Covid and Myelofibrosis

[Mal42]

hi

I’ve just tested positive for Covid, I have post pv Myelofibrosis. I’m waiting on 111 to see whether I need to have some treatment. What are your thoughts and is this necessary now? I think it’s going to be a long wait, so it might be tomorrow.

Thank you

Mal

[grandpa101]

I have MF and had covid twice in recent years was fairly bad but did not have any treatment got better after about ten days but I am only 75 years old and had been jabbed both times

[AndyT]

I have ET and only got Covid once, last February. I was given Paxlovid and recovered within a few days.

Difficult to tell how much it helped as my Covid symptoms were fairly mild anyway but I’d definitely take it again - only side effect was a bitter taste in my mouth but that went as soon as I finished the Paxlovid

[gset]

I have MF and had COVID which I wasn’t able to recover from - fortunately within the time limit I hit the antibody treatment and was able to get better. The pain of COVID for me throughout my body was so bad I couldn’t sleep or function. And the antibody infusion helped me fight it. Having covid left me with tremors though

[marlenablue]

I have post PV MF and had COVID in Dec - I am 53 and have been jabbed twice. I had moderate symptoms which I managed with cold medicine and Tylenol. I lost taste and smell which was very upsetting but they returned within a week. Strangely, I would get smells in my nose like maple syrup (good) and sour/musty laundry (not good) . Anyhoo, I digress. My point is I didn't take anything. Hope you feel better soon!

[Leveret20]

I have a 24 hr number for support from the hospital nurses, and instructions to ring if I ever develop a temperature. If you can contact your consultant team, they may be the quickest route to getting the antiviral medication?