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Tired Tavern - Discord community for people with CFS/ME and/or Long Covid (PACS)
Hi guys, Tired Tavern is community server for people with CFS/ME and/or Long Covid. It's community where empathy, understanding and shared experiences thrive. We have discussions, support groups as well as community events like movie nights and gaming events. If you'd like to join, here is the link
Hi guys, Tired Tavern is community server for people with CFS/ME and/or Long Covid. It's community where empathy, understanding and shared experiences thrive. We have discussions, support groups as well as community events like movie nights and gaming events. If you'd like to join, here is the link
TiredTavern
in
Myalgic Encephalomyelitis Community
6 months ago
Lagevrio
Having escaped Covid over the last few years, I did a test yesterday as I felt fluey and coldy. It was positive. I have had seven vaccinations! Couldn't believe it! Was convinced it was a false positive. Anyway, went to the emergency oncology service, was retested and confirmed I had Covid and Rhinovirus
Having escaped Covid over the last few years, I did a test yesterday as I felt fluey and coldy. It was positive. I have had seven vaccinations! Couldn't believe it! Was convinced it was a false positive. Anyway, went to the emergency oncology service, was retested and confirmed I had Covid and Rhinovirus
Adlucy
in
CLL Support
6 months ago
Itching Ears post Microsuction
I paid for ear microsuction at a chemist on September 28th costing £60. The process was quite painful but I was very relieved at the time to have the wax successfully removed. My ears were very compacted and I returned after a week for a follow-up. They said I had a further fall of old black wax from
I paid for ear microsuction at a chemist on September 28th costing £60. The process was quite painful but I was very relieved at the time to have the wax successfully removed. My ears were very compacted and I returned after a week for a follow-up. They said I had a further fall of old black wax from
LC1963
in
Tinnitus UK
8 months ago
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breathlessnes
I have been recovering well from NSTEMI in July. Returned to work 2nd Jan then came down with covid, which has left me very congested, I managed to do a 6.5 walk before I knew it was covid as thought was just a bad cold (that’s was 3 weeks ago). Anyway since last week I started to notice that I become
I have been recovering well from NSTEMI in July. Returned to work 2nd Jan then came down with covid, which has left me very congested, I managed to do a 6.5 walk before I knew it was covid as thought was just a bad cold (that’s was 3 weeks ago). Anyway since last week I started to notice that I become
trafar
in
British Heart Foundation
6 months ago
Round 50?
Hi all - I've searched the forum trying to figure out the answer to my question but it all seems to vary so much. I am 3 years in on buprenorphine now with RLS being pretty well managed (WOOHOO). I had been struggling to lower that 2mg sublingual dose due to extreme fatigue. I had tried pregablin previous
Hi all - I've searched the forum trying to figure out the answer to my question but it all seems to vary so much. I am 3 years in on buprenorphine now with RLS being pretty well managed (WOOHOO). I had been struggling to lower that 2mg sublingual dose due to extreme fatigue. I had tried pregablin previous
erinjee
in
Restless Legs Syndrome
4 months ago
post Viral symptoms
I returned from Australia with a heavy cold and painful cough. I have been confined to bed mostly for 2 weeks and really quite ill. A man coughed throughout our flight, this could be the source although my grandchildren were ill too. No sooner did I feel this virus improve it seemed to gain more impetus
I returned from Australia with a heavy cold and painful cough. I have been confined to bed mostly for 2 weeks and really quite ill. A man coughed throughout our flight, this could be the source although my grandchildren were ill too. No sooner did I feel this virus improve it seemed to gain more impetus
SheffieldJane
in
PMRGCAuk
6 months ago
covid vaccines
hi all. I’m sure many readers of this wonderful community will be tired of this subject. But I wanted to ask the question- I never had any AF episodes up to and including Covid. When I look at my vaccination dates I see a possible link. Is it possible that the jabs we all had did in fact interfere with
hi all. I’m sure many readers of this wonderful community will be tired of this subject. But I wanted to ask the question- I never had any AF episodes up to and including Covid. When I look at my vaccination dates I see a possible link. Is it possible that the jabs we all had did in fact interfere with
OscarN
in
AF Association
6 months ago
Has anyone heard of Parsonage Turner Syndrome? Out of interest.
Hello , I was diagnosed with PMR in September 2012 . I had returned from holiday , had my annual flu jab and noticed awful stiffness in my arms and hips whilst at Yoga . It increased to agonising electric shock pains , from shoulders downwards , my biceps would almost spasm and go hard , the pain
Hello , I was diagnosed with PMR in September 2012 . I had returned from holiday , had my annual flu jab and noticed awful stiffness in my arms and hips whilst at Yoga . It increased to agonising electric shock pains , from shoulders downwards , my biceps would almost spasm and go hard , the pain
Greensleeves
in
PMRGCAuk
6 months ago
If you get sick...cold, flu, Covid...what did you do?
I'm just over 9 months kidney transplant from a living donor. I've felt great but I do worry, since it is cold and flu season, about getting sick. Probably my biggest worry at this point. I try to wear masks when I am out and take all precautions. I just wondered though if I should get sick what are
I'm just over 9 months kidney transplant from a living donor. I've felt great but I do worry, since it is cold and flu season, about getting sick. Probably my biggest worry at this point. I try to wear masks when I am out and take all precautions. I just wondered though if I should get sick what are
Tankjsl
in
Kidney Transplant
6 months ago
covid
hello iam suffering with covid had it since Sunday , symptoms don’t seem to be going away , has anybody had covid , with hashimotos , am I wrong in thinking having this condition makes illness worse and longer to recover , sorry but been told I have hashimotos, but not sure on how it works thanks for
hello iam suffering with covid had it since Sunday , symptoms don’t seem to be going away , has anybody had covid , with hashimotos , am I wrong in thinking having this condition makes illness worse and longer to recover , sorry but been told I have hashimotos, but not sure on how it works thanks for
Prosecco1997
in
Thyroid UK
6 months ago
Pegasys Update 1.0
Finally getting around to sharing my experiences of starting Pegasys. First a little background. Diagnosed with ET JAK2+ in 2019 after a decade of scintillating scotomas with increasing frequency at almost weekly. Aspirin cut this to approx. 90 days! Over the next three years increasingly struggled with
Finally getting around to sharing my experiences of starting Pegasys. First a little background. Diagnosed with ET JAK2+ in 2019 after a decade of scintillating scotomas with increasing frequency at almost weekly. Aspirin cut this to approx. 90 days! Over the next three years increasingly struggled with
Crossefield
in
MPN Voice
6 months ago
D Mannose
Hello everyone Just wondered if anyone here has used D Mannose tablets to manage recurrent urinary tract infections and if so with what success? I’ve had this problem for a few years now and the Urologist suggested daily low dose antibiotics which I want to avoid. Despite trying all of the self
Hello everyone Just wondered if anyone here has used D Mannose tablets to manage recurrent urinary tract infections and if so with what success? I’ve had this problem for a few years now and the Urologist suggested daily low dose antibiotics which I want to avoid. Despite trying all of the self
RosaD
in
LUPUS UK
6 months ago
persistent oral thrush
I've been on an increased dose of prednisolone since August last year. I've started reducing since January (tried before with a flare-up). I also use a steroid inhaler for asthma (and rinse afterwards). I have frequent problems with oral thrush. Unfortunately the stuff that seemed to work best - the
I've been on an increased dose of prednisolone since August last year. I've started reducing since January (tried before with a flare-up). I also use a steroid inhaler for asthma (and rinse afterwards). I have frequent problems with oral thrush. Unfortunately the stuff that seemed to work best - the
oldtimer2
in
NRAS
4 months ago
Covid and Myelofibrosis
hi I’ve just tested positive for Covid, I have post pv Myelofibrosis. I’m waiting on 111 to see whether I need to have some treatment. What are your thoughts and is this necessary now? I think it’s going to be a long wait, so it might be tomorrow. Thank you Mal
hi I’ve just tested positive for Covid, I have post pv Myelofibrosis. I’m waiting on 111 to see whether I need to have some treatment. What are your thoughts and is this necessary now? I think it’s going to be a long wait, so it might be tomorrow. Thank you Mal
Mal42
in
MPN Voice
6 months ago
dont give up the fight against Afib
I have been a member of this forum for some years and learned a few things from its members but up until now i have never posted anything but i thought my story may give some of you people a bit of hope. I first went into afib in 2018 sudenly without any warning my heart rate was 222 and the top line
I have been a member of this forum for some years and learned a few things from its members but up until now i have never posted anything but i thought my story may give some of you people a bit of hope. I first went into afib in 2018 sudenly without any warning my heart rate was 222 and the top line
Dikytiker
in
AF Association
6 months ago
Rituximab
Hi all, well after 6 months on hyrimoz and no improvement they want to start me on Rituximab. Does anyone know how long you have to wait before you can start, ie this wash out period were you have nothing?? The steroid injections have worn off again, inflammation crp up again tiredness back and the
Hi all, well after 6 months on hyrimoz and no improvement they want to start me on Rituximab. Does anyone know how long you have to wait before you can start, ie this wash out period were you have nothing?? The steroid injections have worn off again, inflammation crp up again tiredness back and the
Akaka
in
NRAS
6 months ago
Covid and Party
👋 Party is this coming Sat . I feel OK with going now after people's advice , so thank you all. Got my N95 mask. Will have sanitiser on me all the time . However I am now facing difficulties, flare up in both knees and one hip in agony and lower back , getting in and out of bed , turning in bed
👋 Party is this coming Sat . I feel OK with going now after people's advice , so thank you all. Got my N95 mask. Will have sanitiser on me all the time . However I am now facing difficulties, flare up in both knees and one hip in agony and lower back , getting in and out of bed , turning in bed
Stavrou1
in
CLL Support
6 months ago
Back again!!
I have been on here a few times and Jools and Sue saved my sanity! Other's have also been so kind so, thank you...again! I do have another question which I'm sure Jools and Sue can help me with. The 20 mcg Buprenorphine patch has helped my RLS hugely though I know it's lurking but I can now sleep which
I have been on here a few times and Jools and Sue saved my sanity! Other's have also been so kind so, thank you...again! I do have another question which I'm sure Jools and Sue can help me with. The 20 mcg Buprenorphine patch has helped my RLS hugely though I know it's lurking but I can now sleep which
Danni54
in
Restless Legs Syndrome
5 months ago
Totally distraught and worried!!!
Hi everyone, I’m so scared. I really need someone to tell me everything will be okay. I keep crying as I’m so distraught this has happened. My husband is amazing but can only do and say so much as this isn’t happening to him. I really need hope right now. I’m soon to be 42 and am 5 months postpartum
Hi everyone, I’m so scared. I really need someone to tell me everything will be okay. I keep crying as I’m so distraught this has happened. My husband is amazing but can only do and say so much as this isn’t happening to him. I really need hope right now. I’m soon to be 42 and am 5 months postpartum
monkee641
in
Pregnancy and Parenting Support
8 months ago
latest results, confused, please advise!
My last results a month ago before treatment with 50 mcg were : Serum free t4 level. 10.2 pmo/L TSH level 7.28 IU/mL After a month of Levothyroxine my results are now:- serum free t4 level. 15.6 TSH 2.87 I asked for, and was told my T3 would be checked but I can’t see it on printout unless
My last results a month ago before treatment with 50 mcg were : Serum free t4 level. 10.2 pmo/L TSH level 7.28 IU/mL After a month of Levothyroxine my results are now:- serum free t4 level. 15.6 TSH 2.87 I asked for, and was told my T3 would be checked but I can’t see it on printout unless
Benjipuss
in
Thyroid UK
6 months ago
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