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Mantel Cell Lymphomia
My partner was diagnosed with MCL three years ago. He underwent chemo and then had stem cell transplant. Recently, a blood test has indicated that his white blood cells have risen and that his platelets are now getting low. My partner looks and feels great, without showing any of the symptoms he first
My partner was diagnosed with MCL three years ago. He underwent chemo and then had stem cell transplant. Recently, a blood test has indicated that his white blood cells have risen and that his platelets are now getting low. My partner looks and feels great, without showing any of the symptoms he first
pollyg2016
in
CLL Support
7 years ago
Real stories: life after a stem cell transplant
Read other people's stories of life after a stem cell or bone marrow transplant here: https://www.anthonynolan.org/patients-and-families/real-stories
Read other people's stories of life after a stem cell or bone marrow transplant here: https://www.anthonynolan.org/patients-and-families/real-stories
LCNurse2
in
Leukaemia Support
7 years ago
Epo. London mpn day
I'll be going to the london mpn day on18 th. I'm feeling tired and fed up. I've had 4 weekly epo injections and not much response. The energy I had at first was due to the blood transfusion I had at the same time, I think, because that's now worn off. I feel as tho I can't handle life at all. Which
I'll be going to the london mpn day on18 th. I'm feeling tired and fed up. I've had 4 weekly epo injections and not much response. The energy I had at first was due to the blood transfusion I had at the same time, I think, because that's now worn off. I feel as tho I can't handle life at all. Which
Rachelthepotter
in
MPN Voice
7 years ago
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GDP - Change of Chemo - Advice
Diffuse Large B Cell - Abdomen Was booked in for 6no R Chop, had a mid term scan, saw specialist, who has said i will now after 4 no R Chop, have 2no GDP, same 21 day cycle, then have another scan, then a bone marrow transplant, then 3 week intense Chemo blast (3week Hospital Stay) On a positive note
Diffuse Large B Cell - Abdomen Was booked in for 6no R Chop, had a mid term scan, saw specialist, who has said i will now after 4 no R Chop, have 2no GDP, same 21 day cycle, then have another scan, then a bone marrow transplant, then 3 week intense Chemo blast (3week Hospital Stay) On a positive note
Blueb
in
Non Hodgkin's Lymphoma Friends
7 years ago
Suffering
Hi everyone, This isn't my first time on this forum but I've not visited for sometime. I'm 28 years old and have been suffering for the past 10 years with my health without any diagnosis. When I was about 17 I started to suffer frequently with tonsilitus. I would get bouts of it every few months. At
Hi everyone, This isn't my first time on this forum but I've not visited for sometime. I'm 28 years old and have been suffering for the past 10 years with my health without any diagnosis. When I was about 17 I started to suffer frequently with tonsilitus. I would get bouts of it every few months. At
Sammie_88
in
Behçet's UK
7 years ago
Bone marrow transplant
Hi all I have just started on blood transfusion and likely to have to have them every four/five weeks. It has also been suggested that I may be eligible for a bone marrow transplant. Does anyone have any thoughts on bone marrow transplants that they could share with me. TIA
Hi all I have just started on blood transfusion and likely to have to have them every four/five weeks. It has also been suggested that I may be eligible for a bone marrow transplant. Does anyone have any thoughts on bone marrow transplants that they could share with me. TIA
dave117
in
MPN Voice
7 years ago
Fungal infection or BD
Hi all new poster here, currently being assessed by a Specialist at James Cook Hospital who is leaning towards BD. I currently have really bad ulceration on my lips, gums, tongue and the inside of my mouth. I also have itchy 'spots' on each elbow as well as down my legs and feet. Oh yeah and my 'bits
Hi all new poster here, currently being assessed by a Specialist at James Cook Hospital who is leaning towards BD. I currently have really bad ulceration on my lips, gums, tongue and the inside of my mouth. I also have itchy 'spots' on each elbow as well as down my legs and feet. Oh yeah and my 'bits
scottyftm
in
Behçet's UK
7 years ago
Oral Ulcers
Hey, I've been in bed for a few days, I literally have no energy & feel wiped out. I spoke to my GP today about my reoccurring blood blisters in my mouth & oral ulcers & also a new lip blister that has popped & left a really raw patch of flesh. I feel like I have the flu, all my joint ache deeply
Hey, I've been in bed for a few days, I literally have no energy & feel wiped out. I spoke to my GP today about my reoccurring blood blisters in my mouth & oral ulcers & also a new lip blister that has popped & left a really raw patch of flesh. I feel like I have the flu, all my joint ache deeply
LauraMk30
in
LUPUS UK
7 years ago
multiple myeloma on pancreatic and pelvic as extramedullary plasmacytoma
Our Mayo Clinic psychiatrist mentioned most cancer patients have the treatment of maintenance chemotherapy in remission after five years, then these patients are able to finish the treatment in full recovery. Is it true to multiple myeloma on pancreatic and pelvic (extramedullary plasmacytoma)?
Our Mayo Clinic psychiatrist mentioned most cancer patients have the treatment of maintenance chemotherapy in remission after five years, then these patients are able to finish the treatment in full recovery. Is it true to multiple myeloma on pancreatic and pelvic (extramedullary plasmacytoma)?
chen5631867
in
Myeloma America Support
7 years ago
Bone marrow transplant for Behcet's
I'd have to be much further along than I am to consider this, but this is amazing: "Complete resolution... complete remission." https://academic.oup.com/rheumatology/article/53/6/1136/1826109/Bone-marrow-transplantation-for-Behcet-s-disease-a
I'd have to be much further along than I am to consider this, but this is amazing: "Complete resolution... complete remission." https://academic.oup.com/rheumatology/article/53/6/1136/1826109/Bone-marrow-transplantation-for-Behcet-s-disease-a
julietoo
in
Behçet's UK
7 years ago
Bone Marrow Transplant, Sickle Cell in Bermuda
The October-December edition of African Sickle Cell News & World Report deals principally with Bone Marrow Transplant for SCD. 3 families on the African continent share stories of their road to a successful transplant. With so few having SCD in Bermuda (just 88), exactly what does the Bermuda SC Association
The October-December edition of African Sickle Cell News & World Report deals principally with Bone Marrow Transplant for SCD. 3 families on the African continent share stories of their road to a successful transplant. With so few having SCD in Bermuda (just 88), exactly what does the Bermuda SC Association
sicklecellnews
in
Sickle Cell Society
7 years ago
Long term treatment for 11q
As some may know, I am 25 years old diagnosed with CLL 11q deletion. One of my recent consultants has been Dr. Aman at the James Center who works under Dr. Byrd. We had a phone call and he told me, as I've come to expect, that he would treat me with the next 50 years in mind vs. A traditional CLL patient
As some may know, I am 25 years old diagnosed with CLL 11q deletion. One of my recent consultants has been Dr. Aman at the James Center who works under Dr. Byrd. We had a phone call and he told me, as I've come to expect, that he would treat me with the next 50 years in mind vs. A traditional CLL patient
Cpt_N
in
CLL Support
7 years ago
GVHD after a stem cell transplant
I had a stem cell transplant from a non-related donor almost four months ago and got graft versus host disease a couple of weeks or so later. It isn't getting any better despite several months of steroids and being on a trial of rixulitimab (spelling alert). It's in my liver and causing a spotty rash
I had a stem cell transplant from a non-related donor almost four months ago and got graft versus host disease a couple of weeks or so later. It isn't getting any better despite several months of steroids and being on a trial of rixulitimab (spelling alert). It's in my liver and causing a spotty rash
Christian057
in
CLL Support
7 years ago
Ibrutinib & neuropathy?
My husband has been on ibrutinib for 7 months & it has been working well for him with minor side effects (small rash, some joint pain) until the last month. His white blood count is coming down very slowly - still at about 60. (He is waiting to get a stem cell transplant in January & has had FCR but
My husband has been on ibrutinib for 7 months & it has been working well for him with minor side effects (small rash, some joint pain) until the last month. His white blood count is coming down very slowly - still at about 60. (He is waiting to get a stem cell transplant in January & has had FCR but
Glees
in
CLL Support
7 years ago
Stem Cell Transplant research
Graft-versus-host disease successfully prevented : https://www.sciencedaily.com/releases/2017/04/170418094535.htm
Graft-versus-host disease successfully prevented : https://www.sciencedaily.com/releases/2017/04/170418094535.htm
Shar0n
Volunteer
in
Non Hodgkin's Lymphoma Friends
7 years ago
surgery
I have sickle cell anemia homozygous and it is killing me I wish to undergo a bone marrow transplant surgery but as you my know it very expensive thus I am writing to ask is there an organizations that would fund my surgery . please enlighten me .
I have sickle cell anemia homozygous and it is killing me I wish to undergo a bone marrow transplant surgery but as you my know it very expensive thus I am writing to ask is there an organizations that would fund my surgery . please enlighten me .
Hidden
in
Sickle Cell Society
7 years ago
RA Rheumatoid Arthritis
I have been diagnosed with Progressive rheumatoid arthritis for 6 years and I have not been to the dentist only but once when I first got the infusion and my gums got really sore in my mouth I now want to go to the dentist in the next 2 weeks cuz I'm due for my infusion of rituxin on the 1st of September
I have been diagnosed with Progressive rheumatoid arthritis for 6 years and I have not been to the dentist only but once when I first got the infusion and my gums got really sore in my mouth I now want to go to the dentist in the next 2 weeks cuz I'm due for my infusion of rituxin on the 1st of September
Tabbiecatmeow
in
NRAS
7 years ago
Update to Specialist 1st visit
Hi everyone, Thank you for the support and information shared to my original post. As promised, I’m sharing what was explained to me by my referring hematologist regarding the letter sent her by the specialist. This is my experience and I want to be careful to not alarm any other forum members. This
Hi everyone, Thank you for the support and information shared to my original post. As promised, I’m sharing what was explained to me by my referring hematologist regarding the letter sent her by the specialist. This is my experience and I want to be careful to not alarm any other forum members. This
Cmg5935
in
MPN Voice
7 years ago
Myleofibrosis and acute myeloid leukaemia
I am 47 and have no family able to give me bone marrow for a transplant, has anybody got any advice about treatmen or even prognosis. All I can find on the net is your gonna die, so am desperate for some proper sensible advice. I was only told 3 days ago, but told I would need 2 weeks of chemo and a
I am 47 and have no family able to give me bone marrow for a transplant, has anybody got any advice about treatmen or even prognosis. All I can find on the net is your gonna die, so am desperate for some proper sensible advice. I was only told 3 days ago, but told I would need 2 weeks of chemo and a
Paul278mc
in
MPN Voice
7 years ago
Again mouth is in a mess
Well that's 4 times in the last 8m Ive had oral thrush, the pharmacist says its not normal. Its extremely painful & the inside of my mouth is covered in tiny wee ulcers, I can't get Dr appointment so all I can do is drink loads of water & apply bonjela every 3 hours. I don't know how much longer I can
Well that's 4 times in the last 8m Ive had oral thrush, the pharmacist says its not normal. Its extremely painful & the inside of my mouth is covered in tiny wee ulcers, I can't get Dr appointment so all I can do is drink loads of water & apply bonjela every 3 hours. I don't know how much longer I can
dizzylynn
in
Fibromyalgia Action UK
7 years ago
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