Hi everyone I would like to that Maz and her team for organising the Patients forum in Leeds yesterday. It was a great day full of information from Maz and the specialist Drs and nurses. Chris did a fantastic speech about his journey through MF and a Bone marrow transplant. I was diagnosed with MF last October and I'm still coming to terms with it. Yesterday helped enormously especially the time we had to talk with other MEffers😏 I came away with 2 people phone numbers and email addresses.
I am going to see Professor Harrison at the end of May for a second opinion and after that I will be asking to be transferred to Leeds for my care. It's only a 40 min train ride or 30 min in the car. Does anyone else go to Leeds, if so who do you see?
Oh and my husband said to tell you the food that was put on was superb😊.
Thank you all....