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on prednisone since oct 2016 had pneumonia vaccine side affects
my rhuemy has kept me at 10 mg since july 2017 didn,t want me to reduce until at least feb this year, as my son was diagnosed with multiple myeloma, and having bone marrow transplant, being admitted jan 15, for that, and said with the extra stress, not good idea to reduce, was doing ok with that as far
my rhuemy has kept me at 10 mg since july 2017 didn,t want me to reduce until at least feb this year, as my son was diagnosed with multiple myeloma, and having bone marrow transplant, being admitted jan 15, for that, and said with the extra stress, not good idea to reduce, was doing ok with that as far
arvine
in
PMRGCAuk
7 years ago
SICKLE CELL NEWS (Jan-March 2018)
Here are the stories/articles on the Jan-March 2018 edition: 1. NIGERIA 2019 ELECTIONS: Professor Mrs. Adesanya-Davies blazes the trail for involvement of women with SC in politics - she aims for the highest political office in the land! 2. Barrister Uche Ojukwu suffered a rare SCD complication that
Here are the stories/articles on the Jan-March 2018 edition: 1. NIGERIA 2019 ELECTIONS: Professor Mrs. Adesanya-Davies blazes the trail for involvement of women with SC in politics - she aims for the highest political office in the land! 2. Barrister Uche Ojukwu suffered a rare SCD complication that
scnews
in
Sickle Cell Society
7 years ago
CAR-T Therapy Inquiry
CAR-T Therapy Inquiry Are you a patient or physician interested in CAR-T gene therapy? Call the Stanford Blood and Marrow Transplant Program at 650-723-0822.
CAR-T Therapy Inquiry Are you a patient or physician interested in CAR-T gene therapy? Call the Stanford Blood and Marrow Transplant Program at 650-723-0822.
Naka
in
CLL Support
7 years ago
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Carbimazole side effects
Just looking for advice here. I restarted carbimazole 7 weeks ago and take 10mg twice a day. I have an mouth ulcer and noticed under side effects it says to go immediately to Emergency Dept or see your Dr if you develop sore throat or mouth ulcers. Just wondering what this is about - do I need to go
Just looking for advice here. I restarted carbimazole 7 weeks ago and take 10mg twice a day. I have an mouth ulcer and noticed under side effects it says to go immediately to Emergency Dept or see your Dr if you develop sore throat or mouth ulcers. Just wondering what this is about - do I need to go
Cait58
in
Thyroid UK
7 years ago
Taking A Deep Breath
Hello everyone, Having taken the plunge and finally signed up to the community at the beginning of the month I thought it was high time that I introduce myself. My name's Andy, I'm 33, and 4 years ago I was diagnosed with a degenerative lung condition called IPPFE (similar to IPF) which doctors believe
Hello everyone, Having taken the plunge and finally signed up to the community at the beginning of the month I thought it was high time that I introduce myself. My name's Andy, I'm 33, and 4 years ago I was diagnosed with a degenerative lung condition called IPPFE (similar to IPF) which doctors believe
dodgylungrunner
British Lung Foundation
in
Lung Conditions Community Forum
7 years ago
Cold sores and hypothyroidism
Hi there, I was wondering if anyone else feels really hypo when they have a cold sore? I have been feeling really back to normal but this morning I developed a cold sore and this afternoon I’m not feeling great - dizzy, jittery inside, like I do before my levels were sorted...is there a connection?
Hi there, I was wondering if anyone else feels really hypo when they have a cold sore? I have been feeling really back to normal but this morning I developed a cold sore and this afternoon I’m not feeling great - dizzy, jittery inside, like I do before my levels were sorted...is there a connection?
LOUPS
in
Thyroid UK
7 years ago
Bone Marrow Transplant Begins
I feel like the past three and a half years have been rehearsal, and it's time for the big show. I will do the steps I have learned, and the result could be glory or disaster. I made a big bet on this new treatment. When I didn't fit the profile, I asked the researcher to change the parameters so
I feel like the past three and a half years have been rehearsal, and it's time for the big show. I will do the steps I have learned, and the result could be glory or disaster. I made a big bet on this new treatment. When I didn't fit the profile, I asked the researcher to change the parameters so
Beauxman
in
Advanced Prostate Cancer
7 years ago
11 year old son ITP
I am seeking some insight. Brief history of my son. He had a bone marrow transplant in 2013..a side effect from it is that he developed ITP and had his spleen removed in 2013 and is currently being treated with 25mg Promacta. His platelets range from 10,000 - 65,000. When he has episodes of bleeding
I am seeking some insight. Brief history of my son. He had a bone marrow transplant in 2013..a side effect from it is that he developed ITP and had his spleen removed in 2013 and is currently being treated with 25mg Promacta. His platelets range from 10,000 - 65,000. When he has episodes of bleeding
Bishoprena
in
ITP Support Association
7 years ago
Stem cell transplant
Hello! So I have just had my monthly visit with my CLL haemotologist. Preparing to go onto a trial with Ibrutinib and Venetoclax. Glands swollen and large all over. I am 11q unmutated lymphocytes trending upwards at 50 and last month were 33. Hb going slightly downwards but not bad. Everything else good
Hello! So I have just had my monthly visit with my CLL haemotologist. Preparing to go onto a trial with Ibrutinib and Venetoclax. Glands swollen and large all over. I am 11q unmutated lymphocytes trending upwards at 50 and last month were 33. Hb going slightly downwards but not bad. Everything else good
DebLeeCox
in
CLL Support
7 years ago
Sore mouth tip!
I’ve been troubled with a sore mouth and tongue since I started chemo and Avastin and have found cleaning my teeth really unpleasant. Quite by chance I discovered that children’s toothpaste is much less minty and therefore not as painful. I’ve checked the ingredients and they are pretty much the same
I’ve been troubled with a sore mouth and tongue since I started chemo and Avastin and have found cleaning my teeth really unpleasant. Quite by chance I discovered that children’s toothpaste is much less minty and therefore not as painful. I’ve checked the ingredients and they are pretty much the same
Alifit
in
My Ovacome
7 years ago
Cold sore and blood test
Right, so my blood test is due on Monday and I already had to postpone it due to fever which I had recently and today that blasted cold sore showed up (excuse my language), also my gums are yet again extremely sore and a bit swollen (nothing new). How likely will that affect my blood work? Obviously
Right, so my blood test is due on Monday and I already had to postpone it due to fever which I had recently and today that blasted cold sore showed up (excuse my language), also my gums are yet again extremely sore and a bit swollen (nothing new). How likely will that affect my blood work? Obviously
Gr8Nica
in
Thyroid UK
7 years ago
Urgent question: low platelets
My husband Murray is in a very precarious state right now and I would sure appreciate your input. Just to summarize - he is 58, diagnosed 3 1/2 years ago but with symptoms for many years before that, 13q, 11q & trisomy 12, relapsed quickly after FCR, on ibrutinib for 9 months, scheduled for stem cell
My husband Murray is in a very precarious state right now and I would sure appreciate your input. Just to summarize - he is 58, diagnosed 3 1/2 years ago but with symptoms for many years before that, 13q, 11q & trisomy 12, relapsed quickly after FCR, on ibrutinib for 9 months, scheduled for stem cell
Glees
in
CLL Support
7 years ago
Does anyone have lip lesions/ulcers?
I definitely have systemic vasculitis, although my rheumatologists debate each other about whether it is BD, because I've never been biopsied. At any rate the treatment would be the same as it is for other syndromes. I've had a bloody open lump in the middle of my lower lip...like a split lip, except
I definitely have systemic vasculitis, although my rheumatologists debate each other about whether it is BD, because I've never been biopsied. At any rate the treatment would be the same as it is for other syndromes. I've had a bloody open lump in the middle of my lower lip...like a split lip, except
oiseau222
in
Behçet's UK
7 years ago
High Alt, fibroscan 7.7 CT scan now biopsy scared
Hi everyone, I'm hoping you help can ease my mind or help me with these results! back in July I had a bout of gastritis I was in hospital for a week as my ATL was in the 400's eventually it returned to 37 now it's started to rise again. Doctors are worried as they don't know what's causing it. two weeks
Hi everyone, I'm hoping you help can ease my mind or help me with these results! back in July I had a bout of gastritis I was in hospital for a week as my ATL was in the 400's eventually it returned to 37 now it's started to rise again. Doctors are worried as they don't know what's causing it. two weeks
GillyGangGong
in
British Liver Trust
7 years ago
CMV Risk in Donor Stem Cell Transplant
Antiviral drug helped prevent cytomegalovirus in patients with donor bone marrow stem cell transplantation: https://tinyurl.com/yc79ehsg
Antiviral drug helped prevent cytomegalovirus in patients with donor bone marrow stem cell transplantation: https://tinyurl.com/yc79ehsg
Shar0n
Volunteer
in
Non Hodgkin's Lymphoma Friends
7 years ago
possible Behcet's Disease?
Hello, As my title might entail, I haven't been officially diagnosed with behcet's syndrome. I came here for some serious advice, because people are so quick to jump on the herpes bandwagon. I actually have been looked at by a nurse practitioner (zero tests performed) and told I have herpes. I'll try
Hello, As my title might entail, I haven't been officially diagnosed with behcet's syndrome. I came here for some serious advice, because people are so quick to jump on the herpes bandwagon. I actually have been looked at by a nurse practitioner (zero tests performed) and told I have herpes. I'll try
sarahgrace28
in
Behçet's UK
7 years ago
Oral herpes / mouth sores won't go away help
Hi ... I am new to the group and desperate for solution. I have had RA for 28 years. I am on Humira, prednisone, arava, Motrin 800 for past 10 years no real issues. In may 2017 I had a oral herpes outbreak like never before. Sores inside mouth, cheeks, gums, lips, throat, and burning tongue. Doctor prescribed
Hi ... I am new to the group and desperate for solution. I have had RA for 28 years. I am on Humira, prednisone, arava, Motrin 800 for past 10 years no real issues. In may 2017 I had a oral herpes outbreak like never before. Sores inside mouth, cheeks, gums, lips, throat, and burning tongue. Doctor prescribed
ragurl
in
NRAS
7 years ago
Soar mouth
Does anyone elses mouth get soar I find the sides of my mouth split and bleed and it's really painful I find once iv had my injection within 2 days it's gone
Does anyone elses mouth get soar I find the sides of my mouth split and bleed and it's really painful I find once iv had my injection within 2 days it's gone
Newberryk
in
Pernicious Anaemia Society
7 years ago
Road to a BMT... oops just got there
Hello Health Unlocked community, Since this forum and community offered me a great amount of support and kindness during our last crisis I thought I would come back to it. Last time you heard from me/us was when my husband Mark began failing on Ibrutinib in Feb. 2017 and he was going to start Venetoclax
Hello Health Unlocked community, Since this forum and community offered me a great amount of support and kindness during our last crisis I thought I would come back to it. Last time you heard from me/us was when my husband Mark began failing on Ibrutinib in Feb. 2017 and he was going to start Venetoclax
NMMP
in
CLL Support
7 years ago
MANTEL CELL LYMPHOMA AND IBRUTINIB
Hello, I'm new to this group and wanted to find answers to concerned questions. My partner had been diagnosed with Mantel Cell Lymphoma three years ago. He underwent Chemo and stem cell treatment. Recently after a routine blood test, the doctors said his WBC was rising rapidly - it's doubled in the
Hello, I'm new to this group and wanted to find answers to concerned questions. My partner had been diagnosed with Mantel Cell Lymphoma three years ago. He underwent Chemo and stem cell treatment. Recently after a routine blood test, the doctors said his WBC was rising rapidly - it's doubled in the
pollyg2016
in
Non Hodgkin's Lymphoma Friends
7 years ago
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