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New GCA treatment
Three years since I read everything about PMR and now revisiting everything. Scary. 48 hours since treatment started (60mg) and headaches almost gone and most jaw pain / difficulty gone. Except husband cooked Brussels sprouts which I struggled to eat (usually lovely then). Question: I know steroids
Three years since I read everything about PMR and now revisiting everything. Scary. 48 hours since treatment started (60mg) and headaches almost gone and most jaw pain / difficulty gone. Except husband cooked Brussels sprouts which I struggled to eat (usually lovely then). Question: I know steroids
DogAgilityObsessed
in
PMRGCAuk
8 months ago
Forstair Next
Hi, I've been on combi forstair Next inhaler and my symptoms has greatly improved! However I have 2 horrible side effects . 1 . Bouts of oral thrush and 2 . What I can only describe as a plug of mucus every morning which leads me to cough and clear my throat, does anybody have any tips? I regularly
Hi, I've been on combi forstair Next inhaler and my symptoms has greatly improved! However I have 2 horrible side effects . 1 . Bouts of oral thrush and 2 . What I can only describe as a plug of mucus every morning which leads me to cough and clear my throat, does anybody have any tips? I regularly
Mini2020
in
Asthma Community Forum
4 months ago
Will a COVID (or flu) vaccination affect my blood results?
If I have a blood test 3 or 7 days after a COVID (or flu) vaccination - will it affect my blood results? Should I perhaps make the vaccination after the blood test, so that there is no potential issue interpreting my blood results? If the vaccination affects blood results - how many days after the vaccination
If I have a blood test 3 or 7 days after a COVID (or flu) vaccination - will it affect my blood results? Should I perhaps make the vaccination after the blood test, so that there is no potential issue interpreting my blood results? If the vaccination affects blood results - how many days after the vaccination
mantana
in
CLL Support
6 months ago
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B12 deficiency
I was diagnosed with a B12 deficiency. I'm recovering from covid it's been 3 weeks. Not sure if the covid knocked my B12 down. I had first injection today. I woke up out of my sleep my body burning and dry month. I had that feeling first week of covid it went away. Now I'm not sure if the B12 is fighting
I was diagnosed with a B12 deficiency. I'm recovering from covid it's been 3 weeks. Not sure if the covid knocked my B12 down. I had first injection today. I woke up out of my sleep my body burning and dry month. I had that feeling first week of covid it went away. Now I'm not sure if the B12 is fighting
Michbell45
in
Pernicious Anaemia Society
6 months ago
Current SUPERNOVA Clinical Trial for Reformulated EVUSHELD for preventing COVID-19 infection for immune-impaired individuals
A Phase II sub-study of SUPERNOVA clinical trial (2023) is currently operating to test the efficacy and safety of AZD3152 as a component of a reformulated version of EVUSHELD mAbs prophylaxis for immune-impaired individuals who cannot mount antibody responses to COVID-19 vaccines. Study Understanding
A Phase II sub-study of SUPERNOVA clinical trial (2023) is currently operating to test the efficacy and safety of AZD3152 as a component of a reformulated version of EVUSHELD mAbs prophylaxis for immune-impaired individuals who cannot mount antibody responses to COVID-19 vaccines. Study Understanding
Classicaljazz
in
CLL Support
6 months ago
⭐️⭐️my COVID journey ⭐️⭐️
⭐️covid survivors let’s keep on fighting, let’s help each other & spread awareness of the real impact & life changing difficulties we face❤️❤️ Ladysurvivor1 profile image Ladysurvivor1 2 days ago•0 Replies 🧏🏽♀️My COVID Journey: A Tale of Resilience and Hope (Part 1) In the depths of January
⭐️covid survivors let’s keep on fighting, let’s help each other & spread awareness of the real impact & life changing difficulties we face❤️❤️ Ladysurvivor1 profile image Ladysurvivor1 2 days ago•0 Replies 🧏🏽♀️My COVID Journey: A Tale of Resilience and Hope (Part 1) In the depths of January
Ladysurvivor1
in
ICUsteps
6 months ago
Finally failed at side-stepping the “rona”
Well I guess sooner or later it had to happen. Four years of avoiding covid and now I caught it whilst traveling for work in the Far East. Started with a cold and a general malaise, then a few days later, last night, I had a slight temperature so I thought I’d check (had packed some tests just in
Well I guess sooner or later it had to happen. Four years of avoiding covid and now I caught it whilst traveling for work in the Far East. Started with a cold and a general malaise, then a few days later, last night, I had a slight temperature so I thought I’d check (had packed some tests just in
Aldebaran25
in
MPN Voice
6 months ago
update: Zanabrutinib vs Obenven (O&V)
We are praying for Gods wisdom (James1:5), and we’re leaning toward the Zanabrutinib. The infusions and time and distance will be impactful to my husbands work and he’s prefer to go the simpler route. We learned he’s still 13Q and TP53 negative and his lymph nodes are reduced (we have used ALT for
We are praying for Gods wisdom (James1:5), and we’re leaning toward the Zanabrutinib. The infusions and time and distance will be impactful to my husbands work and he’s prefer to go the simpler route. We learned he’s still 13Q and TP53 negative and his lymph nodes are reduced (we have used ALT for
Cb1391
in
CLL Support
8 months ago
Worried About (Possible) Recent Diagnosis of PMR.
Around 3 months ago I became aware of increasing aches and pains in my arms and legs and an overwhelming exhaustion. I’m normally a fit and active 73 year old. My neck felt stiff but I put that down to wear and tear as I also have worn discs in my lower spine which I manage with Pilates. GP sent me
Around 3 months ago I became aware of increasing aches and pains in my arms and legs and an overwhelming exhaustion. I’m normally a fit and active 73 year old. My neck felt stiff but I put that down to wear and tear as I also have worn discs in my lower spine which I manage with Pilates. GP sent me
GlesgaGal
in
PMRGCAuk
6 months ago
Interesting article about the effects of Covid19 on your blood
Having caught Covid19 a short time after my allo SCT and with my anaemia ongoing, I was interested to see this article. This is not CLL specific but worth a read. "[i]Several studies have reported, in COVID-19 patients, hematological abnormalities. Most of these alterations are associated with a higher
Having caught Covid19 a short time after my allo SCT and with my anaemia ongoing, I was interested to see this article. This is not CLL specific but worth a read. "[i]Several studies have reported, in COVID-19 patients, hematological abnormalities. Most of these alterations are associated with a higher
Jm954
Administrator
in
CLL Support
6 months ago
covid vaccine and prostate cancer
I was surprised that the post about the covid vaccine was abruptly terminated as if the subject was closed and the answer is settled. That is not true in my opinion. This is a brand new technology that was only tested for about a year. No definitive study has been done about the long term impact (if
I was surprised that the post about the covid vaccine was abruptly terminated as if the subject was closed and the answer is settled. That is not true in my opinion. This is a brand new technology that was only tested for about a year. No definitive study has been done about the long term impact (if
Schwah
in
Advanced Prostate Cancer
6 months ago
covid vaccine & prostate cancer
Any concerns/studies re covid vaccines bringing prostate cancer back? No politics just want to know if there are any reasons to be concerned.
Any concerns/studies re covid vaccines bringing prostate cancer back? No politics just want to know if there are any reasons to be concerned.
BL2023
in
Advanced Prostate Cancer
6 months ago
looking for a neurologist
Can anyone recommend a neurologist knowledgeable in RLS in the Bristol/ Bath (England) area ? I currently have a neurologist whom I rate quite highly but who cannot prescribe opioids as they are not on the formulary of the hospital where she practises. She has however asked my GP to prescribe Oxycodone
Can anyone recommend a neurologist knowledgeable in RLS in the Bristol/ Bath (England) area ? I currently have a neurologist whom I rate quite highly but who cannot prescribe opioids as they are not on the formulary of the hospital where she practises. She has however asked my GP to prescribe Oxycodone
etchea33
in
Restless Legs Syndrome
5 months ago
Over heating
I have been suffering from overheating since I had covid in 2022, thought it was my HRT tablets but wasn't (doctor has since taken me off them, another story) and has gotten worse over the period from then until now. I start sweating no matter what the weather or temperature is day and night, I can
I have been suffering from overheating since I had covid in 2022, thought it was my HRT tablets but wasn't (doctor has since taken me off them, another story) and has gotten worse over the period from then until now. I start sweating no matter what the weather or temperature is day and night, I can
pramela
in
Pernicious Anaemia Society
6 months ago
Recurrent vaginal thrush- need urgent help
I had what looks like a vaginal thrush for the first time 3 weeks back. I'm 35 yrs old. My GP nurse saw me and suggested Canesten pessary. I took it but to no avail (also the pessary did not work properly) I went back to the doctor in 2 days and she suggested Flucanazole oral tabled (150 mg 1 dose) that
I had what looks like a vaginal thrush for the first time 3 weeks back. I'm 35 yrs old. My GP nurse saw me and suggested Canesten pessary. I took it but to no avail (also the pessary did not work properly) I went back to the doctor in 2 days and she suggested Flucanazole oral tabled (150 mg 1 dose) that
Rita89
in
Women's Health
5 months ago
⭐️covid survivors let’s keep on fighting, let’s help each other & spread awareness of the real impact & life changing difficulties we face
🧏🏽♀️My COVID Journey: A Tale of Resilience and Hope (Part 1) In the depths of January 2021, my life took an unexpected turn when I found myself in the clutches of COVID-19. At first, I mistook the weakening of my body for a mere exacerbation of my asthma. Little did I know that this was just the
🧏🏽♀️My COVID Journey: A Tale of Resilience and Hope (Part 1) In the depths of January 2021, my life took an unexpected turn when I found myself in the clutches of COVID-19. At first, I mistook the weakening of my body for a mere exacerbation of my asthma. Little did I know that this was just the
Ladysurvivor1
in
ICUsteps
6 months ago
Calcified tendonitis
Has anyone experienced calcified tendinitis? I have been diagnosed with this after 6 months of excruciating shoulder pain. GP kept just prescribing painkillers then I saw the physio who advised me to have an X-ray. I am now having a steroid injection in my shoulder followed by physio, and hopefully this
Has anyone experienced calcified tendinitis? I have been diagnosed with this after 6 months of excruciating shoulder pain. GP kept just prescribing painkillers then I saw the physio who advised me to have an X-ray. I am now having a steroid injection in my shoulder followed by physio, and hopefully this
FLS1
in
NRAS
6 months ago
Winter or Spring Covid Booster Vaccinations?
Winter or Spring Covid Booster Vaccinations? Good evening everyone, has anyone heard anything about "Covid Boosters Vaccinations" being available for Winter or Spring? The last Booster I received was early October 2023 as I have a weakened immune system. I have not seen much coverage on this by the
Winter or Spring Covid Booster Vaccinations? Good evening everyone, has anyone heard anything about "Covid Boosters Vaccinations" being available for Winter or Spring? The last Booster I received was early October 2023 as I have a weakened immune system. I have not seen much coverage on this by the
Joseph260268
in
Lung Conditions Community Forum
6 months ago
Covid recovery and steroids
using the dsns method I had got down to 0.5 mg steroids in December but then I got covid. The first symptoms that I experienced were like a pmr flare. I increased the steroids to 5 mg . After two weeks of slow recovery I then went rapidly downhill and went to the doctor. I have asthma and was very breathless
using the dsns method I had got down to 0.5 mg steroids in December but then I got covid. The first symptoms that I experienced were like a pmr flare. I increased the steroids to 5 mg . After two weeks of slow recovery I then went rapidly downhill and went to the doctor. I have asthma and was very breathless
Yellow-dog
in
PMRGCAuk
6 months ago
Aciclovir as prevention for shingles
I wish to express my deepest thanks to all fellow members who have responded to my recent enquiry. There has been consensus in all replies confirming that prescribing Aciclovir is standard practice.
I wish to express my deepest thanks to all fellow members who have responded to my recent enquiry. There has been consensus in all replies confirming that prescribing Aciclovir is standard practice.
RamsesII
in
CLL Support
5 months ago
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