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Gamma globulin
Today I go for my monthly gamma globulin infusion I usually do well except I get very tired and at times nauseous. Anyone here gets these infusions? I have been on Imbruvica for 4 years with little side affects, but recently my wbc and lymphocytes are climbing and my platelets are dropping slowly. I
Today I go for my monthly gamma globulin infusion I usually do well except I get very tired and at times nauseous. Anyone here gets these infusions? I have been on Imbruvica for 4 years with little side affects, but recently my wbc and lymphocytes are climbing and my platelets are dropping slowly. I
MartiP2009
in
CLL Support
6 years ago
Outcomes of haploidentical stem cell transplantation for chronic lymphocytic leukemia: a retrospective study
[i]An allogeneic haemopoietic stem cell (HPC) transplant involves matching a patient’s tissue type, specifically their human leukocyte antigen (HLA) tissue type, with that of a related or unrelated donor. HLA proteins are found on all cells of our body and are the main way the immune system tells the
[i]An allogeneic haemopoietic stem cell (HPC) transplant involves matching a patient’s tissue type, specifically their human leukocyte antigen (HLA) tissue type, with that of a related or unrelated donor. HLA proteins are found on all cells of our body and are the main way the immune system tells the
Cllcanada
Top Poster CURE Hero
in
CLL Support
6 years ago
Mouth ulcers
Have people on oral methotrexate had problems with mouth ulcers? Have people on methotrexate injection not had mouth ulcers?
Have people on oral methotrexate had problems with mouth ulcers? Have people on methotrexate injection not had mouth ulcers?
jane1976
in
NRAS
7 years ago
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Gum problems?
Hey guys so I was recently diagnosed with lupus.. Like last year may and it's been sort of tough because all some of my bloods don't add up to everything but I have a positive double stranded DNA. Only recently I've been starting to get small tonsil stones in my mouth and I've realised that the top of
Hey guys so I was recently diagnosed with lupus.. Like last year may and it's been sort of tough because all some of my bloods don't add up to everything but I have a positive double stranded DNA. Only recently I've been starting to get small tonsil stones in my mouth and I've realised that the top of
Stephanie0210
in
LUPUS UK
7 years ago
Thoughts on PV/ET
There are a lot of new posters here (I’ve been here 3 months and feel like an old hand!) who are understandably nervous and worried. The dreaded cancer word and for many of us, our first real brush with our own mortality. However, there are two really important factors we need to focus on. PV and especially
There are a lot of new posters here (I’ve been here 3 months and feel like an old hand!) who are understandably nervous and worried. The dreaded cancer word and for many of us, our first real brush with our own mortality. However, there are two really important factors we need to focus on. PV and especially
Paul123456
in
MPN Voice
6 years ago
Advice on Mouth Ulcer Issue
I’ve been on Carbimozal & Levothyroxine for just under a year. I believe I have a mouth ulcer that might of been misdiagnosed as a infection by a dentist after reading the leaflets in my medication. I’ve tried getting help over the past few days but Drs won’t see me as I’ve also had a recent tooth extraction
I’ve been on Carbimozal & Levothyroxine for just under a year. I believe I have a mouth ulcer that might of been misdiagnosed as a infection by a dentist after reading the leaflets in my medication. I’ve tried getting help over the past few days but Drs won’t see me as I’ve also had a recent tooth extraction
mco86uk
in
Thyroid UK
7 years ago
Anyone please help me
Is this ever going to get better I'm losing hope . I felt awful the week before my b12 injection which was last week . Very down and exhausted . It wrote a post re the way I was feeling . I had my injection 10 days ago and ha e felt no better since . In fact worse . I feel run down actually . I am more
Is this ever going to get better I'm losing hope . I felt awful the week before my b12 injection which was last week . Very down and exhausted . It wrote a post re the way I was feeling . I had my injection 10 days ago and ha e felt no better since . In fact worse . I feel run down actually . I am more
Andypandy30
in
Pernicious Anaemia Society
7 years ago
stem cell transplantation
Did anyone try stem cell transplantation?
Did anyone try stem cell transplantation?
Anne_08
in
Scleroderma & Raynaud's UK (SRUK)
6 years ago
Tonsillitis
Feel like I spend my life poorly. Need some advice from anyone who’s suffered from tonsillitis as my doctors are rubbish and won’t see me in person. They’ve diagnosed me with tonsillitis over the phone even though I’ve never had it before! So I’ve had a really sore throat since Sunday, I sweat every
Feel like I spend my life poorly. Need some advice from anyone who’s suffered from tonsillitis as my doctors are rubbish and won’t see me in person. They’ve diagnosed me with tonsillitis over the phone even though I’ve never had it before! So I’ve had a really sore throat since Sunday, I sweat every
Morgjt
in
Anxiety Support
7 years ago
Has anyone had side effects soon after starting Fostair? I’ve had oral thrush, joint pain, and flu like symptoms and a very dry mouth!
Has anyone had problems with FOSTAIR? In hospital 10 days with asthma/chest infection and SERETIDE was replaced by FOSTAIR. Had oral thrush, have VERY DRY mouth, joints aching, and flu like symptoms which I didn’t experience on SERETIDE! Many thanks for your help.
Has anyone had problems with FOSTAIR? In hospital 10 days with asthma/chest infection and SERETIDE was replaced by FOSTAIR. Had oral thrush, have VERY DRY mouth, joints aching, and flu like symptoms which I didn’t experience on SERETIDE! Many thanks for your help.
Dietrech
in
Lung Conditions Community Forum
7 years ago
Back to the Middle ages
Earth is flat or bone marrow transplant. Sad stories.
Earth is flat or bone marrow transplant. Sad stories.
nikolahn
in
AMN EASIER
6 years ago
Sciatica and now mouth ulcers 😡
Hi there , i posted recently about severe sciatica which is no better, now for last week I have had mouth ulcers , the worse ones just inside my lips . I don’t know the cause , maybe because im feeling low or maybe because my white cell count is very low . I have been using anbesol liquid and rinsing
Hi there , i posted recently about severe sciatica which is no better, now for last week I have had mouth ulcers , the worse ones just inside my lips . I don’t know the cause , maybe because im feeling low or maybe because my white cell count is very low . I have been using anbesol liquid and rinsing
weathervane
in
NRAS
7 years ago
Newly diagnosed – ET Jak2+ with added drama!
Hi everyone! I've been wanting to post here for some time, but it's taken me a couple of months to get a diagnosis and it's been a bit of a rollercoaster! Back in September 2017 I went to the doctor with weight loss and fatigue. Blood tests came back "normal" but a scan revealed I had a very enlarged
Hi everyone! I've been wanting to post here for some time, but it's taken me a couple of months to get a diagnosis and it's been a bit of a rollercoaster! Back in September 2017 I went to the doctor with weight loss and fatigue. Blood tests came back "normal" but a scan revealed I had a very enlarged
Timjonze
in
MPN Voice
6 years ago
Advice for veno-occlusive/sinosoidal obstruction disease
Hi everyone, I’m new here. I’m 30 years old and I started having right upper abdomen pain about 18 months ago. To cut a very long story short I have now had a tentative diagnosis of VOD/SOD following many scans and liver biopsy. I am in pain every day but my LFTs are all normal and I don’t have ascites
Hi everyone, I’m new here. I’m 30 years old and I started having right upper abdomen pain about 18 months ago. To cut a very long story short I have now had a tentative diagnosis of VOD/SOD following many scans and liver biopsy. I am in pain every day but my LFTs are all normal and I don’t have ascites
Beedee87
in
British Liver Trust
7 years ago
Hilarious
Hi I been under the microscope again liver results are fine so I am happy,. But I have been diagnosed with severe anaemia (explains why I am knackered constantly) anyway they are now trying to figure out the cause of this and consistent low RBC, WBC and platelets there have been talk of bone marrow transplant
Hi I been under the microscope again liver results are fine so I am happy,. But I have been diagnosed with severe anaemia (explains why I am knackered constantly) anyway they are now trying to figure out the cause of this and consistent low RBC, WBC and platelets there have been talk of bone marrow transplant
jojokarak
in
British Liver Trust
7 years ago
Hello From Nigel In Cornwall.
Diagnosed with early stage CLL in October 2017. The day my doctor telephoned me to advise of the 5th set of blood test results and confirmed it was CLL, happened to be the very day a very good friend of mine died of ovarian cancer. GP was pretty blunt and unhelpful. "Early stage. No need to worry
Diagnosed with early stage CLL in October 2017. The day my doctor telephoned me to advise of the 5th set of blood test results and confirmed it was CLL, happened to be the very day a very good friend of mine died of ovarian cancer. GP was pretty blunt and unhelpful. "Early stage. No need to worry
OwnedByCockerSpaniel
in
CLL Support
7 years ago
Sore mouth
Hi just interested to know if anybody else has a cold all the time . I also get mouth ulcers . And swollen gums . My joints are also very sore all overall my joints . I have sjorgens and lupus raynards and nerve damage etc . Just wanting advice x
Hi just interested to know if anybody else has a cold all the time . I also get mouth ulcers . And swollen gums . My joints are also very sore all overall my joints . I have sjorgens and lupus raynards and nerve damage etc . Just wanting advice x
barbdockeray
in
LUPUS UK
7 years ago
Chemotherapy, a Trusty Weapon Against Cancer, Falls Out of Favor
Interesting read from the Wall Street Journal: some oncologists are no longer recommending chemotherapy as a treatment option. What are your thoughts? Does the article resonate with you in any way? Full article below and here: http://on.wsj.com/2DOOX5y "Chemotherapy, a Trusty Weapon Against Cancer,
Interesting read from the Wall Street Journal: some oncologists are no longer recommending chemotherapy as a treatment option. What are your thoughts? Does the article resonate with you in any way? Full article below and here: http://on.wsj.com/2DOOX5y "Chemotherapy, a Trusty Weapon Against Cancer,
joann86
in
SHARE Breast Cancer Support
7 years ago
Update on Lymphoma from the 2017 American Society of Hematology (ASH) Annual Meeting by Stephen M. Ansell, MD, PhD & Laurie H. Sehn, MD, MP
Webinar: Update on Lymphoma from the 2017 American Society of Hematology (ASH) Annual Meeting, which took place on January 23. It is now available on telephone replay 24 hours a day, 7 days a week. Just call 1-800-625-5288 and give the code #1151498 or click here http://click.icptrack.com/icp/relay.php
Webinar: Update on Lymphoma from the 2017 American Society of Hematology (ASH) Annual Meeting, which took place on January 23. It is now available on telephone replay 24 hours a day, 7 days a week. Just call 1-800-625-5288 and give the code #1151498 or click here http://click.icptrack.com/icp/relay.php
lankisterguy
Volunteer
in
CLL Support
7 years ago
Advice wanted
Ten years ago I had two DVT's in my right leg at the age of 28. No long haul flights, no bumps, no medical problems. Blood was fine, was on warfarin for standard 6 months and Ive worn knee high compression sock every since. In 2015 I had a scan because my leg swelled up like a clot again, it found no
Ten years ago I had two DVT's in my right leg at the age of 28. No long haul flights, no bumps, no medical problems. Blood was fine, was on warfarin for standard 6 months and Ive worn knee high compression sock every since. In 2015 I had a scan because my leg swelled up like a clot again, it found no
amhayllar
in
Anticoagulation Support
7 years ago
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