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Uva Ursi
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AIH/PBC Overlap Anyone on urso & Mercap
basically this , love to know how everyone is doing ! Must admit I’m feeling a bit overwhelmed since having the pbc diagnosis
basically this , love to know how everyone is doing ! Must admit I’m feeling a bit overwhelmed since having the pbc diagnosis
Eternity6
in
British Liver Trust
1 year ago
Bloating stomach. Urso, or PBC ...or both?
Hi friends, I come here to post and read other's posts about this disease we are fighting. Changes, symptoms and comfort most of all. Thankyou. My worst symptom is bloating and pale, odd colored stool. Anyone else experience this? Been on Urso about 2 years now. Liver tests are back to normal,
Hi friends, I come here to post and read other's posts about this disease we are fighting. Changes, symptoms and comfort most of all. Thankyou. My worst symptom is bloating and pale, odd colored stool. Anyone else experience this? Been on Urso about 2 years now. Liver tests are back to normal,
TanGram
in
PBCers Organization
1 year ago
Anyone develop psoriasis along w/ PBC?
Intermittent skin flare ups over the years - very limited in time and srea affected. Recently (just in time for swimsuit season!) it has gotten worse and more widespread. Haven't addressed with Dr. yet but you all seem to have more insight. Is this a common PBC issue or Urso side effect?
Intermittent skin flare ups over the years - very limited in time and srea affected. Recently (just in time for swimsuit season!) it has gotten worse and more widespread. Haven't addressed with Dr. yet but you all seem to have more insight. Is this a common PBC issue or Urso side effect?
Sister65
in
PBCers Organization
1 year ago
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ALP and when to add 2nd line therapy
I was diagnosed Feb. 2022 ALP was 307. Started URSO right away. ALP went down quickly - In July 2022 it was 107 but October 2022 was 119 and April 2023 was 120. So my specialist wanted to add ocaliva. I convinced him to give it another 6 months before adding anything and he agreed. So I am praying
I was diagnosed Feb. 2022 ALP was 307. Started URSO right away. ALP went down quickly - In July 2022 it was 107 but October 2022 was 119 and April 2023 was 120. So my specialist wanted to add ocaliva. I convinced him to give it another 6 months before adding anything and he agreed. So I am praying
Heaslea
in
PBC Foundation
1 year ago
Morphea treatment - PUVA or triamcinolone injections?
hello, looking for a bit of advice as I was diagnosed with Morphea a few months ago. I’m under the care of dermatology department. It affects my whole left arm, part of my rib cage and some of my right arm. The worst area is around my left wrist where the skin is particularly tight around the joint
hello, looking for a bit of advice as I was diagnosed with Morphea a few months ago. I’m under the care of dermatology department. It affects my whole left arm, part of my rib cage and some of my right arm. The worst area is around my left wrist where the skin is particularly tight around the joint
Katie46
in
Scleroderma & Raynaud's UK (SRUK)
8 months ago
Alkaline phosphatase is 161
Pbc, they put me on ocaliva earlier this year along with urso, apparently I'm not responding to either, ..my alkaline phosphatase fluctuates from the 120s to 161 every test, is there anything I can do food wise or herbal to lower this? I hate pills lol
Pbc, they put me on ocaliva earlier this year along with urso, apparently I'm not responding to either, ..my alkaline phosphatase fluctuates from the 120s to 161 every test, is there anything I can do food wise or herbal to lower this? I hate pills lol
Dunks72
in
PBC Foundation
1 year ago
foods to avoid and/or eat to help with itching?
I used the choly. powder previously but not now. I am on urso (about 6 months as diagnosis was January this year after a bunch of missteps) and for a while the itching really subsided but it is returning and I am finding it interfering with my life (and the wearing of a swimsuit!) I kept a journal of
I used the choly. powder previously but not now. I am on urso (about 6 months as diagnosis was January this year after a bunch of missteps) and for a while the itching really subsided but it is returning and I am finding it interfering with my life (and the wearing of a swimsuit!) I kept a journal of
Sister65
in
PBC Foundation
1 year ago
Hello
I am a mom to 3 daughters. They are 27, 24 & 19. I am grandma to 1 granddaughter whom is 4. Been with my hubby for 11 years(?) I was diagnosed in 2004. I am on urso. Bloodwork every 3 months. Sometimes I get tired of doing the bloodwork. And pause for a bit. As of late I am SUPER itchy. I can drive
I am a mom to 3 daughters. They are 27, 24 & 19. I am grandma to 1 granddaughter whom is 4. Been with my hubby for 11 years(?) I was diagnosed in 2004. I am on urso. Bloodwork every 3 months. Sometimes I get tired of doing the bloodwork. And pause for a bit. As of late I am SUPER itchy. I can drive
GWilliams76
in
PBC Foundation
1 year ago
PBCer with sudden Fatigue/Exhaustion
I am a 59 yo female in the US, stage 1-2 PBC. I was diagnosed in 2006 after invests. Into my horrible bout of heartburn. I’m in pretty good health and taking Urso. I’ve done clinical trials and tried additional meds thru the years as well, in doing so I was found to have Gilbert’s? syndrome where
I am a 59 yo female in the US, stage 1-2 PBC. I was diagnosed in 2006 after invests. Into my horrible bout of heartburn. I’m in pretty good health and taking Urso. I’ve done clinical trials and tried additional meds thru the years as well, in doing so I was found to have Gilbert’s? syndrome where
Joycie193
in
PBC Foundation
1 year ago
Bloat
Hi does anyone get intermittent bloating with pbc. I've been taking urso for about a year now and seem to have quite bad bloating a lot lately? Thank Lynn
Hi does anyone get intermittent bloating with pbc. I've been taking urso for about a year now and seem to have quite bad bloating a lot lately? Thank Lynn
Casslucy
in
PBC Foundation
1 year ago
low RBC and Hematocrit
I’ve had PBC for 14 years, doing well on Urso. LFTs good. However my last two CBCs have shown low RBC and hematocrit levels. Can PBC have an impact on these and create anemia? Seeing my regular doc next week, hepatic doctor in a few months.
I’ve had PBC for 14 years, doing well on Urso. LFTs good. However my last two CBCs have shown low RBC and hematocrit levels. Can PBC have an impact on these and create anemia? Seeing my regular doc next week, hepatic doctor in a few months.
CeeCee101
in
PBC Foundation
1 year ago
elevated bloods
hi I’ve had near perfect liver test results for the past 12-13 years My last test recorded a significant jump in my readings and it was three days before I was contacted by my dr to say wait a month and Wewill redo. I’d had covid and taken antivirals. I did new ones two days ago and normally I see
hi I’ve had near perfect liver test results for the past 12-13 years My last test recorded a significant jump in my readings and it was three days before I was contacted by my dr to say wait a month and Wewill redo. I’d had covid and taken antivirals. I did new ones two days ago and normally I see
boneytoys
in
PBC Foundation
1 year ago
strange PBC , LFT back to normal before starting Urso- anyone with similar experience?
I’m 31 and have had raised ALT on and off and GGT (ever since my first pregnancy ) (GGT highest 98 and alt highest 37) and a bit elevated cholesterol,no scaring of the liver (did a fibroscan) , every where i have looked it says your ALP level will decrease if Ursofalk is working. My ALP has never been
I’m 31 and have had raised ALT on and off and GGT (ever since my first pregnancy ) (GGT highest 98 and alt highest 37) and a bit elevated cholesterol,no scaring of the liver (did a fibroscan) , every where i have looked it says your ALP level will decrease if Ursofalk is working. My ALP has never been
Tramezzini
in
PBC Foundation
1 year ago
liver levels
hi everybody I was just wondering if anyone else has high levels other then the alp? I’ve just had my bloods done my levels r, AST 77, ALP 512, BIL 13, GGT 248 I’ve been on urso for 1 year now and theses level r worring me, don’t no if anyone else has had these kind of numbers many thanks Lena
hi everybody I was just wondering if anyone else has high levels other then the alp? I’ve just had my bloods done my levels r, AST 77, ALP 512, BIL 13, GGT 248 I’ve been on urso for 1 year now and theses level r worring me, don’t no if anyone else has had these kind of numbers many thanks Lena
Lena2011
in
PBC Foundation
1 year ago
worried no medication will help
hi my alp levels r still 529 after being on urso for 1 year. I’m so worried that no medications for work too get my levels normal, has anyone else had trouble getting there levels down too normal? Many thanks
hi my alp levels r still 529 after being on urso for 1 year. I’m so worried that no medications for work too get my levels normal, has anyone else had trouble getting there levels down too normal? Many thanks
Lena2011
in
PBC Foundation
1 year ago
Urso Acid and headaches
hi everyone can I ask if anyone taking Urso has any problem with headaches? Thanks
hi everyone can I ask if anyone taking Urso has any problem with headaches? Thanks
Deemum
in
PBC Foundation
1 year ago
Choice
My Hepatologist is giving me the choice if I want to take Urso. I have a fatty liver too. And my Alp is high again this month and was high last year for several months. He said I could take it now or lose weight and test again in two months. I'm not sure what to do. I am also Ama m2 positive. Last
My Hepatologist is giving me the choice if I want to take Urso. I have a fatty liver too. And my Alp is high again this month and was high last year for several months. He said I could take it now or lose weight and test again in two months. I'm not sure what to do. I am also Ama m2 positive. Last
Zelda5
in
PBCers Organization
1 year ago
iron tablets and raising lFT
4 years diagnosed, stopped responding to Urso . I have been started on Bezalip after a year my lFT are raising again , I have been taking iron tablet’s could this possibly affect my results?
4 years diagnosed, stopped responding to Urso . I have been started on Bezalip after a year my lFT are raising again , I have been taking iron tablet’s could this possibly affect my results?
Kingy68
in
PBC Foundation
1 year ago
Urso has to be the correct weight ratio. Mine was wrong for years make sure yours is correct. All the best!
Urso.
Urso.
VMcnK
in
PBC Foundation
1 year ago
Fibroscan and ultrasound
Hi friends Haven’t posted for a long time and thought I’d feed back on my recent experiences of ultrasound and fibroscans - two of them because the first wasn’t accurate - in case this is of interest. Also a more philosophical bit at the end. My US was reported as ‘slightly coarse echo texture’ which
Hi friends Haven’t posted for a long time and thought I’d feed back on my recent experiences of ultrasound and fibroscans - two of them because the first wasn’t accurate - in case this is of interest. Also a more philosophical bit at the end. My US was reported as ‘slightly coarse echo texture’ which
Skypony
in
PBC Foundation
1 year ago
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