take 100mg a day since November when I asked what I could do to help myself..

I've just ordered 500mg ones to replace the 100mg and will build up gradually.

My desperation is making me look at everything!

[VerdiG in reply to Extrahelp]

yes, it’s worth taking and let’s hope trials at Moorfields are positive. What helped me most though was changing my thinking around it and stopping the anxiety and panic.

[Extrahelp in reply to VerdiG]

Yes I must keep thinking positive and looking for positive stuff. I am very much an optimist but this situation brings me down from time to time.. as I guess with all of us.

Thanku

[swanlady123 in reply to Extrahelp]

I have been taking 2x500mg B3 & 2x12mg Astaxanthin for couple months now -we are much into vits supplements so am interested in natural things etc Always worth taking these things if you can -got our B3 from Peak Supplements.

[Extrahelp in reply to swanlady123]

Brilliant..Not heard of Astaxanthin? I'm guessing another hopeful positive.

Thanku!

[Extrahelp in reply to VerdiG]

What dose of Ginko do you take daily?

[VerdiG in reply to Extrahelp]

I think it’s 120mg. I got them from Natures Best. It says do not exceed stated dose and since there are no human trials I just take one a day ( if I remember).

[Extrahelp in reply to VerdiG]

Mine are 120mg too and been taking them since Nov 2022.I take all supplements religiously and have always been 100% compliant with every eye drop prescribed and naively thought that would hold deteriation at bay but it seems that's not the case...

[VerdiG in reply to Extrahelp]

yes, me too, always take eye drops. My glaucoma was stable for a decade or more but suddenly deteriorated in 2019.

[Trish_GlaucomaUK Partner]

Hello, I have added some info on B3 on the pinned posts which you may find helpful in making your decision on whether to try B3 or not,

[Extrahelp in reply to Trish_GlaucomaUK]

Sorry to sound dumb but new to this-where are the pinned posts?

[Trish_GlaucomaUK Partner in reply to Extrahelp]

Its just to the right of the main forum page

[Extrahelp in reply to Trish_GlaucomaUK]

Thanku!

[salla22]

I was informed that b3 could be beneficial for my eyes.Done that for about 6 months,cannot notice anydifference

[Extrahelp in reply to salla22]

A year on now and I'm still taking 3g B3 a day in the hope that there's a positive outcome of the 4? year trial🤞I won't know about further loss until I have a further VFTest-hopefully at the end of June-the last one showed a slight deteriation in VField- unable to say why a slight deteriation and I'm not sure the consultant knows to be fair.

I just take supplements suggested and keep on top of healthy eating-and trying to keep positive.

Thankyou